It's the last day of @IMFmyeloma Myeloma Action Month! What have you lit up in red to show your support? The Southwest VT #myeloma support group created banners and lit up their Bennington Town Hall! #MoreThanMyeloma
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Robin Tuohy
7K posts
Robin Tuohy
@IMFsupport
VP Patient Support @IMFmyeloma, care partner to @IMFmikeMYELOMA, #myeloma support group leader in CT & Care Partners groups. Engage, Empower, Educate! Hope!
Prospect, CT Tham gia Aralık 2012
1K Đang theo dõi2.5K Người theo dõi
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For sure one of the coolest things I’ve ever gotten to be part of
A super impressive project, featuring interviews with everyone from the CEOs to the leading outside voices on AI risk. I’m in it too :)
Go watch on March 27!
The AI Doc@theaidocfilm
"The most urgent film of our time." THE AI DOC: OR HOW I BECAME AN APOCALOPTIMIST is only in theaters March 27. Watch the trailer now.
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#KansasCity: Connect with the myeloma community, build your support network, ask the experts your questions, find support in your community, and for FREE on March 28, 2026! Will we see you there? Save your seat before spots are gone: mmsm.link/3Ns8Dox
#mmsm
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Attn #myeloma community, if you have not yet read the FAQs of updated ASCO Living Guideline for Multiple Myeloma: Here it is: myeloma.org/blog/faqs-upda…
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Traditional PET/CT can miss up to 30% of slow-growing #myeloma lesions. IMMunoPET uses antibodies labeled with zirconium-89 to specifically target myeloma. revealing both previously undetectable and additional disease sites. #mmsm #ASH25 @DrOlaLandgren
youtu.be/HP5ObhJ4nkw?si…
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A great news for drug approval in myeloma. Will fast forward patient access to new drugs! A success of I2TEAMM efforts @VincentRK @NoopurRajeMD @IMFmyeloma
@SagarLonialMD #mmsm
Source: U.S. Food and Drug Administration share.google/A1uZjJoEuFNOSq…
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Save the Dates! I remember the first @IMFmyeloma Patient & Family Seminar that we attended in 2001 & the hope we felt based on the research, speakers, educational resources and most of all from the people! It's where shared journeys become shared strength! #myeloma #faMMily
International Myeloma Foundation@IMFmyeloma
Can’t wait to see you at one of our many in-person educational events! As always, our events are free, include lunch, and provide the latest myeloma education to help you live well with #myeloma. Find an event near you or join a webinar online at events.myeloma.org. #mmsm
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New options for people with hard-to-treat myeloma outside the bone (extramedullary) mean more hope and the potential for longer, better lives. Research is leading the way.
@jmikhaelmd
#ASH25 #IMFASH25 #ASKTHEIMF
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Today @ 6:00 pm est is @IMFmyeloma free webinar with patient perspectives from #ASH25: panel discussion with @PetalResilient @jimjhs17, Jill Zitzewitz
led by @jmikhaelmd
register: myeloma.org/videos/top-mye…
learn more “Myeloma Voices at ASH” #ASH25 : myeloma.org/resources-supp…
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If you or a loved one has #myeloma: you may wish to join this virtual meeting: Las Voces de Mieloma (Spanish)
20 de enero de 2026, de 10 a. m. a 11 a. m. (hora del Pacífico)
Regístrese en lasvoces.support.myeloma.org
Speaker: Dr. Enrique M. Ocio, MD, PhD
myeloma.org/support-group/…
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Fascinating abstract examining whether ALC, a routinely measured lab, can serve as a predictor of delayed neurotoxicity following CAR-T therapy in MM. Nice to see research looking to improve CAR-T safety for us patients! #IMFASH25 #ASH25 #myeloma #mmsm
meetings-api.hematology.org/api/abstract/v…
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Original Article: Teclistamab plus Daratumumab in Relapsed or Refractory Multiple Myeloma (MajesTEC-3 phase 3 trial) nej.md/4431DUD
#ASH25 | @ASH_hematology
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Stay tuned for the final set of algorithms for relapsed refractory myeloma, Third line (Second relapse) or later.
#ASH25
Vincent Rajkumar@VincentRK
OK here it is. Finally. My #ASH25 algorithm for Relapsed Myeloma: First Relapse. Discussed with @YiLinMDPhD @myelomaMD Give comments. I’m willing to adjust it based on your insights.
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Terry Glassman@TerryGlassman
I appreciate all the valuable information MM doctors share to help educate colleagues (and patients). I highly recommend this substack from @Rfonsi1 to my fellow MM patients #myeloma #mmsm IgG Replacement Therapy for Myeloma Patients open.substack.com/pub/rafaelfons…
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@SurbhiSidanaMD @RahulBanerjeeMD @DrKrinaPatel @YiLinMDPhD @SaurabhZanwar @PlasmaCellPete @JanakiramMurali @HiraSMian @mahrefat And it is REALLY appreciated in the patient sphere!
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#ASH25 US Multiple Myeloma Immunotherapy consortium
We presented 14 orals, 8 posters at ASH!
Now with 25+ sites
Could never have imagined this success when Dr Hansen, Patel and I co-founded this 4+ years ago.
Incredible collaborative effort!! A lot of work goes into this.
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#ASH25 MajesTEC-3 will transform #MMsm care even more than CAR-T for many 🌏 pts in near future.
But to shout (again) from rooftop: to do tec-dara safely, use primary IVIG/SCIG prophylaxis!
Excellent suppl fig in @NEJM illustrating why OS curves crossed and how they fixed it.
Rahul Banerjee, MD, FACP@RahulBanerjeeMD
#ASH25 saying it louder for everyone in the back! If you are starting a bsAb in #MMsm (especially BCMA), don’t wait for patient to die or IgG to drop. Start IgRT now! Newest case in point: excellent IFM 2021-01 trial. Only 14% Gr3+ infxns despite older pts & CD38 pair!
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Just out in @NEJM
Majestec-3 trial. Tec-Dara in relapsed myeloma. #ASH25 @End_myeloma @mvmateos
Link: nejm.org/doi/full/10.10…
More in thread
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From a patient perspective, this is beyond exciting. Bringing more hope for a cure. #ASH25 #IMFASH25 #mmsm @IMFmyeloma @jmikhaelmd
Rakesh Popat@DrRakeshPopat
In-vivo BCMA CAR-T first in human trial. 3 patients all achieving MRD negativity. This could be revolutionary - no need for lymphodepletion chemo, no complicated cell manufacturing process and better memory T cell phenotype. Looking forward to more data esp safety #ASH25
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@RahulBanerjeeMD @DrKrinaPatel @SurbhiSidanaMD @YiLinMDPhD @HiraSMian @mahrefat @FaizAnwerMD1 Thank you ALL!
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#ASH25 the ever-growing US #MMsm Immunotherapy Consortium! (now with a touch of 🇨🇦)
Our data have helped identify IEC colitis, abolish 8-week 🚗 restrictions, optimize RW BCMA sequencing - and more to come!
Thanks #dorishansen @DrKrinaPatel @SurbhiSidanaMD for leading us!
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