The Student Voice Prize

Guess what? 👀 The Student Voice Prize is back for 2024! Updates on #SVP24 will now be posted on our Instagram account, @rarebeacon and @M4RareDiseases 🔔 🔗 rarebeacon.org/student-voice-… See the key dates below: 👇

Unfortunately, The Student Voice Prize won’t run in its usual form this year. A huge thank you to everyone who’s been part of its journey so far. Watch this space as @rarebeacon & Medics for Rare Disease develop plans to celebrate 10 years of the competition!

We are so happy to say that the winner of @RDStudentVoice's English as a Second Language category Diya Porwal has written a blog all about her experience applying and the advice she would give to future applicants! 😃 m4rd.org/2024/04/16/my-…

We're really excited to share that Diya Porwal's essay is now available to read! 🙌 📝Battling uncertainty: The story of a SCAD survivor Read here: 👇 ow.ly/7vyi50RcZLh

We'd like to say a huge congratulations to our English as a second language winner, Diya Porwal! 🎉 📝 Winning essay title: Battling uncertainty: The story of a SCAD survivor Watch this space for Diya's essay coming soon on @rarebeacon 's blog! 🤩 #SVP23

Join us to celebrate the end of another highly successful Student Voice Prize. 📆 13th March 📍 Zoom 🌟 Hear stories from rare disease patients and advocates 🌟 Connect with students and the rare disease community 🌟 Hear from 2023 competition winners ow.ly/ykwX50QJeyr

Leisha Devisetti, a winner of @RDStudentVoice Contest 2023, discusses challenges of rare diseases: limited research & uncertainty. Advocates for better detection, communication, & patient well-being. #RareDiseaseDay2024 @RareBeacon @M4RareDiseases

Leisha Devisetti, a winner of the @RDstudentvoice Contest 2023, shares an article: 'Embracing the unknown: investigating medical communication around uncertainty and its implications on patient and family well-being' ojrd.biomedcentral.com/articles/10.11… #RareDiseaseDay2024

Iman Muzafar, runner-up of the @RDStudentVoice Contest 2023, shares the poignant journey of a patient advocate with a rare condition, shedding light on the challenges of misdiagnosis and poor communication from clinicians. @M4RareDiseases @RareBeacon communities.springernature.com/posts/endless-…

Check out the blog post by Chandan Sekhon, a finalist in @RDStudentVoice Contest 2023, discussing the crucial role of inclusive clinical research and the importance of overcoming language and format barriers, especially for rare diseases. communities.springernature.com/posts/rare-dis…

Discover insights from Oreoluwatoni Oduwole, runner-up of the @RDStudentVoice Contest 2023, on the evolving role of doctors in rare disease patient care and the importance of reliable online resources and ongoing education for doctors and patients alike. communities.springernature.com/posts/navigati…

Our runner-up, Chandan Iman Muzafar's essay is now available to read! 🤩 📰‘Endless Uncertainty: Living with a rare condition’ ow.ly/uAQb50QIK0F

Our runner-up, Chandan Singh Sekhon's essay is now available to read! 📰Rare Diseases: How Language and Format Affect Inclusive Study Recruitment and Recommendations to Mitigate this Read here: 👇 ow.ly/hFih50QIJPa

Now for the runners-up... 🌟 We're excited to share that our runner-up, Oreoluwatoni Oduwole's essay is now available to read! 🤩 📰 ‘Navigating a Rare Diagnosis: Sources of Information and the Medical Professional’s Role’ ow.ly/uPsG50QIJI3

Happy #RareDiseaseDay! 🦓 We're thrilled to announce that our winner, Leisha Devisetti's essay is available to read. 📰 ‘Embracing the unknown: investigating medical communication around uncertainty and the implications on patient and family well-being’ ow.ly/Fb5Q50QIJzY

Meet the speakers for Beyond The Student Voice Prize! Oreoluwatonio Oduwole is a medical student at University College, London and was one of the Student Voice Prize 2023 runners-up. Join us in a celebration of another successful competition! 🤩🤩 ow.ly/uczS50QBOph

Meet the speakers for Beyond The Student Voice Prize! 🗣️ Iman Muzafar is a medical student at Kings College, London, and was also a runner up on the 2023 Student Voice Prize! Find out more about the event here: 👇 ow.ly/BJgi50QBNPS

Meet the speakers for Beyond the Student Voice Prize! Madeline Pearson is a medical student, her interests in paediatrics and genetics led her to learn more about rare diseases, in her role as a medical student ambassador for @M4RareDiseases. ow.ly/n5Kc50QBNl1

Meet the speakers for Beyond The Student Voice Prize! Dr Kirsten Johnson is one of the founders of @FraXI_FragileX and is President of FraXI. She also sits on the board of @eurordis, and on the Council of Rare Diseases International. Register here: 👇 ow.ly/wAxF50QBKGB

The Student Voice Prize 2023 was our biggest competition to date! Thank you to everyone who took part and contributed to an incredible year. Congratulations to our winners! 🏆 Thank you to our sponsor, @emotive__agency who make the Student Voice Prize possible. #SVP23