Sickle Cell Fund

In Memoriam: A statesman and a gentleman. May you rest in peace, Mr. President. #PresidentJimmyCarter

SCDAA’s Medical and Research Advisory Committee (MARAC) has issued a statement regarding Pfizer’s withdrawal of voxelotor (Oxbryta®) from national and global markets on September 25, 2024. Read the MARAC statement here sicklecelldisease.org/2024/09/28/mar…

pfizer.com/news/press-rel…. Attention #SickleCell we need to be careful and WEAN people off Oxbryta and not just stop it. Let us know if we can help! We will have new meds-So do not lose hope or give up.

Hi everyone!! It is sickle cell awareness month and we need action and improvements. The National Alliance of Sickle Cell Centers now has >100 recognized #sicklecell center delivering multi-disciplinary care. Check us out! #SickleCellAwarenessMonth sicklecellcenters.org

#sicklecellawareness #sicklecell ashpublications.org/ashclinicalnew…

Last week was amazing! Big thanks to the @promoandarts for lighting the Bromo Seltzer Arts Tower in RED for #ShinetheLightonSickleCell2024! #WSCD2024

Yesterday, our team of Editors united in support of our blood drive, hosted in recognition of #WorldSickleCellDay. Together, we collected more than 40 pints of blood. Thank you to all who donated, organized the drive, and extended their support. #ShinetheLightonSickleCell

ICYMI: In observance of #WorldSickleCellDay, CGTLive brought together a variety of expert insights on navigating the rapidly expanding landscape of care for this inherited blood disorder. #SickleCell #ShinetheLightonSickleCell2024 @WEPSCF More: cgtlive.com/view/choosing-…

Shine the Light on Sickle Cell is an opportunity for people around the country and around the world to stand up and speak out for a universal cure. Learn more about how you can get involved: wepsicklecell.org/sinerge/shine-… @WEPSCF