ForwardRolling

🎭✨ join us as we create The Laughter Lounge - where everyone believes the power of humor to face our daily challenges. It’s a place where punchlines dangle from IV poles, and 'seriousness' is left hanging at the door. Join us in this comedy lounge

It’s #Dazzle4Rare2024 sharing info on the rare community around us & the great work they do. Check out @Ataxia_and_Me Alan & the team who do fantastic work raising awareness of Ataxia: ataxia-and-me.org

@costplusdrugs Thank you - that is an incredible price for Northera. Speaking as a patient advocate and a patient from who has spent over 30 plus hours of advocacy to get Northera approved through my insurance company, after all other medications and treatments failed.

At Cost Plus Drugs we carry a selection of medications to treat complex, chronic conditions like psoriasis, arrhythmia, hypotension, and more! We hear from our patients that they are saving BIG by getting these prescriptions filled at costplusdrugs.com. Dimethyl Fumarate (Generic for Tecfidera) 120mg – 14 Delayed Release Capsules for $12.20 240mg – 60 Delayed Release Capsules for $37.50 costplusdrugs.com/medications/di… Dofetilide (Generic for Tikosyn) 125mcg – 90 Capsules for $14.70 250mcg – 90 Capsules for $20.10 500mcg – 90 Capsules for $14.70 costplusdrugs.com/medications/do… Droxidopa (Generic for Northera) 100mg – 90 Capsules for $48.90 200mg – 90 Capsules for $77.70 300mg – 90 Capsules for $118.20 costplusdrugs.com/medications/dr… Looking for more affordable medicines at the lowest possible price? Search for your medications today: costplusdrugs.com/medications/ 👏 No membership fees. 👏 No insurance required.

@adafruit This is a great STEAM and fidget toy!

Make a simple color matching game using NeoPixels with Adafruit NeoTrellis and Feather M0 Express. Guide: learn.adafruit.com/neotrellis-box… youtu.be/ytr_AzqjuaE #3dprinting #adafruit #circuitpython

where every joke shared stitches us closer, and every giggle makes us stronger. 🌈🎤 #LaughterLounge #InclusivityInComedy #GigglePrepRoom

🎭✨ join us as we create The Laughter Lounge - where everyone believes the power of humor to face our daily challenges. It’s a place where punchlines dangle from IV poles, and 'seriousness' is left hanging at the door. Join us in this comedy lounge

@sampson_dog Love this article. Peeta is almost always with me,however, some activities, such adaptive skiing, is not quite dog friendly. :-) During such activities as that or while snorkeling on vacation with my husband- like you, I had someone with my service dog.

PSA 📢Disabled people choose their method of disability management! Mom went to the restroom without me while at a restaurant. I stayed safely with Marshal Jim. Lady in the restroom, "“Didn't you have a service dog?" Mom, "Yes." (I'm not there) "Then you must not need one." Let's unpack this! Many service dog handlers may decide not to take their service dog with them everywhere. There are a variety of reasons why someone might choose to do this. It does not mean they do not need their service dog. Disabled people have good days and bad days, good moments or bad moments, and may need to rely on their dogs sometimes more than others. Disabled people typically know their bodies well and can recognize and anticipate how much support they need. Mom knows when and what type of support she needs. She may be out for a short time and decide not to bring me for a quick errand or outing if she's feeling well enough - or into the restroom when I can hang out with Marshal Jim. However, that same activity on a bad health day may require significant support from her service dog (me!). Different places and environments may or may not be challenging for disabled people in general to navigate. This could be due to accessibility and navigation issues in the space itself, overwhelming crowds, bright lights, long distances, and more. A quick stop at the convenience store may be feasible to manage on her own. At the same time, a longer grocery store outing can create far too much hardship and could be made significantly easier to navigate with me at her side. Service dog or not, some places are just not safe for a dog. Handlers must always look out for their partner’s best interest and health; service dogs have bad days, too - we get sick, injured, or are just tired some days, and sometimes, that means leaving a service dog at home. For many disabled people, a service dog can significantly increase day-to-day independence. Where they may have previously needed an aid, a helper, or even a friend to help them stay safe, a service dog can allow someone to navigate their daily life without relying on another person. There may be times when Mom is out with a person (or people) she trusts to help her (generally Marshal Jim). This may be when she'll choose to leave me at home, especially the closer I get to retirement. For many disabled people, leaving their service dog can be a tough thing to do. But, there are many legitimate reasons for leaving one’s service dog at home from time to time, and often, these factors intertwine. When deciding whether or not to bring their service dog, a handler is likely thinking of many of the above factors at once and calculating the risks versus the benefits. Having their service dog stay home on any given day is a personal and likely well-thought-out decision. This does not reflect any less on the handler’s need for the dog or the legitimacy of the dog’s work. This decision is made by the disabled person; it should be no one else’s concern.

@sampson_dog Absolutely would still love to connect!

Just keep doing the next right thing. Our path hasn’t been linear. People have been put on our path that have shaped us, we’ve learned from, who’ve guided us, and those put there to help us make positive changes for our disabled community who’s lives count on a service dog.

@sampson_dog @CaesarsPalace So very true! I can be hard advocating when experiencing the challenges. I have found taking a moment to meditate w/ my service dog to be helpful & for those situations where I am personally struggling w/ a health challenge, following up communication platforms.

@ForwardRolling @CaesarsPalace Thank you! We found the same - calm communication can lead to understanding, awareness, and ultimately long-term solutions.

The presence of a problem is just the absence of a solution. Mom just spoke directly to the VP of Hotel Operations at @CaesarsPalace. They are actively reviewing/updating policies and procedures for disability inclusion, are committed to retraining staff and management on disability etiquette and accommodations, as well as overall customer service, and are evaluating the possibility of long-term structural changes for inclusive design for all. Well done! Many here have said this shouldn't have happened in the first place. The VP wholeheartedly and sincerely agreed; he listened, noted what Mom had to say and the guidance she could give, and was understanding and apologetic. We are grateful to be put in places where a problem presents itself to us, as we have the experience to address it and can help correct it for future community members. We also want to point out that this is EXACTLY how corporations should respond. Mom could not be more pleased with the way this was handled. Thank you to all the community members. You also made this possible with your support. Caesars Palace will be an updated, inclusive destination for all! They have invited us to come back early next year to meet with them personally. It is an honor to represent the disabled community and to assist in making positive change. One paw print at a time!

From compassionate walkers who understand the unique needs of a service dog, to the GPS tracking feature that lets me follow their strolls in real-time, Wag! ensures my furry friend is well-cared for when I can't be there myself. 🚶‍♀️🌳 #ServiceDogs #Inclusion

🏥🐾 Many of you have been curious about how I manage my service dog's needs while hospitalized. A crucial part of our routine is the amazing @WagWalking app! It's been a lifesaver (literally) for us. 📱 #ServiceDogCare #HospitalLife #WagWalking #DogLovers

@sampson_dog @j98bug @CaesarsPalace I’d love to help you as well @sampson_dog I’ve been able to advocate accessibility issues for my service dog and self in a variety of situations including schools and hospitalizations.

@j98bug @CaesarsPalace We have offered to help!

@CaesarsPalace @sampson_dog Thank you for being willing to listen, learn, adapt and educate. More often than the situations we encounter can be solved with communication! As one with a service dog, I greatly appreciate your adaptability.

@sampson_dog We're glad our team was able to assist. Thank you for taking the time to reach out. We hope you have an amazing weekend.

@CharlieBabe2017 I’m so incredibly sorry for your loss

Pals, I'm sorry to say that I crossed the rainbow bridge this morning🌈 😢 It's been wonderful fun to be part of the houndie gang for the last 7 years & I wish to thank every single one of you for your friendship🐾

@chronicallybeee My chart has been flagged for all sorts of vaccines and the such be a I’m “that” immunocompromised person

thinking about the time i asked my pharmacist “okay so im on these 3 immunosuppressants, how immunocompromised am i?” and he’s like “um, very?”

@aliciaandrz Thants beautiful and extremely thoughtful! Congratulations on your journey and sharing it with others.

dropping in to say I’m 36 days sober & learned my sister organized a mocktail menu for Christmas at our parents—& that her & my brother & sister-in-law have decided to do sober Christmas with me. & you know what? I’m going to just let them love me that much.

@rarelikeher I see my diseases/disorders/challenges as part of me, part of my journey. My greatest source of strength (as they led me to my family and who I am today) yet also my greatest weakness, as it has left me battling for life &breathe more times than I can count

@kbfairness @LuxMeaMundiAM @TravelingHermit @RachelCurtis82 @THFC77777 @Lizzypop15 My first high school job involved converting medical files to microfiche, where I was trained by adults with developmental delays. From them, I learned about compassion, love, and impressive memory skills.- incredibly memorable experiences

@VoiceYourVibe @NancyDebra2 @AndreainAsia This is incredible and congratulations!!

I'm so humbled & honored by this opportunity & to join creator & host of this 4th impactful summit, Andrea Zsapka for the 4th consecutive yr & to share the stage w/each of the incredible humans & experts of their craft. Learn more: lnkd.in/gS8nWhTi

Today is International Men's Day, a day to celebrate men in the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) community, and to raise awareness of men's well-being! Our next men's virtual Let's Chat group will take place on December 14 on Zoom at 1:00 pm Eastern Time (US and Canada) led by our awesome volunteer @domenikpasquale - you can join with or without your webcam on, chat, or listen. The link to register is here: ehlers-danlos.com/event/lets-cha… We'd love to share more stories from men about diagnosis, health concerns, and what has helped you to live better with a type of EDS or HSD. Click the link to find the form to share your story: ehlers-danlos.com/share-your-sto… We'd also love to hear what you would like to see more of on our social channels and website that you would find helpful. Let us know in the comments below. #InternationalMensDay #MensHealth #ZebraStrong #EhlersDanlosSyndrome #HypermobilitySpectrumDisorder

@alexandra_DBmed The more we speak out about it the more likely we are to begin to get representation in this arena - personally I was five units away from my law degree when I encountered serious challenges, and I am still finding a way to fight it

@alexandra_DBmed Don’t give up – I really had similar problems in law school and I’m still fighting the system, but don’t give up. There are many of us that have to use wheelchairs or that have challenges with EDS in post, secondary education, and find it difficult to find representation -