SECURE-Alopecia

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SECURE-Alopecia

SECURE-Alopecia

@SecureAa

A global, secure, online, de-identified Personal Health Identifier-free registry to record all COVID-19+ cases in alopecia patients on immunomodulating therapy

参加日 Nisan 2020
12 フォロー中82 フォロワー
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Dmitri Wall
Dmitri Wall@DmitriWall·
Thank you to everyone who has contributed & all the groups who’ve supported awareness of the registries including @ad_secure @SecureAa @debraireland @HealthySkin4All @ILDSDerm @SecureAa @AlopeciaUK @NAAF_org @eadv @eczemasupport @EczemaOutreach @nationaleczema @IADPO @BHNSociety
NISR Solutions@SkinRegs

We would like to take this opportunity to celebrate that over 1,000 participants are now on NISR Solutions CLG registries! Thank you to all who consent to be part, we would not exist without you! 🥳👏🥂

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SECURE-Alopecia がリツイート
Dmitri Wall
Dmitri Wall@DmitriWall·
Learning from Disease Registries During a Pandemic: Moving Towards an International Federation of Patient Registries. So thrilled to have had the opportunity to write about #patientregistries during #COVID19 with such a wonderful group of co-authors. cidjournal.com/article/S0738-…
Dmitri Wall tweet mediaDmitri Wall tweet media
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SECURE-Alopecia
SECURE-Alopecia@SecureAa·
There's still time to register cases before we run the analysis - please share and encourage colleagues to do so! #COVID19 #COVIDhair #Alopecia #hairloss #shedding
SECURE-Alopecia@SecureAa

We're about to analyse our data! So, as we unfortunately see new waves of #COVID19 emerge, registering patients secure-derm.com/secure-alopeci… who've had #alopecia/#hairloss before/after COVID diagnosis remains essential! @AlopeciaUK @NAAF_org @BHNSociety @ISHRS @ILDSDerm

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SECURE-Alopecia
SECURE-Alopecia@SecureAa·
175 patients registered-thank you! Please continue to spread the word & help understand #Covid19 & #alopecia #hairloss secure-derm.com @AlopeciaUK @ISHRS @HealthySkin4All @ILDSDerm @AADskin @NAAF_org @DmitriWall @SinclairDerm @irvinederm @Lidia_Rudnicka @TostiAntonella
SECURE-Alopecia@SecureAa

2 weeks ago SECURE-Alopecia (sister 2 @ad_secure) recorded >100 #COVID19 patients with/developed #alopecia/#hairloss but now 151! Thank you & please continue to spread the word! securealopecia.covidderm.org/login/?next=/i… @ISHRS @AlopeciaUK @NAAF_org @ahrsorg @SinclairDerm @NekiMeah @irvinederm

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SECURE-Alopecia
SECURE-Alopecia@SecureAa·
2 weeks ago SECURE-Alopecia (sister 2 @ad_secure) recorded >100 #COVID19 patients with/developed #alopecia/#hairloss but now 151! Thank you & please continue to spread the word! securealopecia.covidderm.org/login/?next=/i… @ISHRS @AlopeciaUK @NAAF_org @ahrsorg @SinclairDerm @NekiMeah @irvinederm
SECURE-Alopecia@SecureAa

SECURE-Alopecia (sister to @ad_secure) has recorded 111 #COVID19 cases in patients with/developed #alopecia Please have your doctor anonymously record if you had #hairloss & COVID securealopecia.covidderm.org/login/?next=/i… @ISHRS @AlopeciaUK @NAAF_org @ahrsorg @SinclairDerm @NekiMeah @irvinederm

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SECURE-AD
SECURE-AD@ad_secure·
Prof Phyllis Spuls, dermatologist/study lead SECURE-AD, draws your attention to her upcoming talk about the “Use of Biologics and Immunosuppressive Drugs during the COVID-19 Pandemic” at the @eadv congress. If you have eczema and had #COVID19 please visit secure-derm.com.
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SECURE-Alopecia がリツイート
Dmitri Wall
Dmitri Wall@DmitriWall·
Great work by our @PsoProtect friends. Real-world #patientregistry data is always vital, but particularly during #COVID19. Please support psoprotect.org @ad_secure @SecureAa secure-derm.com aad.org/member/practic… hscovid.ucsf.edu/global-hidrade…
International Psoriasis Council@IpcPs

Biologics use is associated with lower risk of COVID-19 hospitalizations, according to a new study published in @jacionline by the team behind the @PsoProtect patient registry for psoriasis and COVID-19. Read the article here: ow.ly/1HzC50C0a5J

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SECURE-Alopecia がリツイート
Dmitri Wall
Dmitri Wall@DmitriWall·
Very sorry to hear how #COVID19 has affected you. Hope you are improving A global group of dermatologists @SecureAa are studying this. Those with COVID who had or develop hair loss can ask their doc to anonymously register their case secure-derm.com/secure-alopeci… Grateful 4 awareness
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ディスカバー

@ad_secure @debraireland @ILDSDerm @AlopeciaUK @NAAF_org @eczemasupport @EczemaOutreach @nationaleczema