Annabelles Challenge Vascular EDS Charity

Look who turned 17 today! Happy Birthday Annabelle. May you continue to shine brightly and provide inspiration to those in our community. We hope you have a lovely birthday. 🎉 💜

Thanks to all for the recent donations. £200 in £979 to go to hit last years running mileage target 🙌🏼💙❤️ justgiving.com/page/carl-smit…

Update from our CEO on the latest results for 2025 helping to fund our VEDS Support Programme, Counselling Service & Research. Happy Christmas and New Year from all of us at Annabelle’s Challenge. 💜

Dear vEDS by Connor Peebles premiers at 7pm GMT. youtu.be/7Nf0MUoKrDM

Team AC is the backbone of Annabelle's Challenge, a team of over 40 amazing people working to support the charity and the #vascularEDS community we serve. Meet Team AC: annabelleschallenge.org/our-team

Today is #GeneticCounsellorAwarenessDay and the opportunity for us to say a huge THANK YOU to our amazing Genetic Counsellors and student GC's. 🧬 Increasingly, GC's (approx 300 in the UK) are working in a range of other roles including research. Thank you from Team AC! 💜

Good morning! It’s Genetic Counsellor Awareness day! #GCChat #GeneticCounsellor @theAGNC @BritSocGenMed @eshgsociety @ahcsuk @NHSGGC @PET_BioNews @GeneticAll_UK @AJsChallenge @catherinemross

Meet our Steering Committee! The team is made up of volunteers who are directly affected by #vascularEDS including patients, parents and carers supported by genetic counsellors from the NHS EDS National Diagnostic Service. Learn more: annabelleschallenge.org/steering-commi…

An exciting opportunity has arisen for a new Trustee to join us to lead this vital & passionate national charity in achieving its goals to provide effective support to patients of #vascularEDS and their families. For info & to apply: annabelleschallenge.org/trustees

Happy #TrusteesWeek to our board of trustees Andy, David, Meg, Clare & Christina! Thank you for your support as we continue to serve the #vascularEDS community. 💜

Have you discovered our latest edition—RARE and social, sponsored by @PTCBio? This edition focuses on the good and bad of social media in rare disease advocacy. Inside this edition: - Under the Same Sun grassroots social media campaign, changing narratives for people with albinism across Africa. - The new campaign from @AJsChallenge, spreading nationwide awareness of vascular EDS. - How Yamina Hsaini has been harnessing the power of social media while navigating the rare condition, gastroparesis. Read now for free at bit.ly/RAREandSOCIAL

Being newly diagnosed with #vascularEDS can feel overwhelming. Firstly, you are not alone - we are here to support you & your family.  Join us today! annabelleschallenge.org/newly-diagnosed

My niece Laura is fundraising for Annabelles Challenge. Check out their @JustGiving page and please donate if you can. Thank you! #JustGiving justgiving.com/page/laura-all… So proud of my niece and grateful to @AJsChallenge for all they do 🦓 💜 #veds

Happy work anniversary to Scarlett! This VEDS Action Month we celebrate 2 years since she joined Team AC supporting patients and families affected by #vascularEDS #vEDS 💜 🎉

Earlier this year, the RARE Revolution team had the pleasure of designing a ‘More Tomorrows’ campaign with Annabelle’s Challenge, @AJsChallenge to drive for much-needed donations and further awareness of vascular Ehlers-Danlos syndrome. Through pushing public awareness and harnessing the awesome power of social media, together, we created a positive impact for people like Freddie, the star of this campaign. Read here: bit.ly/RAREandSocial-… #RareAndSocial #RareDisease #SocialMedia #RARESocialMedia #SocialMediaAdvocacy #RareDisease #MoreTomorrows #vEDS #VascularEDS

Another fabulous vEDS retreat weekend & a visit to @CadburyWorld with 78 members in our group who travelled from across Scotland, England, Wales, Ireland & even USA! Making memories & life-long friendships with some chocolate treats along the way. We Deserve More Tomorrows!

@AJsChallenge Thanks for sharing your lovely comments with us, we'll forward these to the manager 💜. We look forward to welcoming you back again soon! Jade

I'm fundraising for Annabelles Challenge. Check out my @JustGiving page and please donate if you can. Thank you! #JustGiving justgiving.com/page/sandra-wi…

A big shout out to Rachel & her team at @premierinn Stourbridge for looking after our group of 78 during the vEDS retreat weekend. Great customer service & a pleasure to work with in the run up to the weekend & during our stay. #makingmemories #WeDeserveMoreTomorrows

Congratulation to Danika for achieving Level 2 in counselling skills to help with her role as patient coordinator. Danika is now working towards Level 3 counselling! Well done Danika from all of us at AC. 💜