Joining Jack

Here is the full interview which Alex and Jack were invited to be part of with Jesy Nelson and five other incredible mums ahead of Mothers' Day. youtube.com/watch?v=v6Hosp… 📷

Massive thanks to @dolphinsnrl Herbie Farnworth for a terrific JJ salute ahead of this afternoon's 3rd Test @England_RL and @Kangaroos Loads of luck to Shaun Wane, our ambassador @samtomkins1 and the England team at Headingley today #rugbyfamily #JJSalute #makeadifference 📷📷

We wanted to share with you a lovely letter that Alex and Andy received from @AndyBurnhamGM @MayorofGM congratulating Joining Jack for the NICE recognition of the DMD Care UK Cardiac Care guideline described as a landmark moment for the Duchenne community #makeadifference 📷📷

Thank you to Dan from the @Motability field assessment team for coming out and talking to Jack about all the adaptations that are available to help him drive. They now have a plan of what he will need!

Jack has managed to prove us wrong again! He’s passed his driving theory test first time. He’s now got a driving assessment booked with @Motability foundation to see what adaptations he will need to a vehicle!

Massive thanks to these two @SuperLeague legends hanging up their rugby boots - @DragonsOfficiel @samtomkins1 & @WarringtonRLFC @ratch06 have been incredible ambassadors for Team JJ and the Duchenne community #thebestsupporters #rugbyfamily❤️🏉 #TeamJJ #makeadifference 👉👈

Loads of luck and massive thanks to this hardy lot taking on the annual @DevelopUK Golf Day for Joining Jack at @ManchesterGolf ☔️ ☔️ umbrellas were optional 😛 #thebestsupporters #TeamJJ #makeadifference 👉👈

Massive congratulations to our awesome ambassador and lovely friend @LeighLeopardsRL @Joshuacharnley scoring his 250th try and STILL remembering to do a JJ salute for his mate! ❤️ #rugbyfamily #thebestsupporters #TeamJJ #MakeADifference 👉👈

A massive thank you to the terrific team at @MiRiDERuk supporting Joining Jack at their 5th birthday celebrations today A raffle to win a MiRiDER bike drawn by @WiganWarriorsRL boss Matt Peet raised an amazing £1110 for Team JJ ❤ #thebestsupporters #TeamJJ #makeadifference 👉👈

Can't wait for @DevelopUK Golf Day for Team JJ with a Ryder Cup theme and a host of legends from rugby league and union Taking place on September 11 at @GolfManchester teams of 3 will be allocated a rugby legend - email info@joiningjack.org #rydercuprugby #TeamJJ 👉👈

Congratulations Jack on winning the Creative Arts Leadership Award @wiganleighcol What a great end to the academic year!

We're thrilled to confirm this September's 13th @HWMoonToyota @Wigan10K is set to smash £1/2M fundraising milestone for Joining Jack! Huge thanks to everyone who has made this possible - can't wait to see you on the startline! ❤ #thebeststupporters #TeamJJ #makeadifference 👉👈

Huge congratulations to the legendary Sir Billy Boston being made a Knight Commander of the Order of the British Empire @WiganWarriorsRL greatest ever player becomes the first RL player to receive a knighthood at Buckingham Palace today #rugbyfamily #TeamJJ #makeadifference 📷📷

Tomorrow @DuchenneUK will be on BBC Breakfast at 8:20am talking about our #timeismuscle campaign. Please watch @wesstreeting @lisanandy You can help us end the horrific postcode lottery of access to this treatment!

@wesstreeting how is it fair that if you live in Scotland you get access to the Givinostat EAP but if your in England or NI it’s a barbaric postcode lottery #TimeisMuscle use your muscle to intervene and end this heartbreaking situation! dailyrecord.co.uk/news/scottish-…

Huge thank you to our lovely friend and supporter James Hooton donating a terrific £2,000 in memory of his wife Sylvia, and son Stephen, a fellow Duchenne warrior. Stephen lost his battle with DMD 35 years ago aged just 19 #thebestsupporters #TeamJJ #makeadifference 👉👈

Our piece on @GranadaReports Givinostat was made available through an Early Access Program in November. It’s been licensed. 6 months on patients are still waiting for access to a drug proven to slow the progression of the disease @DuchenneUK @AlderHey #TimeIsMuscle

@StPeters_PE Congratulations 🙌

NATIONAL CHAMPIONS History made! Our girls beat Castleford 18-14 to become St Peter’s FIRST ever girls team to win a National Title! We’re so proud of them — huge thanks to parents, coaches & local amateur clubs and our traveling 'Barmy Army' for all the support!🏆🏉🐝

This morning our co founder Alex, main man Jack alongside Jill & Jack Binns took part in some filming . They spoke about the Time is Muscle campaign. You can see the footage this evening at 6pm on @GranadaReports. @DuchenneUK #TimeisMuscle #MakeADifference #EndDuchenne

Huge thanks to the ladies and men's teams at @oldworsleygolf who chose Joining Jack and @DuchenneUK as their Charity of the Year and raised an incredible £9,110! Our co-founder Alex caught up with former captains Carole Speakman and Sir John Jones #thebestsupporters #TeamJJ 👉👈