Peppermint Patti

WE the Chronic Pain Patients( CPP) may live in Pain but WE are NOT POWERLESS. WE've been beaten down but WE are NOT BEATEN. We have lost some battles but NOT the WAR. WE have been victimized but WE are NOT victims. Time to put away the tissues & tears pick up torch for change.

Can you imagine time traveling back to the 1990s, when doctors were taught that pain was the 5th vital sign? There was a time when clinicians couldn’t tolerate watching a patient sit in agony. If someone came into the ER doubled over, crying, begging for help, relieving pain wasn’t optional. It was the job. Somewhere along the way, the culture shifted. Now a person can be on the floor in visible agony, and nothing about it guarantees help is on the way. A grown man on the floor of a hospital waiting room, on his knees, folded over himself, crying out in pain, begging for help, while everyone around moves like he isn’t even there. And now, you don’t have to imagine it anymore. You’re looking at it. This is what ERs across the United States look like today. One day, this could be you. Or someone you love.

@mkaywhasou @ThePOTSPostman Mkay)))

@ThePOTSPostman Had what I would consider for me a good day on Easter. Had the family in. Pushed through. And a good time was had by all. Woke up Monday and I couldn’t walk.😫 Literally found myself on the floor. MS SUCKS!

There’s no clean line between a “good day” and a “bad day” with chronic illness. “Good” just means manageable, not safe. One moment you’re functioning, the next you’re not. It flips that fast.

Why we're loosing independent local Pharmacies youtu.be/woACpI9C9XE?si…

@hrhgypsy So love you! R))

@Angelsgal02 No need for apologies. I know days like those well. When I consider myself lucky for remembering my own name. Hugs.

@hrhgypsy, Ive listened to the learn to live alone song a few times. Love her voice, the way she phrases, the balance of music- uncomplicated. Enjoyed it so much checked out her other songs. ( see link below). Thank you ! When a woman grows cold. youtu.be/ZbE_NyyRDQs?si…

@LelenaPeacock .@CDCgov needs an overhaul to regain Americans' trust. Admitting that @CDCInjury erred with the 2016 Opioid Guideline by creating the 2022 Guideline was a step in the right direction, but not sufficient.

@LelenaPeacock @ChrisNeuen Yep

You could just restore access to controlled medicines so patients would not be forced to the streets to treat pain & other life altering symptoms. If you did that, we wouldn't be experiencing a wave of poisoning deaths. I suspect saving lives is not the objective of the CDC.

@ApostateAlex Lol!

After 3yrs protesting, today I went back to Saint Hill, confessed and donated my remaining bank balance. Now begins the long road of making amends. It’ll take time (and $$) but worth it for the spiritual gains I’ll get on the RPF. Hard manual labour, here we come!!! #AprilFools

@sstorck Oof!

@Angelsgal02 I get it,I had to take shannon to dental appointment. Now on my way home to rest until I meet my son for his birthday dinner.

Funny how Cpp/ fatique disease denial works. Finishing coffee with my tiny list of teeny chores to do~ until I cant deny the truth. Im exhausted. So, its back to bed in a bit. Flare day. CONT)

@ThePOTSPostman Also, thanks to agendas people in constant pain are viewed as faking, exzaggerating, being dramatic or the very worse: with pity. As if pain makes us undeserving or less than. I hate that the most.

@ThePOTSPostman A blessing. Sometimes I wonder if its the inability of others to put themselves in our shoes. Growing up I it was understood/ respected so n so was going through it. Parents would tell kids to go help them with this or that because they cant, or its hard for them. No longer.

I find it easier to talk to people with chronic illness, even if they’re complete strangers, than people in my own life. I don’t have to explain anything. I don’t have to prove anything. They just understand. I don’t get that in real life.

@ThePOTSPostman @SarahSpekz Me too

@SarahSpekz That’s awesome! Love that for you

@SarahSpekz @ThePOTSPostman Nice

@ThePOTSPostman I actually have a couple of friends in real life, who live relatively close, and also have chronic pain issues, amongst others. They get it.

@ThePOTSPostman I’m the same. I can speak freely, even run symptoms by people and I’ve honestly learned more from my community here than in a Dr’s office. It’s helped me understand & bring it up with my Drs. And no explanation ever necessary. I appreciate you all so much

@ThePOTSPostman The hardest disabilities to deal with are the ones you can’t see. People just don’t get it. Stay strong 💪🏼

CONT) I sware my mind & body fight: M: I can do this! B: Im exhausted. M: lean on me. B: I cant. Too tired. I stand up to do things, waves of exhaustion, pain force me back down. I admit the truth. Not gonna happen today. I MUST rest! Anyone relate?