Rick Thompson

We’ve compiled a series of case studies to demystify the #DrugRepurposing process. Our latest case features Nitroxoline, a common antibiotic repurposed for rare amoebic encephalitis—led by #iDR25 speaker Natasha Spottiswoode. ➡️ More here: loom.ly/g4avr9o

And just like that, #OpenAcademy2024 is complete! 🎉 Our thanks go to everyone who has made this experience possible and our amazing group of participants for throwing themselves into the training so wholeheartedly! Learn more about #EURORDISOpenAcademy:  openacademy.eurordis.org

@REMEDi4ALL @REPO4EU @MRCCTU @Anticancerfund @RareBeacon Such a powerful talk from Lindsay. The SLC6A1 community should be proud of her powerful advocacy!

@REPO4EU @MRCCTU @Anticancerfund Live from #iDR24 #RareDiseases path hosted @RareBeacon: Lindsey Randall sharing her journey advocating for her son: she knew Arthur was having seizures from 6 months. Official diagnosis’s of SLC6A1 came only when he was 18 months old, even though Lindsey is an experienced nurse.

We're in full flow at #iDR24. The #Cancer path is exploring the duality of clinical trials & real-world registries, the methodologies path is looking at #AI & the #RareDisease path is assessing the evolving landscape.

It was an absolute privilege to be part of the team organising and delivering #iDR24. Thanks to all the attendees, and my amazing colleagues in @RareBeacon and @REMEDi4ALL! See you next year!

Not only are we co-organisers and pathway hosts for #iDR24 - we’re also exhibiting and displaying a poster, co-authored with our friends at @eurordis! Make sure to find us during the breaks and pick up one of our coveted Beacon swag bags! 🔥

Wow - what a great day innovating, connecting & reshaping the #DrugRepurposing ecosystem! We'd love to hear your takeaways from the day. 📣And it's not over yet...the #iDR24 poster presentations are about to take place!

⚡The air is electric here on Day 1 at #iDR24! Together with over 50 speakers from across a broad range of disciplines we will deep-dive into the evolving landscape of #DrugRepurposing. ➡️Find out more here: remedi4all.org/international-…

The winner of this years @RDStudentVoice prize has been published by @ojrarediseases . Check out the fantastic essay on “Embracing the Unknown” by Leisha Devisetti this #RareDiseaseDay2024 ojrd.biomedcentral.com/articles/10.11…

I’ve been writing about the VITAL role of #patients in #RareDisease research this #RareDiseaseDay2024 - how do you see patients driving research change?

Panel discussion time!

Prof Alfredo Budillon introduces the VESPA trial - one of the demonstrator projects within ⁦@REMEDi4ALL⁩ looking to repurpose drugs for pancreatic cancer.

@ttocseve @REMEDi4ALL Don has been counting grains of sand on the weekends! A great analogy to illustrate the value of repurposing though.

Don Lo from ⁦@REMEDi4ALL⁩ makes the case for repurposing - why find every possible new drug out there before we have made the BEST use of the drugs we already have?

Dr Luca Cardone says repurposing is a mandatory strategy for #PancreaticCancer research the the ⁦@REMEDi4ALL⁩ Multistakeholder meeting.

Ali Stunt, founder of ⁦@OfficialPCA⁩ Pancreatic Cancer Action in the UK, talks about her personal pancreatic cancer story and the need for improved outcomes for patients.

Patrycja shares her personal story as a pancreatic cancer survivor - investigative tests found a tumour in her abdomen at the age of 25.

Gauthier Bouche from the ⁦@Anticancerfund⁩ takes us into the world of repurposing at the ⁦@REMEDi4ALL⁩ multistakeholder meeting.

We’re off! Prof Alfredo Carrara gives the opening talk for the first ⁦⁦@REMEDi4ALL⁩ multistakeholder meeting. We’re talking pancreatic cancer and repurposing.

Really happy to be at the ⁦@AMRC⁩ festival of partnerships today. Learning a lot, and highlighting our work for #rarediseases at ⁦@RareBeacon⁩

@REMEDi4ALL, patients are equal partners in research. 🔬 Rick Thompson (@RickSThomp), CEO @RareBeacon and project partner shares his views on why #patientengagement matters so much. 👉 Find out more about @REMEDi4ALL here: remedi4all.org