Lisa Emrich أُعيد تغريده
Lisa Emrich
6K posts

Lisa Emrich
@LisaEmrich
Living with MS and RA. Patient Advocate/Activist. Writer. Musician. BikeMS Cyclist. RA and MS Community Leader and Moderator.
Falls Church, VA انضم Ocak 2009
2K يتبع4.4K المتابعون

I still have symptoms and struggle with overwhelming fatigue. But I am doing really well and plan to continue sitting in the infusion chair 4 times each year for many years to time. #fatiguesucks #butyoudontlooksick #chroniclife #winning
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I received my 50th infusion of #Rituxan, the monoclonal antibody therapy that depletes b-cells. 13 years on RTX so far. It is working quite well to keep my RA and MS in check. #takethatms #multiplesclerosis #rheumatoidarthritis #infusionsrock

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I still have symptoms and struggle with overwhelming fatigue. But I am doing really well and plan to continue sitting in the infusion chair 4 times each year for many years to come. #fatiguesucks #butyoudontlooksick #chroniclife #winning
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@TheSeatedView @lkay54 @CathyChes @DanJenDig @TheGirlWithMS @sboston_pr @AaronBosterMD @MustStopMS @pettigrew66 @chroniceileen That sounds really good!
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@LisaEmrich @lkay54 @CathyChes @DanJenDig @TheGirlWithMS @sboston_pr @AaronBosterMD @MustStopMS @pettigrew66 @chroniceileen I make a black bean chili/stew that I eat with potatoes. Could be a great topping for a sweet potato. theseatedview.com/2020/03/easy-b…
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I'm a fan of black beans and a fan of sweet potatoes. What do you think about putting them together? We may try this once temps drop again.
@lkay54 @CathyChes @DanJenDig @TheGirlWithMS @sboston_pr @AaronBosterMD @MustStopMS @pettigrew66 @TheSeatedView @chroniceileen
Humana@Humana
Chef Nino’s Sweet Potato and Black Bean Chili is packed full of antioxidants, plant-based protein and diabetes superfoods. Bonus: Learn how to safely cut a sweet potato as Chef Nino heats up the kitchen at our NOLA #NeighborhoodCenter 💚 → huma.na/3IMeLBu
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@CathyChes @lkay54 @DanJenDig @TheGirlWithMS @sboston_pr @AaronBosterMD @MustStopMS @pettigrew66 @TheSeatedView @chroniceileen I would be very sad to have to give up using garlic in cooking. Onions, peppers, garlic, and ginger are the base for curry Rob and I make regularly. But very thankful that they are still an option. ❤️
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Lisa Emrich أُعيد تغريده

Chef Nino says, “Get to cooking!” Bursting with flavor, Southwest Organic Chicken Fajita Sauté is on the menu at our NOLA #NeighborhoodCenter as Chef Nino encourages getting healthier one ingredient at a time. 🥗 → huma.na/3yW9Af1

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Lisa Emrich أُعيد تغريده

B cell repopulation dynamics and drug pharmacokinetics impact SARS-CoV-2 vaccine efficacy in anti-CD20-treated multiple sclerosis patients - PubMed pubmed.ncbi.nlm.nih.gov/35808856/
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Lisa Emrich أُعيد تغريده

MS diagnosis Journey podcast now has 13 episodes to hear. Please check it out at buzzsprout.com/1822095
Hear from these people - @stevedomino @LisaEmrich @pettigrew66 Anita Williams @dizzythedonkey Sue Casey, Shari Short, @TheMSWire 1/2
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Lisa Emrich أُعيد تغريده

The 3-m backward walk test: reliability and validity in ambulant people with multiple sclerosis - PubMed pubmed.ncbi.nlm.nih.gov/35638202/
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Lisa Emrich أُعيد تغريده

#WeHaveMS community - have you caught the MS DIAGNOSIS JOURNEY podcast ? If not, start here with the introduction and listen to the stories from @stevedomino @LisaEmrich Anita Williams, @dizzythedonkey and @pettigrew66 In total there will be 30 podcasts so be sure to subscribe
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#wehavems episode #2 of MSDiagnosis Journey with @LisaEmrich is available now wherever you get your podcast. Listen and share her journey podcasts.apple.com/us/podcast/ms-…
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.@RepDonBeyer @MarkWarner @TimKaine can we count on you to support the MS Research Program at the Department of Defense in FY 2023? ntlms.org/3CjIUVD #MSActivist #MSResearch
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.@RepDonBeyer @MarkWarner @TimKaine will you work with us to help make insurance and prescription drug prices more affordable and accessible? The median annual price for an MS disease modifying therapy: $94,000! ntlms.org/3hDLI6t #MSActivist
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@RachelHorne19 I want to have all the information! MRI reports need to be thorough and I want my neuro to share the significance of findings. Don't hold back. BTW, I always see my images and the MRI report well before the next time I talk to my neuro at a follow-up.
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@GavinGiovannoni After 12 yrs on RTX, I have no idea how long B-cell repopulation would take. Covid vaccine (non)response is <0.4 U/ml. My drs (neuro/rheum) still rec'd not to skip RTX in Aug (not knowing boosters would become available). Feeling stuck in a vicious cycle.
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@AaronBosterMD @Brandon_Beaber @drbarrysinger @mssociety @MS_Focus What is the current recommendation for timing of 3rd/booster #COVID19 vaccine following recent Rituxan/Ocrevus infusions? 4-6 months as before? Or 2+ weeks as rumored the Cleveland Clinic recommends?
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@Brandon_Beaber @ActiveMSer This news came one week too late. I would have absolutely canceled my RTX infusion this past Monday (and the 23rd) to get the booster. I’m in the JH study: <0.4 u/mL antibodies to the spike protein. The emotional feeling of being left behind lingers this weekend.
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