RareByDesign รีทวีตแล้ว
RareByDesign
1.3K posts

RareByDesign
@RareByDesign
Creating awareness of inclusion, representation and living life positively for #PWD and #RareDiseases along with their families. Founded by @kegottsleben.
South Dakota, USA เข้าร่วม Mart 2021
118 กำลังติดตาม145 ผู้ติดตาม

Don’t miss your chance to see your film on the big screen at our beautiful downtown Sioux Falls State Theatre. 📷
Tap the link: filmfreeway.com/TheFilmFestiva…
#TheFilmFestival #RBDTheFilmFestival #InclusionIsAlwaysIn

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Thanks for the kind words, Claudia! 📷
Remember that submissions are OPEN! Tap the link to submit. filmfreeway.com/TheFilmFestiva…
#TheFilmFestival #RBDTheFilmFestival #InclusionIsAlwaysIn #Disability #RareDisease #Films

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RareByDesign รีทวีตแล้ว

Have you registered for our 4th annual Run, Walk & Roll event?!
Join us on September 20, 2025, at Elmwood Park in Sioux Falls, SD. This is a great local 1-mile, 5k and 10k on the bike trail. Learn more here: runsignup.com/Race/SD/SiouxF… #SDCenterForDisabilities #HealthAndWellness

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We are so grateful for @EventCompanySD!
The Event Company@EventCompanySD
The Style Show: A Runway to Empower 2025. What an incredible night of celebrating the rare that makes us all beautiful! Client: @rarebydesign Venue: Hilton Garden Inn DT Sioux Falls Photos: @pinstudiossf #MidwestEventPlanner #EventDesign #CharityEvent #FashionShow
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We are so grateful for your support and assistance with this event each year.
The Event Company@EventCompanySD
The Style Show: A Runway to Empower 2025. What an incredible night of celebrating the rare that makes us all beautiful! Client: @rarebydesign Venue: Hilton Garden Inn DT Sioux Falls Photos: @pinstudiossf #MidwestEventPlanner #EventDesign #CharityEvent #FashionShow
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Advancing lifesaving treatments & initiatives is vital! Average time to diagnose rare diseases is 4.8yrs & only about 5% of #RareDiseases have approved treatments. We'd love for you to join in recognizing #RareDiseaseDay on Feb. 28 by wearing stripes or rare disease colors.
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1/2 Did you know that it is estimated that 1 in 10 people (30 million) in the United States have a rare disease? This year’s #RareDiseaseDay is more critical than ever to increasing awareness & research.
youtu.be/yH5XFg-U3qk?si…

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RareByDesign รีทวีตแล้ว

.@EveryLifeOrg Asks Advocates to Urge your Members of Congress to protect #RareDisease experts, funding, and stability of our nation’s biomedical research and public health agencies. It takes no time at all to do this. everylifefoundation.quorum.us/campaign/11029…
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Grab your early bird pricing ticket(s) and other fun add-on items at thestyleshow.org.
#InclusionIsAlwaysIn #RepresentationMatters #FashionForAll
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Meet Cara McGary! You will see her as one of our models at #TheStyleShow on May 3!
Cara is from Sioux Falls, South Dakota, and is currently a freshman at South Dakota State University (SDSU) studying nursing. She is also a cheerleader on the SDSU Cheerleading team.

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We are excited to announce that tickets for #TheStyleShow at the Catlin (formerly known as Hilton Garden Inn DTSF) are now available for purchase. This year we have early-bird pricing. Prices will last until March 15!
Snag your ticket(s) at thestyleshow.org

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Today we shot video footage for our Tradition of Caring commercial with @keloland! We had a wonderful time with the #Keloland crew as we filmed. Our team is incredibly excited to see the final product.
#InclusionIsAlwaysIn #RepresentationMatters
instagram.com/reel/DF886D4Mp…
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#ModelMonday
Let's meet our next model who will join us on our #TheStyleShow runway this May 3!
Derek Smith lives in Sioux Falls, SD, and has a dog, Jaxon. He works at @joingreatlife Fitness and Performance Center and loves to... facebook.com/photo/?fbid=64…
#InclusionIsAlwaysIn

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RareByDesign รีทวีตแล้ว

Rare disease research is already underfunded. Cutting indirect costs only worsens the situation, jeopardizing the very science that leads to breakthroughs. How can we expect innovation when the basic support for it is stripped away? @doge #SaveScience #RareDiseaseTruth
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#FashionFriday
Let’s give it up for Terra Shepherd Boutique & Apothecary! Not only is our team excited to have them back in lineup for #TheStyleShow, but so are our models! Trendy & adaptable clothing is what we like to see. Can’t wait to have our models show off their clothing.

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Who is ready to meet our first model of our #TheStyleShow: A Runway to Empower 2025? This year's group of models is the largest we have had to date!
Phoenyx Bartscher is a vibrant music enthusiast with a contagious laugh and a sharp sense of humor. She... facebook.com/photo/?fbid=64…

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