NephCure

Get involved with the IgAN Alliance — join our programs, collaborate on initiatives, and help advance research and patient care. Learn more about our progress in the topline summary of Workshop #1 at IgANAlliance.org.

Did you know NephCure is home to the largest community of rare kidney disease patients? 💙 Join us, connect with others, and find an event near you: nephcure.org/get-involved/e… #RareKidneyDisease #NephCure #GlomerularDisease #NephroticSyndrome

Living with IgAN often means carrying a silent burden. Over the past year, we built the IgAN Alliance to provide timely answers, informed care, and community. Take a look at our progress in improving care and join the Alliance at tinyurl.com/4bwkpu68.

Join us July 22nd - July 23rd in Washington DC to use your voice for change on Capital Hill! Click here to register: nephcure.org/get-involved/e…

Join us for Rare Kidneys Connect: Nephrotic Syndrome Family Education Day on April 11 from 12:30pm - 4:30pm in Philadelphia! Click to register: nephcure.org/es/evento/rare…

Thank you for making Kidney Month so impactful! 💚 Your voices helped raise awareness for rare, protein‑spilling kidney diseases and highlighted why equitable access to expert care matters. Kidney Month may be ending, but our work as a community continues!

Rare kidney disease deserves to be seen, and this Kidney Month, you helped make that happen. 💚

Your stories of courage and perseverance inspire us—and give hope to everyone impacted by rare kidney (glomerular) disease. Explore our full collection of patient stories: nephcure.org/support/patien…

Behind every breakthrough in rare kidney disease is a researcher who chose to push research forward. We’re grateful for every NephCure‑funded researcher helping our community move toward better answers and better care. 💚

This Kidney Month, we’re highlighting the impact our community is driving: research investments, FDA‑approved treatments, global initiatives, and 60+ clinical trials. These numbers tell a story of progress and advocacy. We’re proud of how far we’ve come, and what’s next.

Did you know NephCure is home to the largest community of rare kidney disease patients? 💙 Join us, connect with others, and find an event near you: nephcure.org/get-involved/e… #RareKidneyDisease #NephCure #GlomerularDisease #NephroticSyndrome

A new era for rare kidney disease care begins. NephCure’s new mission is clear: to ensure equitable access to expert care and emerging treatments for every person living with a rare, protein‑spilling kidney disease. Because progress means nothing if patients can’t reach it.

March is National Kidney Month, it is our moment to come together as a community and shine a light on rare kidney disease. Visit our Kidney Month webpage on nephcure.org/kidney-month-2… where you will find ways to get involved and special edition merch! Stay tuned! 💚

Navigating the kidney transplant process can be overwhelming. We’ve created an easy-to-understand guide to help patients know what to expect and feel more prepared. Explore the resource here: nephcure.org/intro-to-rkd/e…

Join us June 25–27, 2026, in New Orleans, LA, for the annual NephCure Patient Summit and Youth Summit! nephcure.org/get-involved/e…

We’re pleased to share that the FSGS sign-on letter to the FDA deadline has been extended. Members of the NephCure community now have until Friday, February 20th at 12pm ET to add their names and help amplify the urgent need for progress! #signtheletter" target="_blank" rel="nofollow noopener">nephcure.org/sign-on-letter…

Over 7,000 rare diseases exist, according to the NIH—and we know how isolating rare kidney disease can feel. But remember: you are #RareButNotAlone. NephCure is here to support, uplift, and walk this rare kidney disease journey with you.

We need your voice to shape the future of FSGS treatment. Click to sign by 2/18: nephcure.org/sign-on-letter… By adding your name to our letter to the FDA, you are helping amplify the collective voice of the FSGS community.

Every kidney disease journey deserves love and support. 💗 This Valentine’s Day, we’re celebrating the strength of patients, families, and caregivers—and the hope that carries you forward.

We need your voice to shape the future of FSGS treatment. Click to sign by 2/18: nephcure.org/sign-on-letter… By adding your name to our letter to the FDA, you are helping amplify the collective voice of the FSGS community.