Zack Pemberton-Whiteley (he/him)

7.1K posts

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Zack Pemberton-Whiteley (he/him)

Zack Pemberton-Whiteley (he/him)

@ZPWHITELEY

#PatientEngagement, #PatientAdvocacy, evidence, questions, perspective, gifs, collaboration & @PGtips. Views my own, repost ≠ endorsement

United Kingdom Tham gia Haziran 2016
1.1K Đang theo dõi1.8K Người theo dõi
Zack Pemberton-Whiteley (he/him) đã retweet
Martin Lewis
Martin Lewis@MartinSLewis·
If you donate to charity, why saying yes to Gift Aid means they get more & you may get more too. Feel free to share, charities miss out on hundreds of millions of unclaimed Gift Aid each year.
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Rory Stewart
Rory Stewart@RoryStewartUK·
Thank you so much to everyone who has bought #PoliticsOnTheEdge this week - really honoured - and please tell me what you think 🙏
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Remembering Ruby
Remembering Ruby@KindlyLoudly·
Why does cancer evoke so much talk of conflict? Ruby was a lover not a fighter. A dyed in the wool pacifist who avoided all forms of conflict. She was the child in the kindergarten playground trying to broker a peace-deal between friends who had fallen out. 🧵1/n
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Ryan Riley
Ryan Riley@RyanRileyy·
Let's talk through the @LifeKitchen x @holland_barrett collection. The WORLDS FIRST taste-enhancing food range for people living with taste loss whether that be from cancer, covid, old age or anything else! Can we share to get it to the people who may need it?
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Zack Pemberton-Whiteley (he/him)
What a lovely surprise I had just now... instead of a ‘1:1 catch up call’, a chance to connect and say au revoir (but not goodbye) to #PatientAdvocacy colleagues. Thank you to everyone who joined or sent a Kudo message, and to @SamanthaNier for organising ❤️
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CML AdvocatesNetwork
CML AdvocatesNetwork@cmlnet·
Šarūnas Narbutas closing the last session for #CMLHZ23 talking about QOL survey - patient generated evidence!
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Zack Pemberton-Whiteley (he/him)
A great example of policy work from @scicommchar - talking about how to balance priorities, internally and externally. And how many different ‘policy makers’ there can be to talk to. Work out who, how and why? #CMLHZ23 @cmlnet
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Zack Pemberton-Whiteley (he/him)
Hochhaus reminds us that only 40% are eligible for TFR, and 50% relapse. So only 20% are ‘cured’ (he says we can argue the semantics of if it’s cured). And calls for work to improve. And @SharfGiora reminds us that’s only in the western world, and not the global reality #CMLHZ23
CML AdvocatesNetwork@cmlnet

🌟 To finish off day 1 at #CMLHZ23, Andreas Hochhaus, Menon Hari and Gerald Clements will be debating on What can we realistically hope for as advocates? and How much development is happening in CML in the future? Let's hear!

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