Fatigo_ME

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Fatigo_ME

Fatigo_ME

@Fatigo_MECFS

#MECFS #Lyme recovery & creating awareness. Research, News, Views & Functional medicine approaches to healing #biohacking. Former Architectural designer on hold

United Kingdom Beigetreten Ekim 2014
2.2K Folgt2K Follower
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Fatigo_ME
Fatigo_ME@Fatigo_MECFS·
Existing M.E. Findings that relate to each of the 8 genetic signals found in the #DecodeME study: #pwme #mecfs #myalgicE
Grok@grok

Limited RCTs exist for ME/CFS biomarkers; most from case-control studies. Related abnormalities: 1. RABGAP1L (infection response): Persistent EBV/HHV-6 markers (Brenu 2013). 2. BTN2A2 (T-cell immunity): T-cell exhaustion (Mandarano 2024). 3. FBXL4 (mito DNA): Impaired ATP production (Tomas 2017). 4. SUDS3 (microglial inflammation): Elevated neuroinflammation (Nakatomi 2014 PET). 5. OLFM4 (neutrophil responses): Increased neutrophil apoptosis (Kennedy 2004). 6. CCPG1 (ER stress/autophagy): ER stress markers (Nguyen 2019). 7. CA10 (synaptic/pain): Central sensitization (Nijs 2012 review). 8. ARFGEF2/CSE1L (inflammation): Raised TNF-α/IL-6 (Maes 2012).

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Steven Shorrock
Steven Shorrock@StevenShorrock·
I really wish 24/7 headaches, fatigue, PEM, chronic IBS, that poisoned/hungover/flu feeling, and occasional gait instability, I wish new atrial fibrillation was in my head. As a psychologist, I’d know the difference, but so would most people. Pretty disappointed, @amolrajan. Who next, a flat earther?
Adam@ABrokenBattery

🧵 Clip from the @AmolRajan podcast Suzanne O’Sullivan says her latest book and It’s All in Your Head (2015) were widely praised. She says she is “utterly unaware of toxic debate” and criticism largely comes from “10 people on social media”.

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Fatigo_ME
Fatigo_ME@Fatigo_MECFS·
Great initiative in Germany @emptystands_me on behalf of #millionsmissing with #MyalgicE @btsportfootball @BBCSport @DAZNFootball @TheAtlantic @kevinhatchard @andybrassell @honigstein @SkyFootball #football #Bundesliga #BBCFootball @adamsummerton @JamesHorncastle @talkSPORT
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Timo Strotmann@TweetingTimo

In the Bundesliga match between @tsghoffenheim and @1FSVMainz05, players and referees gathered on the pitch before kickoff with a clear message: CURE ME/CFS! Another powerful and successful campaign by EmptyStands.me

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TSG Hoffenheim
TSG Hoffenheim@tsghoffenheim·
𝗖𝘂𝗿𝗲 𝗠𝗘/𝗖𝗙𝗦 💙🤍
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josi
josi@joskee_josi·
🥹🥹 #tsgm05
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Fatigo_ME
Fatigo_ME@Fatigo_MECFS·
@tiredguineapig Thanks Laina, Nasal Swab? Did you buy online? Or do you get a kit from NHS? Can someone take it in for you if you're housebound? What can you do about it now?
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e-laina@fedupguineapig·
@Fatigo_MECFS A swab. I have it. Gave a sample to GP and it grew in a petri dish
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Fatigo_ME
Fatigo_ME@Fatigo_MECFS·
It feels crazy to say but if you have #chronicillness, life was actually less difficult under a Conservative Gov than Labour, in regards to the Benefits and Medical system. Both much harder to navigate, have success. Labour blame Tories but why did Lab sacrifice most vulnerable?
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Fatigo_ME@Fatigo_MECFS·
@CharlotteCGill Any mention of Benefits by "Sickfluencers" is usually genuine information and guidance for existing #chronicillness patients who struggle greatly with the process as it's so difficult. It's altruistic influence. I doubt a well person would get very far with the process
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Fatigo_ME
Fatigo_ME@Fatigo_MECFS·
@CharlotteCGill Indeed. I'm not even sure these so called Sickfluencers even exist either, whenever I've seen examples given it's literally patients who are advocating for themselves and raising awareness of their condition (POTS, MCAS etc). I think it's an invented term by some think-tank.
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Charlotte Gill
Charlotte Gill@CharlotteCGill·
This really really annoys me. I have mild ME (thank you for ppl being nice earlier when I posted about this). People with severe ME can’t work. It’s close to being in a coma. Yet someone could fake some symptoms because it’s extreme tiredness (eg. Lying in bed). Anyway, just so frustrating that very ill people suffer and fakers sweep in.
Daily Mail@DailyMail

Explosion of 'sickfluencers' online fuelling culture of worklessness in Britain by coaching people how to 'lay it on thick' to claim disability benefits trib.al/l9xq8mI

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stuart murdoch
stuart murdoch@nee_massey·
In the article about ME/CFS I posted about, a doctor in Wales is quoted as saying "Doctors aren't taught about this condition.” We all know this of course. I’d like to ask the medical community “What the fuck are you waiting for?”
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Fatigo_ME
Fatigo_ME@Fatigo_MECFS·
@fillthewhole This is a bad take, his illness started pre-covid although I have no doubt that Cov could have made it worse. But what's with all this LC V ME stuff? Can you not see that this article is ultimately good for all of us in raising awareness of post viral conditions? Work together
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Fatigo_ME@Fatigo_MECFS·
@JamieAA_Again Not sure if I have misinterpreted your tone, but surprised that you work in Virology and this is your take. ME is not feeling sleepy all the time, it is a Neuroimmune onslaught of constant severe discomfort and suffering. It's actually hard to sleep at all due to inflammation
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Meleri Williams
Meleri Williams@meleriwilliams7·
I’ve spent the past weeks talking to #ME patients and carers in Wales. There is a spectrum of severity, but there are thousands in dark rooms across the country, unable to walk or talk. Tomos is one of them. Watch/listen/read on BBC Wales news today ⬇️ bbc.co.uk/news/articles/…
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Fatigo_ME
Fatigo_ME@Fatigo_MECFS·
This segment is brilliant, we need this in the UK to help dispell the stigma around #myalgicE. Take note @bbchealth @BBCNews @ITV @Channel4News @Channel4 @5_News @skynews #BBCOne #bbcbreakfast @bbc5live @bbc @GMB @thismorning @xandvt @DoctorChrisVT #myalgicencephalomyelitis
Adam@ABrokenBattery

Covid has led to an increase in #MECFS. In Germany, numbers have gone from ~250,000 to over 600,000 since the start of the pandemic. It’s been around for decades, yet many patients still aren’t believed and are given harmful advice by doctors, as one patient reports.

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BBC News (UK)
BBC News (UK)@BBCNews·
Our son loved the outdoors – invisible illness means he now can't walk or talk bbc.in/4sxUCVW
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Charlotte Gill
Charlotte Gill@CharlotteCGill·
ME is utterly horrible. I know because I have a moderate version of it (nb. people call it different names - post-viral fatigue, ME). I used to be very fit; I could do tons of press ups, boxed, ran & did gymnastics. Now I have to be careful. The NHS is terrible at diagnosing it. Something I feel quite cross about because you get worse if it's not identified quickly. Also, if you are a very busy person, BE careful. Take relaxation seriously.
BBC News (UK)@BBCNews

Our son loved the outdoors – invisible illness means he now can't walk or talk bbc.in/4sxUCVW

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Fatigo_ME
Fatigo_ME@Fatigo_MECFS·
If there's even a slight chance that the #Kent #meningitis outbreak was caused by migrants, then surely it's a national emergency and the Navy should #stoptheboats + all migrants should be quarantined, health checked etc. Legal migrants also. #bbcnews #pmqs #bbcqt #canterbury
Leo Kearse - see me on tour! Links in bio@LeoKearse

Really can't imagine why meningitis cases are suddenly soaring in Britain. It's not like we allow unfettered mass immigration from a place called "THE MENINGITIS BELT" or anything.

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@amolrajan @emptystands_me @btsportfootball @BBCSport @DAZNFootball @TheAtlantic @kevinhatchard @andybrassell