PBC Awareness, NFP

951 posts

PBC Awareness, NFP

@FriendsofPBC

Our mission is to improve the lives of the 130,000+ 🇺🇸 living with Primary Biliary Cholangitis (#PBC) through comprehensive support, education & advocacy

United States Joined Aralık 2024

174 Following59 Followers

PBC Awareness, NFP@FriendsofPBC·19h

If you would like to become a volunteer and assist us in our mission to raise awareness of PBC and support the PBC community, please fill out the form in the link below. #PrimaryBiliaryCholangitis #PBCCommunity form.jotform.com/260984085147061

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PBC Awareness, NFP@FriendsofPBC·1d

Approximately 130,000 Americans are living with Primary Biliary Cholangitis, a rare autoimmune liver disease. Your generous donation is essential to advancing our mission. app.teamfi.works/fundraiser/125… #PrimaryBiliaryCholangitis #patienteducation #liverhealth

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PBC Awareness, NFP@FriendsofPBC·1d

Join an Ipsen sponsored PBC webinar on April 28th! Join Ipsen for an informative PBC webinar: cloud.us-patient.ipsen.com/Webinar4RegHom… #PBChealth #liverhealth

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PBC Awareness, NFP retweeted

Rare & Ready Coalition@rare_ready·3d

#RareandReady members - we need your help! Fill out this action alert from @EveryLifeOrg: everylifefoundation.quorum.us/campaign/15954…

EveryLife Foundation@EveryLifeOrg

‼️Attention California residents‼️ The California General Assembly has introduced A.B. 1798, a critical bill that protects patients from genetic discrimination and ensures continued participation in lifesaving research. Members of the Assembly Committee on Insurance have the opportunity right now to support this important legislation. Your story matters! Share why genetic nondiscrimination matters to you and how it impacts your life. Urge committee members to support this bill by filling out our action alert ➡️ everylifefoundation.quorum.us/campaign/15954… Read more about the bill ➡️ calmatters.digitaldemocracy.org/.../ca... We look forward to following this bill's progress as it advances through the California legislature.

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PBC Awareness, NFP@FriendsofPBC·2d

A new study shows that men with PBC may face more severe liver problems and worse outcomes than women. Knowing this helps doctors monitor male patients more closely and tailor treatment plans. #LiverHealth #MensHealth nature.com/articles/s4159…

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PBC Awareness, NFP@FriendsofPBC·3d

Our next PBC Warrior interview features Tom Zimmerman from New York. He is a recently diagnosed PBC patient and is actively involved in the PBC Awareness community. #PBCawareness #PBCWarriors youtu.be/10Mc_9FM9MI

YouTube

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PBC Awareness, NFP@FriendsofPBC·6d

This symptom is often overshadowed by fatigue and pruritus, but it can cause stress in many PBC patients. Roughly 25%-50% of newly diagnosed patients report experiencing this symptom. If you are able to decipher the anagram, comment your guess below! #pbchealth

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PBC Awareness, NFP@FriendsofPBC·2 Nis

New hope for understanding PBC? Scientists found a protein called IGFBP4 that acts like a "signal" in the body of people with Primary Biliary Cholangitis (PBC). That could lead to better, earlier diagnosis. #PBCwarrior #LiverResearch #Autoimmunedisease medpagetoday.com/resource-cente…

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PBC Awareness, NFP@FriendsofPBC·1 Nis

Medicaid provides essential health coverage for over 90 million low-income individuals in the United States. #MedicaidMatters

ILDHFS@ILDHFS

April is #MedicaidAwarenessMonth 💙 HFS connects millions of Illinoisans to care, from checkups to mental health support. We’re here to help you stay covered and supported. #WeImproveLives #HealthcareEquity #HealthcareMatters

Orland Park, IL 🇺🇸 English

PBC Awareness, NFP@FriendsofPBC·1 Nis

Today, on April 1st, we observe the National Day of Hope. For the thousands living with PBC, hope looks different than it does for most. “We must accept finite disappointment, but never lose infinite hope.” Dr. Martin Luther King Jr. #PBCAwareness #NationalDayOfHope #Hope4PBC

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PBC Awareness, NFP@FriendsofPBC·30 Mar

B.I.G. News! We're headed to @blackingastro’s #ABGHSUMMIT26 in Chicago on May 1! Can’t wait to see you there! Register today at blackingastro.org! @dU @9s7KxMQD4MZcwH2XP @HnBDfega-KfJ2YYEqU=/" target="_blank" rel="nofollow noopener">whova.com/embedded/event… via @blackingastro @LmarieAsad

Chicago, IL 🇺🇸 English

PBC Awareness, NFP@FriendsofPBC·30 Mar

RT @ASTRO_org: On #NationalDoctorsDay, we celebrate all physicians for the care they provide to their patients every day. A special thank…

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PBC Awareness, NFP retweeted

Emzor Pharmaceutical@emzornigeria·30 Mar

Being a Doctor is more than a profession, it's a calling. Doctors don't just treat illness, they restore hope, and work to save lives every single day. Happy National Doctors' Day to those who show up and gives their all for humanity! #NationalDoctorsDay #Emzor #Dedication

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Hepatology Research@HepatolRes·30 Mar

#Letter ▶️Letter to the Editor: Pre-Treatment Liver Stiffness Is a Stronger Predictor of Hepatocellular Carcinoma Development Than Post-Treatment Liver Stiffness After Hepatitis C Virus Eradication 👉doi.org/10.1111/hepr.7… #LiverX @WileyHealth

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PSC Support@PSCSupportUK·30 Mar

Coffee? ✔️ Healthy breakfast? ✔️ Workspace ready? ✔️ Living with PSC can mean being hyper-aware of how we start our day. We aren't just getting ready; we're managing symptoms, protecting our energy, and giving ourselves the best chance to thrive. What's your morning routine?

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PBC Awareness, NFP retweeted

Student National Medical Association, Inc (SNMA)@SNMA·28 Mar

Beyond the data, the conversation continues. Join us at AMEC 2026 for “Beyond the Data: Advancing Health Equity in a Changing Political Landscape” as physician leaders discuss equity, advocacy, and the future of care. Friday, April 3 at 3:30 PM ET. #AMEC2026 #SNMA #HealthEquity

Student National Medical Association, Inc (SNMA) tweet media

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PBC Awareness, NFP retweeted

988 Suicide & Crisis Lifeline@988Lifeline·28 Mar

Sometimes life can feel overwhelming. If you ever need someone to talk to, the 988 Lifeline is here for you 24/7. Call, text, or chat 988. bit.ly/3WU38Re

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788

PBC Awareness, NFP@FriendsofPBC·30 Mar

Today is the final deadline for the PBC Survey! If you want a chance to win an Amazon gift card and lend your voice, here is your opportunity! Click on the link below to submit your thoughts! forms.gle/frSTJKNLVBaxbN… #PBCawareness #PBCPatientToolKit #PBCSurvey

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PBC Awareness, NFP@FriendsofPBC·29 Mar

PBC and PSC pscsupport.org.uk/psc-and-other-… via @PSCSupportUK #PrimaryBiliaryCholangitis #Liverdisease #AutoimmuneAwarenessMonth

Orland Park, IL 🇺🇸 English

PBC Awareness, NFP@FriendsofPBC·29 Mar

Primary Biliary Cholangitis in Males: Pathogenesis, Clinical Presentation, and Prognosis - PubMed share.google/2nrkSZq7jbW9xM… via @NIH #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth

Orland Park, IL 🇺🇸 English

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@EveryLifeOrg @blackingastro @LmarieAsad @ASTRO_org @WileyHealth @PSCSupportUK @NIH @elonmusk