TheChronicAdventurer

After what Crohn's Disease has put me through in the last two years I could have easily decided to not turn up and have a 'did not start' next to my name today. Instead I have a time of 6hrs 39mins, as I got it done and finished the #LondonMarathon! 💪🏅virginmoneygiving.com/tomhough

Crohn’s & Colitis Awareness Week is nearly here This year we’re highlighting what it feels like to live with these conditions the symptoms, the invisible struggles and the unseen strength. Join the conversation 1–7 December crohnsandcolitis.org.uk/awarenessweek #HowCrohnsFeels #HowColitisFeels

Our new strategic ambition and new look were shaped by our community. Together we’ve created a bold, united vision for faster diagnosis, better care and a future free from Crohn’s and Colitis. This is change driven by you, for you. crohnsandcolitis.org.uk/our-work/about… #Crohns #Colitis

1 in 120 people in the UK live with Crohn’s or Colitis - lifelong, unpredictable and often misunderstood. We’re here to change that through research, support and bold campaigns. Crohn’s? Colitis? We’ll face it together. crohnsandcolitis.org.uk/our-work/about… #Crohns #Colitis

Do you have #Crohns or #Colitis? Are you living with a #stoma or might be getting one? Do you wish to chat to others who may be going through similar experiences? You're not alone. Join us on 13th October at 6.30pm. Register Today: ow.ly/Z7gZ50X8yUb #IBD

It's home, again.

I’d like to announce I’m back on this app but since I don’t pay for premium, it will be seen by 4 people. Anyway to those 4 people, I captured something amazing this month 🐻

Places are available at our upcoming ‘Living with a Stoma’ virtual social event on Monday 2nd June at 6.30pm. crohnsandcolitis.org.uk/virtual-social…

World IBD Day is one week away! 💜🌍 On 19th May, we stand together for the 500,000 people in the UK living with Crohn’s or Colitis. This year, we’re talking about courage. Share what courage means to you! For resources and ideas visit: crohnsandcolitis.org.uk/get-involved/w… #WorldIBDDay

Still time to have your say. Please take some time this weekend to complete this survey and help decide on the priorities for research in perianal disease management and support @StMarksHospital @LindAlliance @CrohnsColitisUK @saia_ibd

Eating disorders can affect anyone at any time - and it might not be who you expect. This Eating Disorders Awareness Week, we want you to know you are not alone. Greater public awareness is needed. #EatingDisordersAwarenessWeek #EDAW2025 #AnyoneAnytime

Excited to announce results of our #ADDapt trial After 6 years and the help of 154 people with #CrohnsDisease we prove that restricting #emulsifiers improves disease Award winning presentation from @AaronBancil at #ECCO25 Excited for next steps to help people with Crohns

Amy Dowden has been honoured with an MBE for her work as an advocate and ambassador for Crohn’s & Colitis UK. Read more: dailymail.co.uk/tvshowbiz/arti… #Crohns #Colitis #CrohnsAndColitisuUk #InflammatoryBowelDisease #ibd #MBE

If any politicians care to read this then, please listen, I am a former Man Utd player and have a teammate Lou Macari, doing great work with the homeless, He will not ask but I am, give him something for his services, He is a top man who cares.

@nataliesparacio Thanks a lot for sharing this summary thread Natalie.

⚫️Possible benefits of CurQD as added therapy ⚫️ When looking at combo therapies utilize other specialists (ie. Rheumatologist) to help prescribe to relief insurance burden ⚫️Patients don’t fail meds, meds fail patients (as long as taking them as prescribed!)

Main messages that have resonated to me at #AIBD2024 as a Crohn’s patient; ⚫️ focus is often too much on risk of therapies and not risk of IBD ⚫️there’s no place for step up therapy ⚫️sometimes surgery is the safest treatment ⚫️Mediterranean-style + plant focused diet best

It’s Crohn’s & Colitis Awareness Week. It takes guts to talk about Crohn’s and Colitis, but we can do it and break the stigma. Sending love to everybody affected by these conditions. #CrohnsAndColitisAwarenessWeek

People are struggling without support for far too long. Will you join Femi in being one of the faces behind the facts? Help us highlight where improvement is needed by sharing your experiences. Visit: crohnsandcolitis.org.uk/our-work/campa… #crohnsandcolitisawarenessweek #FaceTheFacts

It’s time to #FaceTheFacts and accept that change is urgently needed to fuel improvement for the half a million people living with Crohn’s or Colitis in the UK. Visit: crohnsandcolitis.org.uk/our-work/campa… #crohnsandcolitisawarenessweek

It's #CrohnsandColitisAwarenessWeek it’s time to #FaceTheFacts We hear too many stories of late intervention, delayed diagnosis & emergency A&E visits. Help us drive change to ensure better quality of care and life for people with IBD. Visit: ow.ly/2c5a50Ui59N

It’s #WorldToiletDay. We hear every day from people living with Crohn’s and Colitis about the challenges they face accessing toilets and how it impacts their day to day lives. We are continuing to advocate for better toilet provision across the UK: ow.ly/kzpu50U9Oyu