Our poster from the GLIA-CTN Conference can now be viewed and downloaded on our website! Go to the "Support & Resources" tab then click on Webinars & Presentations.
zurl.co/Yofhq
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Sisters' Hope Foundation
888 posts
Sisters' Hope Foundation
@SistersHopeALSP
The mission of Sisters’ Hope Foundation is to support and empower families impacted by HDLS/ALSP.
Global เข้าร่วม Mart 2021
1.3K กำลังติดตาม348 ผู้ติดตาม
Tickets on sale now!
Mr. Greengenes
6.21.25
Live! Casino & Event Center
Philadelphia, PA
zurl.co/y381M
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February 28th is Rare Disease Day!
#showyourstripes #rarediseaseday #rarediseasemonth #rarediseaseawareness #alsp
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Congratulations to Heidi Edwards for being featured in the 2024 CIRM Annual Report!
The California Institute for Regenerative Medicine (CIRM) has awarded several grants specific to ALSP research. You can read the full report at the link below 🔽
zurl.co/BQWZz
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Congratulations to Heidi Edwards for being recognized as an Alumni Success Story at Alvernia University for her work with Sisters' Hope Foundation.
You can read the full story here 🔽
alvernia.edu/success-storie…
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The 4th Annual Hope Auction is almost here! We want to give a shout out to our newest sponsor: The Tara Roming Team. Thank you for your support! We hope to see you all this Saturday and Sunday at Orwigsburg Masonic Lodge.
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Celebrate your birthday with Sisters' Hope Foundation and create a Facebook Fundraiser to help raise money for ALSP! Contact us if you need assistance!
#alsp #alspawareness #csf1r #leukodystrophy #leukodystrophyawareness #birthdayfundraiser #Octoberbirthday #facebookfundraiser
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Celebrate your birthday with Sisters' Hope Foundation and create a Facebook Fundraiser to help raise money for ALSP! Contact us if you need assistance!
#alsp #alspawareness #csf1r #leukodystrophy #leukodystrophyawareness #birthdayfundraiser #Octoberbirthday #facebookfundraiser
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This week on the blog: Remembering Heather
Read it here: sistershopefoundation.org/2024/08/27/rem…
#alsp #alspawareness #csf1r #leukodystrophy #leukodystrophyawareness #grief #loss #livingwill #advanceddirective
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This week on the blog: Grief at Two Years
Read it here: zurl.co/htix
#alsp #alspawareness #csf1r #leukodystrophy #leukodystrophyawareness #grief #loss
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Sign-up for our monthly newsletter to stay in the loop with the latest events and happenings from Sisters' Hope Foundation!
#alsp #alspawareness #csf1r #leukodystrophy #leukodystrophyawareness #newsletter
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We want to know your favorite song! Any genre, any era, if you could listen to one song, what would it be?
#alsp #alspawareness #csf1r #leukodystrophy #leukodystrophyawareness #favoritesong
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