DIPG Resource ری ٹویٹ کیا
DIPG Resource
104 posts

DIPG Resource
@DipgResource
An online resource (in progress) for families of children diagnosed with DIPG. Pardon the dust on our website. It’s an ongoing project 🎗
Ohio, USA شامل ہوئے Ekim 2017
153 فالونگ182 فالوورز

@KFILE @timihaworth Amazing news for the childhood cancer community.
It’s not well known, but Neil Armstrong lost a daughter to the same type of brain cancer as Gabriella - DIPG. If we can put a man on the moon, we can cure childhood cancer.

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I have some truly incredible news.
The bipartisan Gabriella Miller 2.0 Act was just introduced into the Senate by two Republicans and two Democrats.
Passage of this bill would mean hundreds of millions of more dollars for pediatric cancer research.
cassidy.senate.gov/newsroom/press…
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Huge thank you to Patrick Byrne from @RepMarciaFudge’s office for meeting with the DIPG Advocacy group to help us get H. Res. 114 Moonshot4Kids passed!
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DIPG Resource ری ٹویٹ کیا

Kids Rocking their shirts with the boys supporting their sister!! #Dipg @Mr4thAndLong @Bsweetbrittany @DipgResource

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DIPG Resource ری ٹویٹ کیا

3 yrs ago today, we said goodbye to our most precious little girl, Chika, on a sunny April afternoon, not unlike one in her homeland of Haiti. Although she survived an earthquake when she was three days old, she ultimately lost her battle with a terrible disease, #DIPG at 7 ...

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DIPG Resource ری ٹویٹ کیا

Now that the CDC is recommending people wear masks, here is a neat video to show how to make one that should work as well as the N95 style ones. youtu.be/W6d3twpHwis

YouTube
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DIPG Resource ری ٹویٹ کیا

We need you! YOU can help attach HOPE to pediatric brain cancer, the #1 cause of childhood mortality due to cancer. Please just do it it's so easy! One click! bit.ly/HOPE-HRes114

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Join the #Moonshot4Kids! See if your Representative is a co-sponsor for H. Res. 114, and if they're not, call them and ask them to sign on.
congress.gov/bill/116th-con…

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@DefeatDIPG I feel your pain. Jacob and I spent his last months snuggling on our sectional couch watching tv. He loved it so much, that's where he wanted to be when he died. I had the hardest time getting a new couch, and held out until it was literally falling apart.
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#MichaelMondays
Like other families who have lost a child, we do our best to walk the tightrope between the past, present, and even the future.
I wish that removing a swing set was just removing a swing set. I wish Michael was here.
facebook.com/44332376915659…
#DefeatDIPG
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DIPG Resource ری ٹویٹ کیا

Follow the new DIPG Advocacy Group account @Moonshot4Kids join them to raise awareness for #DIPG & #pediatricbraincancer with #HRes114
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DIPG Resource ری ٹویٹ کیا

@Adonna_Biel - help us get Joe to endorse our #Moonshot4Kids! DIPG is similar to what Beau had, except it’s in the brain stem and affects mostly kids.
We’ve got H. Res 114 in the House, but it’s not really going anywhere. We need Joe’s support!
dipgadvocacy.org

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DIPG Resource ری ٹویٹ کیا

@meghan_hays9 - help us get Joe to endorse our #Moonshot4Kids! DIPG is similar to what Beau had, except it’s in the brain stem and affects mostly kids.
We’ve got H. Res 114 in the House, but it’s not really going anywhere. We need Joe’s support!
dipgadvocacy.org

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DIPG Resource ری ٹویٹ کیا

@Emma_E_Riley - help us get Joe to endorse our #Moonshot4Kids! DIPG is similar to what Beau had, except it’s in the brain stem and affects mostly kids.
We’ve got H. Res 114 in the House, but it’s not really going anywhere. We need Joe’s support!
dipgadvocacy.org

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Hey @JTOBrown - help us get Joe to endorse our #Moonshot4Kids! DIPG is similar to what Beau had, except it’s in the brain stem and affects mostly kids.
We’ve got H. Res 114 in the House, but it’s not really going anywhere. We need Joe’s support!
dipgadvocacy.org

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DIPG Resource ری ٹویٹ کیا

We share Vivian Rose Weaver’s passing with deep sorrow in our hearts. Vivian surpassed some odds for DIPG, but it’s not nearly enough time for this beautiful little girl to shine in this world. But with her time — shine she did. 💗
From @vivianrosedipg: facebook.com/35129426872562…


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@HappyQuailPress I met Lauren at one of her fundraisers. I’ll never forget the hug she gave me when her dad told her I lost my son to DIPG. She was one of a kind ❤️

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“I always feel like Lauren stood up and she used the rest of her days to be a voice for all the younger kids like Kinley who couldn't really be expressive and articulate what they really thought about DIPG,“
#ChildhoodCancer
#DIPG
#Lauren 💛
#Kinley 💛
local12.com/news/local/mot…
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@RepSteveChabot - I stopped by your office last Thursday and dropped off information on H. Res. 114 #Moonshot4Kids. Over 100 reps have signed on to this bipartisan resolution to bring awareness to #DIPG. Why haven’t you signed on yet?
congress.gov/bill/116th-con…

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@TDucklo - can you pass this along to VP Biden? I know he’s busy with the campaign and wouldn’t be able to attend, but we would love for him to give us a “shout out”.
#Moonshot4Kids #CureDIPG
Jack's Angels@JacksAngels1
@VPBiden @NASAArmstrong please be aware of our #Moonshot4Kids, the DIPG Awareness Resolution for pediatric brain cancer, the #1 cause of cancer-related death in children. It's first introduction was the day after Vice President Biden's Cancer Moonshot Initiative was introduced.
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