ME/CFSCoach

#MECFS #chronicfatiguesyndrome #LongCovid 3-Step Nervous System Reset youtu.be/i9_jJ-uVRwk?si… via @YouTube If: 🪫Your energy is low 🌧️Today just feels like too much 😒You are feeling frustrated This 3‑step reset is for you.

@thetrainline Yes, regarding the original and today's ticket

@simonpimenta When you purchased the ticket, did you receive an email confirmation? Thanks, ~Cat

@thetrainline can't log in, can't reset password. Train ws cancelled from Manchester - didn't get any communication about this via the app.

@thetrainline Your website tells me I should follow certain steps to get a refund, but it takes you in circles.

@simonpimenta Hi there, can you add your info here > tinyurl.com/4sznat4h  You'll find the transaction ID at the bottom of the email confirmation if you can't access the account at the moment. Thanks, ~Cat

@thetrainline I can't add any info about the issue. Train was cancelled. I was told I could exchange the ticket, instead I had to pay an extra £25

@CaroleBruce17 @ABrokenBattery @pst_lgt Thanks for your reply Carole. Sorry, only just saw the notification. That's shocking to hear @pst_lgt

@simonpimenta @ABrokenBattery @pst_lgt She’s moved down to Exeter now Simon. I know that several ME expert Drs including Dr Weir have given their opinions, sadly at QMH they didn’t listen. No reports this week as to how she’s getting on in the Royal Devon and Exeter. I know she has a private room.

Update on Savannah’s case in The Times. She has severe ME/CFS, has lost 30kg and eaten nothing since January 18. Sonya Chowdhury, CEO of Action for ME, describes the situation as “appalling” and says she is very worried Savannah could die. archive.ph/J3Xv3

@CaroleBruce17 @ABrokenBattery I wonder if anyone has spelled out what Savannah needs, so there is some benchmark of whether those needs are being met? "Victora-May had had “lots of people going in and out of the room, turning the light on”. That doesn't sound ideal @pst_lgt Lewisham and Greenwich NHS Trust

@ABrokenBattery @simonpimenta can you think of anything that would help this situation? I remember you had input into Savannah’s last admission, she was known as Gigi then.

@CaroleBruce17 @ABrokenBattery So sorry to have not seen this until now. I will give it some thought.

@cfs_jo Love it! Thanks Joanne!

@simonpimenta Succinct!

@cfs_jo And to you Jo!

Wishing you all a peaceful, stress free Christmas and hope you can enjoy it in some small way.

If: 🪫Your energy is low 🌧️Today just feels like too much 😫You feel frustrated This is for you... 3-Step Nervous System Reset youtu.be/i9_jJ-uVRwk?si… via@YouTube #MECFS #chronicfatiguesyndrome #LongCovid

@cfs_jo yes...!

@simonpimenta It’s their lack of curiosity which grinds my gears.

From Tom Kindlon’s fb page. Perfect.

@EventbriteGB useless support. I have an email with the link to access my tickets. When I click the link my tickets can't be found I have an order number but I can't search using that order number. Your virtual support is useless and has not helped me resolve this issue.

Why You’re So Fatigued: ME/CFS, Long COVID & Fibro You're not imagining your symptoms and there are reasons for hope. Join live Thursday 30th October 2025, or watch the replay: 8.30am PST 11.30am EST 4.30pm BST youtube.com/live/IGYt_u9Y_…

Food & Other Sensitivities: How To Create Safety - #CFS, #LongCovid youtube.com/live/OpAsTgwac… via @YouTube

@HealingCFSME That's great to hear! So pleased for you. #MECFS #CFS #millionsmissing

#ChronicIllnessRecoveryDay today 13th July. i was bedbound for 14 years. And tho life is still demanding, I celebrate today that it is definitely NO WHERE NR how tough it was. Love to all. #MECFS #CFS #millionsmissing Photos from the good 2 yrs I had.

@Fionas_Story Well done! Very inspiring Fiona!

My recovery is my everything. I want so many more people to experience this. Thousands of us have healed or improved. There are so many reasons to have hope. #ChronicIllnessRecoveryDay

@HealingCFSME It is. Thanks for sharing this.

Celebrating #ChronicIllnessRecoveryDay #RecoveryDay with you, @simonpimenta Great idea to set aside a day for it.

“You can’t regulate your nervous system through the mind.” Ever heard that one? This reel flips that idea on its head. See this Instagram post by @raelan.agle instagram.com/reel/DKPpEhYsP…