FAMILIAR Study

Hi lovely folk, I'm not closing this account, but I am branching out... if you're also on @bluesky, you can find me @ ZoeAbbott.bsky.social, see you there! 😊 @FamiliarStudy updates will continue to be posted here too.

#Lleswyl2025 🎉 The only #inclusive virtual festival by @DaringtoDream5 , shining a light on adults with illness in #Wales. Many miss out on events & festivals due to illness! Lleswyl comes to them! Get your FREE tickets now! 👉 Register on Eventbrite! eventbrite.co.uk/e/lleswyl-2025…

. Thank you to everyone who has been part of this valuable research to date, participants and stakeholders, the brilliant patient co-researcher @LibbyHumphris, my amazing supervisors, my family & loved ones. I couldn't be so close to finishing this without any of ye 🙏🏼 3/3

. ...and even writing them up for my examiners. I am able to start writing again now, and will be working to get the work and findings written up and shared with you all as soon as I can. I hope 2025 sees you get the right support, whatever that means for you. 2/

Researching a condition you also live with is a challenge. This past 10 months my #rheumatoid was not managed by my meds at all. I am so grateful to finally be on a drug which is managing my condition again, but this has had a HUGE affect on bringing you the study findings 1/

Biggest thanks on this #InternationalDayOfTheVolunteer goes to my long standing Patient Co-Researcher, @LibbyHumphris, who has stuck with this project for over 6 years (yes, SIX!). Expertise, encouragement, and comradery. Thank you, Libby 🫶🏻 🦜

Today is #InternationalDayOfTheVolunteer: I would like to thank every person who has given their time to the @FamiliarStudy making it a success, as a participant, supervisor, or expert stakeholder. Thank you for making this study work, and helping it exceed initial expectations!

@NASSexercise @UKParliament @hammersmithandy @MarkFergusonMP @mandfhealth @GenQ5Lesley @NASSchiefexec @Physiozensam @loobicia @rajsengupta Well done to all of ye!

Fantastic session in @UKParliament to discuss #axSpA #axialSpA #axialspondyloarthritis & #NHS 10 Yr plan. Thanks to @hammersmithandy & @MarkFergusonMP for their support, @mandfhealth for facilitating & speakers @GenQ5Lesley Hasan Tahir & @NASSchiefexec

@NASSexercise @UKParliament @hammersmithandy @MarkFergusonMP @mandfhealth @GenQ5Lesley @NASSchiefexec @Physiozensam @loobicia @rajsengupta @synovialjoints @ProfYelizPrior @RheumatologyUK Well done to all of ye!

@UKParliament @hammersmithandy @MarkFergusonMP @mandfhealth @GenQ5Lesley @NASSchiefexec @Physiozensam @loobicia @rajsengupta @synovialjoints @ProfYelizPrior @RheumatologyUK

On #InternationalMensDay2024 and want to acknowledge how #axialSpA can impact men with a reminder of our discussion with Matt Daly who combines personal & medical experience: buff.ly/3ARHoxF #AxialSpA #AxialSpondyloarthritis #AnkylosingSpondylitis #AxSpA

Do you want to be a Changemaker? Our awards are open to healthcare professionals working to reduce the delay to diagnosis for #axialSpA. For more information visit buff.ly/405SglK

ICU admissions drop to zero in pregnant woman who have had 3 doses of the covid vaccine. Most women who become seriously unwell in pregnancy from covid have not been vaccinated. An effective safe vaccination in pregnancy.

I'm not closing this account, but I am branching out... if you're also on @bluesky, you can find me @ ZoeAbbott.bsky.social, see you there! 😊

Highlighting inequities across MSK pathways - Supporting People With Musculoskeletal Conditions From Underserved Communities in the United Kingdom to Engage With Physical Activity: A Realist Synthesis and Q-Methodology Study doi.org/10.1123/jpah.2…

Shape research into communication around women’s health. We would like women, girls and NHS practitioners to take part in a short survey to help identify the gaps in research around communication in all aspects of women’s health. Deadline on 25 Oct: healthandcareresearchwales.org/about/news/sha…

🌍💙 For World Arthritis Day 2024, BSR has launched new resources for individuals and healthcare professionals focused on Patient Initiated Follow Up!✨ Watch now to learn more👉 bit.ly/4eYevhK #WAD2024 #worldarthritisday

🌐 Today is #WorldArthritisDay. 🏴󠁧󠁢󠁷󠁬󠁳󠁿 Around 970,000 people in Wales live with arthritis and musculoskeletal conditions. 👉 If you live with arthritis, @CymruVArthritis can help: versusarthritis.org/get-help

On #WorldArthritisDay, themed “informed choices, better outcomes” we’re launching a new Patient initiated follow-up toolkit! Designed for clinicians and patients, it empowers patients to schedule their follow-ups, reducing hospital visits. Download now bit.ly/3zPxTi0

🌍 Today is World Arthritis Day! ✨ Understanding rheumatic and musculoskeletal diseases (RMDs) in children is crucial. Let´s ensure they feel empowered and included. 📚 Knowledge is Power! 🔗 Learn more: pulse.ly/8pr3gjjelu #WAD2024 #WorldArthritisDay #EULAR

Today is #WorldArthritisDay, a day to raise awareness of arthritis and its impact. One of the biggest causes of persistent pain in Wales. The charity @CymruVArthritis is there to provide information, help and support for everyone living with arthritis: versusarthritis.org/get-help