PCORnetwork

The Intellectual & Developmental Disabilities PCORnet® Data Query is the largest known national-scale descriptive analysis of IDD populations using EHR data. Read a recent article in @MedicalCareLWW to learn more 🔗 bit.ly/3OlunD6

On April 1, @PCORI will release funding opportunities for PCORnet® Studies and studies aimed at improving methods in comparative clinical effectiveness research (CER). Learn more and mark your calendar for upcoming applicant town halls in April 🔗 bit.ly/3Pm5x6l

The CHI-RON study used the PCORnet® infrastructure to increase diversity in congenital heart disease research, demonstrating how PCORnet resources can be used to improve the inclusion of underrepresented groups in health research bit.ly/4awF52h @MedicalCareLWW

Announcing a new PCORnet® Study: oREgon medicaid policy, SOciaL serVices, and hEalth (RESOLVE). Researchers at UCSF will investigate the impact of Oregon’s new Medicaid policies on screening, referrals and receipt of social services. Learn more 🔗 pcornet.org/news/studies-o…

A decade of impact: More than 50 PCORnet® Studies have already answered critical patient-centered questions with data from 47M+ patients across 71 health systems🌟 Learn more in @MedicalCareLWW 🔗 bit.ly/4s09egc

Join us March 25 at 12PM ET for a PCORnet® Best Practice Sharing Session highlighting the PCORnet® Study, “A Clinical Trial Readiness Study of Clinical Outcome Assessments in TTP.”

New resource just launched 🚀: PCORnet® Clinical Research Networks Site Profiles! These profiles can help research studies from proposal development to implementation, providing a snapshot of available populations and site capabilities. Learn more 🔗 bit.ly/3MNC7xf

Check out the tips, templates and materials the HERO OneFlorida+ hub compiled to raise awareness about the PCORnet® HERO Research Program and increase enrollment in the HERO Registry bit.ly/4sl5VAj

Did you know PCORnet® Clinical Research Network OneFlorida+ is more than just a Florida-based network? This dynamic collaboration connects researchers, clinicians and patients across GA, AL, CA, and MN, in partnership with 6 health systems. pcornet.org/network/oneflo…

This Rare Disease Day, we’re spotlighting a PCORnet® Study that is comparing treatment options for Lennox-Gastaut Syndrome, a rare and severe form of epilepsy. Read more: bit.ly/4jPkoRS #RareDiseaseDay @LurieChildrens

Calling all health researchers! Have you explored the PCORnet® Population Insights page on PCORnet.org? This is your gateway to real-world clinical data from 47M+ patients across the U.S. Start exploring today 🔗 bit.ly/4a6GM5X #ClinicalResearch

A PCORnet® rapid-cycle research project laid the foundation for a study published in @JACCJournals that found the KCCQ-12 collected in outpatient settings can be an effective tool for predicting hospitalizations & mortality for heart failure patients🔗bit.ly/3ZYKhpr

📢 Have you checked out Module 4 of the PCORnet® Playbook? It includes tools for developing a dissemination plan, such as the PCORI D&I framework, an engagement guide and study results dissemination approaches and examples. Learn more 🔗 bit.ly/4jVOCD0

Starting a Patient Advisory Council (PAC) or need engagement resources or inspiration? Check out GPC’s PAC Handbook! pcornet.org/news/resources…

The Greater Plains Collaborative PCORnet® Clinical Research Network empowers patients and families by ensuring research is collaborative and patient-centered. Learn more about how PCORnet helps answer meaningful health questions  bit.ly/40mwOsd

🍫 Need a sweet comparison this Valentine’s Day? Learn how PCORnet® Clinical Research Networks secure patient health records through a step-by-step process, just like making chocolate bit.ly/478FnZT

Join us on Wednesday, Feb. 18 at 1PM ET for a PCORnet® Best Practice Sharing Session: Patient-Reported Outcomes (PROs) Tools and Resources in Clinical Care, Research, and Real-World Evidence. Learn more 🔗 bit.ly/Feb-2026-BPSS

📣 In this week's PCT Grand Rounds, Michael D. Kappelman of @UNC will present "The Making of the PCORnet® COMPARE-Pediatric IBD Study." Join us! #pctgr 🔗 duke.is/pctnews20260211

This Friday, February 13 at 1 - 2 pm (ET) join an upcoming NIH Pragmatic Trials Collaboratory Grand Rounds ft Dr. Kappelman and the PCORnet® Study COMPARE-Pediatric IBD Learn more Bit.ly/COMPAREgrandro… @Collaboratory1

It's Congenital Heart Defect (CHD) Awareness Week & we’re putting a spotlight on a PCORnet® Study, utilizing PCORnet to support transition from pediatric to adult care in patients with CHD. Learn more🔗 bit.ly/45oSOFl