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Thank you Terry for recognizing @raredisorders and Madi and I for our efforts towards a #RDDS We appreciate your continued support and look forward to continuing our work together. #CdnPoli #Canada4Rare
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beth Vanstone
12.6K posts
beth Vanstone
@bethdenniss
Podcast Producer @TheBonnellFoundation Liaison @UofT Pharmacology Dep Former Director @CFGetLoud , Advocate for Cystic Fibrosis and the rare disease community.
Ontario Canada เข้าร่วม Mayıs 2015
237 กำลังติดตาม446 ผู้ติดตาม
beth Vanstone รีทวีตแล้ว
SickKids is proud to be named one of the world's best children's hospitals!
For the 4️⃣th year in a row, SickKids is among the top in a @Newsweek ranking of hospitals that offer specialized care, based on a global survey of health-care professionals.
➡ bit.ly/3TytlmR
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We are experiencing the same challenges in Canada. It’s shameful patients should have the opportunity to trial.
Rare in Rare.
#dobetter #nooneleftbehind
Partnership to Improve Patient Care (PIPC)@PIPCpatients
New #CysticFibrosis therapies exist, but not all patients in France can access them due to restrictive mutation-specific policies. Why should life-saving treatments only benefit some? #ValueOurHealth #HealthEquity ouest-france.fr/bretagne/rostr…
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@WesternRare My daughter Madi and I are part of an exciting initiative working with the U of T pharmacology dept. Experiential learning. Luv what your podcast is doing to raise awareness for Rare Disease!
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Season 2 Episode 4 of the Rare Diseases podcast is out now! Join us in discussing the impact of student advocacy in rare disease with Magnus Stenlund from CORDSA! YouTube: @RareDiseasesPodcast" target="_blank" rel="nofollow noopener">youtube.com/@RareDiseasesP… or Spotify: podcasters.spotify.com/pod/rare-disea…
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@stacey_wallen She didn’t tell anyone who to vote for, sooo get it right and shhhh 🙄
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beth Vanstone รีทวีตแล้ว
Registration Now Open! Apply for Scholarships & Book Your Hotel! Visit this link to register, secure your hotel room, and apply for scholarships!
raredisorders.ca/events/upcomin…
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This moment brought to you by gratitude. This morning I reached into my fridge grabbed the eggs, coffee and ketchup and paused to remember how lucky I am to have a full fridge. A moment of gratitude for the things we so often take for granted can provide peace.
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@KarluskaP I only needed to hear you speak to realize you are a Trumpster🙄😂
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Whoa -only if you’ve been in a narcissistic relationship will you understand what’s going on here
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@Maureenchats @CDA_AMC @dreyalcohen @OSSUtweets @INFORMRARE @IMPaCTrials @CochraneConsumr @McMasterForum @raredisorders @RareKidsCAN Congratulations Maureen! Wonderful recognition for your amazing contributions to the community 🥰
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@Maureenchats @CDA_AMC @dreyalcohen @OSSUtweets @INFORMRARE @IMPaCTrials @CochraneConsumr @McMasterForum @raredisorders @RareKidsCAN Congratulations Maureen! Well deserved 🥰
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More here from us on understanding the #RareDisease registry landscape: cda-amc.ca/news/understan…
#HTA #CdnHealth
Rebecca Yu 🇨🇦@rebeccayu
.@CDA_AMC Helen Mai speaking at symposium on how it is developing a repository of information for #DRDs that helps to prepare health systems for Drugs for #RareDisease #CDA_AMC and need for newborn screening to support earlier diagnoses & timely treatments #betterpatientoutcomes
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@bethdenniss We're so glad Harley is loving his Freshpet! We think he has great taste.💚
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@Freshpet Harley aka Weiner was super excited to try #freshpet for small dogs today. He just can’t get enough! Wanted to let you know😂😂
#cutedog #goodfood #tastytreat
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@AreOhEssEyeEe Seriously, teachers don’t dictate when PA days land. Are you for real?
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Can someone please explain to me why the first day of school is P.A. Day?
These woke teachers can't get their shit together with the whole two months they have off during the summer?!
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beth Vanstone รีทวีตแล้ว
With the development of more metrics for #valueassessment, it's essential that policymakers and payers grasp the tradeoffs involved and focus on the needs of patients and individuals with disabilities. #HealthEquity #ValueOurHealth pipcpatients.org/value-assessme…
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@AlexpiersonAMP Heartbreaking! Don’t drink and drive, it’s not rocket science 🤬
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Imagine the number of family’s destroyed just in this one case. Everyone’s life is now anyone’s guess. Hard to comprehend.
OfficerPapadopoulos@PCPappy
This is what Drunk Drivers destroy. Rest in Peace Johnny Gaudreau. Condolences to the family, friends and NHL for their loss. #DontDrinkandDrive #JohnnyGaudreau #ImpairedDrivingisntAJoke #NHL
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@TSN_Sports Killed while cycling by a piece of shit drunk driver. Tragic does not begin to describe this but criminal does. I hope they rot in jail. I’ve read they were to be groomsmen at their sister’s wedding today but do not know if it’s true. My ❤️ goes out to their family and friends.
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beth Vanstone รีทวีตแล้ว
Meet Daniel Kinchlea: A young champion of resilience
This #InternationalAutoinflammatoryAwarenessMonth, we celebrate the incredible journey of 10-year-old Daniel Kinchlea!
👉 Watch Daniel's inspiring story: youtu.be/4PMlA_diQ8k?si…
YouTube
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