Laura Beretsky

196 posts

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Laura Beretsky

Laura Beretsky

@beretsky

AUTHOR/ACTIVIST/EPILEPSY AWARENESS ADVOCATE Writing about/fighting for disability rights, patient self-advocacy, and the challenges of living with epilepsy.

Somerville, MA เข้าร่วม Ağustos 2014
82 กำลังติดตาม86 ผู้ติดตาม
Laura Beretsky
Laura Beretsky@beretsky·
Increase @epilepsyawareness Law Enforcement Officials’ Ignorance About Epilepsy Is Fatal: Inappropriate response to 26-year-old Rhyker Earl’s tonic clonic seizure leads to his death two days later: Law Enforcement Officials’ Ignorance About Epilepsy Is Fatal - Laura Beretsky
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Laura Beretsky
Laura Beretsky@beretsky·
Technological advances are increasing surgical options for children with refractory epilepsy in some parts of the world, but access is still ten years behind in developing countries like India. More on my blog: lauraberetsky.com/the-brain-surg…
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Laura Beretsky
Laura Beretsky@beretsky·
Whether or not to drive if you have epilepsy is a personal decision to be made with input from one’s neurologist. Remember: disregarding the neuro’s advice can be tragic and fatal. More on my blog: lauraberetsky.com/low-profile-wi…
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Laura Beretsky
Laura Beretsky@beretsky·
This week, Dr. Rasian’s neurosurgery team received FDA approval for a clinical trial to test new pre-surgery brain-mapping technology that could increase brain surgeries’ success and safety. More on my blog: lauraberetsky.com/anniversaries-…
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Jocelyn Pippen
Jocelyn Pippen@JocelynPippen·
Anyone know of resources that help people with Epilepsy ?
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Laura Beretsky
Laura Beretsky@beretsky·
A study by Epilepsy Climate Change’s co-founder, Dr. Sisodiya evaluating climate change’s impact on neurological disorders found clear evidence of climate change’s impact on brain conditions, including #epilepsy. lauraberetsky.com/epilepsy-and-c…
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Laura Beretsky
Laura Beretsky@beretsky·
Harvard-based neuroscience team research efforts led to the first ever digital brain map, which will advance cures for neurological conditions like #epilepsy. These kaleidoscopic brain images are from the team's gallery. Gallery link is in my latest blog: lauraberetsky.com/surgeries-bigg…
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Laura Beretsky
Laura Beretsky@beretsky·
@BrainAblaze @DCClifford I had a kiwi-sized portion of my brain resected--TOTALLY scary, led to a subdural hematoma, a 2nd brain surgery and an end to my seizures. Glitchy, but worth the trip. Such a wild ride I had to write a book about it, hoping to raise epilepsy awareness: lauraberetsky.com/book-release-c…
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Laura Beretsky
Laura Beretsky@beretsky·
I am delighted to share that Citizens United to Research Epilepsy featured an interview with me on their monthly podcast, Seizing Life. CURE's mission is finding a cure for Epilepsy, a condition that’s been around for millennia but still has no cure: cureepilepsy.org/seizing-life/
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Laura Beretsky
Laura Beretsky@beretsky·
@TalkAboutItorg If you're considering surgery or devices, you probably want to get care at an Epilepsy Center--there are 260 in US. Check #NAEC for list: All Epilepsy Center Locations - National Association of Epilepsy Centers (naec-epilepsy.org)
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Laura Beretsky
Laura Beretsky@beretsky·
@TalkAboutItorg If you have refractory seizures, be sure your neurologist is also an epileptologist, ie neuro who specializes in epilepsy. There's a list of them here by state: Find Top Epileptologists by State. (webmd.com)
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EL 👑 de NYC
EL 👑 de NYC@LAnanaPODEROSA·
@beretsky @BrainAblaze Not yet. So far i did induction then i got my treatment no espisode since 2020. Now i go for my 2nd brain wave reading its eeg or something like that. Amazing im gonna read that story as well
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Brain Ablaze
Brain Ablaze@BrainAblaze·
Neurosurgery is scary, but so are seizures. There are long-lasting effects of repeated seizures, and neurosurgery can provide a path to seizure freedom for some people with #Epilepsy. -- What are your biggest fears about neurosurgery? #EpilepsyAwareness
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