Sickle Cell Convos

I'm really grateful for all blood donors and I had the opportunity to say it again on @bbcemt today. Thank you @GiveBloodNHS for the opportunity to join the call for blood donors this Christmas. #giveblood #dosomethingamazing #givebloodsavelives #sicklecellconvos

Or they read the notes & refuse to act on it. They think giving a lame excuse will suffice. No one should be left in severe pain & unable to sleep because the doc refused to do the right thing. They will rather have the patient suffer. Don't take the job if you won't do it well!

@nottmhospitals @NHSNotts the docs on call over the night are too lazy to read the notes from previous admissions and see what meds were given to the px. My last admission was Jan, the one before that was Nov/Dec & I was here for 3 weeks. Just to read the notes, they refuse to

@nottmhospitals @NHSNotts I am not a novice patient. I have lives with sickle cell for 43 years. These excuses that don't hold water should be stopped. Your registras will rather have a patient have a sleepless night in severe pain than do the right thing.

Opioids doesn't hold water. I was in the hospital for 3 weeks Nov/Dec and I was given the nights I needed it. So why can't they look at previous note and see I was given? I was even on higher dose of subcutaneous oxycodone then.

Since 9pm that the job was put out, they didn't prescribe it till past 12, then they gave the same excuse. Yesterday I didn't sleep until past 4 this morning. I do not have a line, I am not getting IV meds. I'm getting subcutaneous oxycodone so the excuse that because I'm on

@nottmhospitals @NHSNotts please look into ur registras that work overnight. I have been pleading for zoplicone 7.5mg for days now. The excuse is that because it's late, they will only give a low dose. Low dose that does nothing for me. 2 days ago I asked as early as 9pm but same

They also don't bother to check previous notes from previous hospital stays. Why will I not be able to sleep for over 3 days now & they keep giving the same lane excuse?? To prescribe zoplicone 7.5mg is what they have refused to do. They keep giving only 3.75 but it doesn't work

@NHSNotts @nottmhospitals You really need to look into the care sickle cell patients receive at night from the doctors/registras on call. They do not care that we are in pain and sometimes can't sleep. A lot of times, they never come to check on the patient.

youtu.be/xvEfTnExSQE?si… I was on a podcast 💃🏾👏🏾 Please watch and share with your friends. Thank you 🙏🏾

⚠️ Burkholderia found in certain wipes. #Burkholderia is a bacteria that rarely causes harm in healthy people but sometimes causes serious infections, particularly for those with certain medical conditions or managing IV lines at home: gov.uk/government/new…

Using A Portable Oxygen Concentrator (POC) On A Flight. Must watch and learn. youtu.be/6nOPb7ra1sw?si…

Sickle Cell and DVT patient unboxing the Roche Coaguchek INRange System. youtube.com/shorts/Mhy86t-…

#HappyNewYear from all of us at Sickle Cell Convos 🎉🎊 Praying 2026 is good to us all, health wise and in all other aspects. No pain, no complications, this new year in the mighty name of Jesus, Amen 🙏🏾 Congratulations on seeing the new year, warrior fam. #SickleCellConvos #2026

If you live with sickle cell, these are some things to consider. youtu.be/aOr9ThbJWaM?si…

It seems COVID is making a comeback. Please protect yourself especially if you're a sickle cell warrior. . #sicklecellconvos #sicklecell #covid

Be your own voice. Advocate for yourself. youtu.be/bW7in_SxZx8?si…

Episode 5 of important things when living with sickle cell. youtu.be/yl2NIptCR_Y?si…

Nutrition is very important in Sickle Cell. youtu.be/8kD46HmYpIQ?si…