John MacArtney

Important new paper looking at the Covid-19 emergency public health period and its effects on hospice palliative care in @socscimed @abiccles @KathrynAlmack @CattyRM @cathgrimley2 sciencedirect.com/science/articl… #PEOLC #Hospices #covid19 🧵 1/

📣New #NESBereavementPodcast out now. @katewoodybath and @johnmacartney discuss the sociological perspectives of death, dying & bereavement and consider the phrase ‘loved ones’ - is it an appropriate catch-all or a problematic phrase? Listen: spoti.fi/4b2qTwm

How can social science and humanities help us “to know dying”? This week, Marie Curie, the @LindAlliance and partners, including cofunders the @ESRC and @MND Association launched a refreshed list of priorities for palliative and end of life care research. Researchers at the @OpenUniversity @openthanatology, @uniofwarwick and @UCLPsychiatry /Marie Curie took on the task of bringing together researchers from diverse disciplines to identify five research areas for social sciences and humanities, based on the questions generated through the priority setting process. These research areas were: Experience, practice and education Awareness, communication and planning Power, ethics and transitions Time, space and care Diversity, equity and society Each of these areas is explored and expanded upon in the To Know Dying report. The report outlines how a range of disciplinary approaches, including social sciences and humanities, are required to address the complex, multifaceted issues in palliative and end of life care.

I am giving a talk on three key moments in the UK disability rights movement for #DisabilityHistoryMonth at @unibirmingham Wed 11th Dec, 12-1pm, hybrid (with online captions), free, and open to all! birmingham.ac.uk/events/disabil… #DisabilityTwitter @CoSS_Birmingham @artsatbham

Don't Mention It!

@PrognosticChats And the problem of covid's effects on quality of life continues into palliative care: x.com/johnmacartney/…

We are looking for a 0.5FTE permanent Senior Research Governance Manager to manage and oversee research governance for research carried out in @MarieCurieEOLC services and linking in with others in the sector. Please disseminate to your networks. bit.ly/3MZRPBE

We only went and won it!!!!!!!!!! 💛🥳💛 #NTAwards #ReserachNurses @NursingTimes @NIHRresearch @MarieCurieEOLC @mariecurieuk @KPatynowska @hilarynailon @rachelperry72 @DrEmmaCarduff @katemaitland

@SafeAirSchoolUK @lorraine @GMB Here’s the clip x

This is such an important point, which I think many in palliative care are struggling to recognise, never mind address: x.com/johnmacartney/…

@ELHopkins @DrFrancesRyan Trying to rise awareness with this blog: x.com/johnmacartney/…

@ELHopkins @DrFrancesRyan Indeed! Recently published this on hospice palliative care staff struggles with a "living with covid" approach to quality of life left: x.com/johnmacartney/…

Miranda Hart’s new memoir on chronic illness seems very well intentioned but this pseudoscience is worrying. If you’re writing a book after you’ve recovered, there’s a particular responsibility to be accurate to readers who are desperate to recover too.

For more: x.com/johnmacartney/…

Does palliative care have a problem with…“the c-word”? My blog on @BMJ_SPCare blogs.bmj.com/spcare/2024/10…

CVFs "wishlist" None of this is happening currently, although patients sometimes ask for staff to mask *See a mask, wear a mask* would be much simpler than self-advocacy. 16/

There is no testing in healthcare. This is a problem for Clinically Vulnerable people who are "high users of healthcare". CVF advocates for #MasksInHealthcare. 15/

Current guidance for immune suppressed people is to: ↔️Ask visitors to keep their distance. 📥Take a lateral flow test 😷Ask them to wear a face covering 😷You may want to wear a face covering yourself Cathy flags the juxtaposition of this advice with risks in healthcare. 14/

Yet not all of CVFs members have the ability to delay or cancel appointments due to their serious health conditions. Or they can delay some things to avoid Covid peaks, but not others. 13/

Removing mitigations from healthcare settings has a disproportionate impact on those who carry the greatest risk, although all within healthcare will have higher risks as they are generally a more vulnerable population. 12/

The removal of masks in healthcare has has a direct impact on the health of Clinically Vulnerable people who have increasingly had to delay or cancel their appointments due to high Covid risks. 11/

#MasksInHealthcare CVF members who wore good quality (FFP2/ FFP3) masks were told to remove them by staff who may have been poorly informed. 10/