Rare Cancer Research Foundation + Pattern.org

It may be a #NewYear, but our resolution remains the same: through our fiercely patient-centric approach, we are still working tirelessly to create greatly needed research infrastructure to improve the outcomes and care for #RareCancer patients. 💚💙

#NewBlog from Pattern.org’s Barbara Van Hare on our commitment to #RareCancer patients: rarecancer.org/news-updates/d…

Collaboration finds cures. rarecancer.org/donate-2024

Happy Holidays! ✨

Diversity in data is key to making progress in the development of vital #RareCancer treatments. Representation in research leads to better health outcomes for everyone! 🤝 Here at RCRF, we’re working to achieve better health equity for ALL rare cancer patients. Join us today.

According to our partner the Chondrosarcoma Foundation, only ~19% of rare cancer patients receive genomic sequencing. 🧬 Here at RCRF, we're working to change that. We believe that every #RareCancer patient should have access to this increasingly important information.

RCRF is fiercely patient-centric. Tissue donated through Pattern.org has helped to create over 58 rare cancer research models and counting! As Jane says, it’s a game changer. 🤝

Today is #GivingTuesday2024, and we hope you will consider us in your donation plans as we work to improve outcomes for #RareCancer patients. Learn more and give today at the link in our bio! 💙💚

Visit pattern.org to learn more about our #RareCancer tissue donation initiative. 💚💙 You can make a difference!

Click for a special message from us. 🦃 Thank you for supporting #RareCancer research! 💙💚

We’re working to accelerate transformative advances in #RareCancer treatment and we need your help. Tomorrow Can’t Wait. Please consider us in your end-of-year giving and join us today! 💙💚 👉 rarecancer.org/donate-2024

We're proud to announce we've been selected as an @ARPA_H Investor Catalyst Hub spoke: connecting researchers, entrepreneurs, & investors to accelerate solutions for innovative biomedical solutions! Excited to bring our expertise in rare cancer research to investorcatalysthub.org

Happening TODAY at 12pm CT: Live (free) webinar, "Innovations in Rare Cancers," - RCRF President, Dr. Marshall Thompson, will join the panel discussion to share his perspectives on the most pressing issues in rare caner research! Register to join: eventbrite.com/e/innovations-…

📣 Mark your calendars for 4/10-4/11 for The EHE Foundation's 2025 EHE 360 Global Patient Conference. More details to follow soon! #EHE360 #EHE #EHEfoundation #TheEHEfoundation #justlive #rarecancer #EHEcancer #sarcoma #empowerpatients

Check out this article featuring a few of our team members! Our own @kaydaustin explains how she turned her diagnosis into a mission to help people with #rarecancers.

Several members of the RCRF team are quoted in this @CancerTodayMag feature on "Patients as Research Partners," which discusses patient-driven rare cancer research programs, such as our Pattern.org program & The Broad Institute's Count Me In: bit.ly/3TPcUT6

@CureNETs Thanks for sharing!

It's #RareCancerDay and @CureNETS is sharing @RareCancerRF’s call to #DonateYourData! RCRF will be launching a patient-powered data commons to collect medical records, sequencing data & more. Sign up here to learn more: rarecancer.org/donate-your-da… #DYD

@ChanZuckerberg @RareDiseases

Want to take control of your data? Join us today on #RareCancerDay to sign up to #DonateYourData to the first patient-powered data commons- a resource that will help researchers accelerate discovery for #rarecancers: rarecancer.org/donate-your-da…

Our Pattern Data Commons will allow patients to donate their data by consenting to have RCRF collect medical records & sequencing data through a secure online platform. Sign up to learn more & #DonateYourData: rarecancer.org/donate-your-da… 2/2

We announced today on #RareCancerDay that we’ll be launching the Pattern Data Commons - a patient-powered data repository that will help researchers accelerate discovery for #rarecancers…1/2