Jump

1.3K posts

Jump

Jump

@jumpandexplore

United States 가입일 Şubat 2017
186 팔로잉137 팔로워
Jump
Jump@jumpandexplore·
@LoriMills4CA42 @HollensbeAmanda You guys got this!!! Will pray!🙏 My MRI after 3 doses of anktiva, NK cells and avastin is stable after my recurrence!
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Lori Mills
Lori Mills@LoriMills4CA42·
Update- I have a prayer request! 6 months after my husbands Terminal diagnosis of Glioblastoma we have his next MRI scheduled tomorrow at 10:00 Pacific. Please pray that there is no new growth and his brain scan is normal again. My husband had to miss his last therapy of #ANKTIVA and NK cell infusion 2 weeks ago as he had the flu. @bullishbruk @tteuscher
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Jump
Jump@jumpandexplore·
@HollensbeAmanda Oh okay.. may have been a good move! Cuz after 1 week of radiation i had a 6cm cyst form where my tumor was initially removed. If its any consolation The cyst removal went so much smoother than the initial tumor removal. Walked out of the hospital in 2 days!
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Amanda Hollensbe (Braelyn’s Mom)
Amanda Hollensbe (Braelyn’s Mom)@HollensbeAmanda·
I’ve been quiet because things have been moving very quickly. Last week, Braelyn’s MRI showed aggressive new growth, large cyst formation, significant edema, and considerable midline shift. When local options stalled, we received a call from Dr. Linda Liau’s office after her team reviewed Braelyn’s scans. Two days later, we had a telehealth visit. Dr. Liau and her tumor board concluded Braelyn needs surgery ASAP. We arrived in LA yesterday. She’ll undergo extensive testing this week and brain mapping surgery with tumor removal next week. Her tumor will be prepared for an autologous dendritic cell vaccine through either a clinical trial or compassionate use. We remain hopeful immune-based therapies — including Dr. Patrick’s Anktiva — can be part of Braelyn’s treatment path as we continue pursuing every possible option. We are grateful beyond words and not giving up.
Amanda Hollensbe (Braelyn’s Mom) tweet media
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Lori Mills
Lori Mills@LoriMills4CA42·
My husband is being featured in a documentary for groundbreaking therapies for Glioblastoma. Unleash #ANKTIVA and NK therapies for all cancer patients! #IBRX @bullishbruk
Lori Mills tweet media
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Jump
Jump@jumpandexplore·
@CFSCentral Yes! Super interesting! Curious to read your future post breakdown on it.
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Mindy Kitei: journalist
Mindy Kitei: journalist@CFSCentral·
@jumpandexplore Hi Jump! Thanks for the info. I'll do a little more digging after some sleep. It's complicated, isn't it? But exciting! Thanks again.
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Mindy Kitei: journalist
Mindy Kitei: journalist@CFSCentral·
After 6 Anktiva treatments for glioblastoma, Lori Mills' husband, Andrew, has a *normal* brain scan. He begins PD-L1 checkpoint inhibitors on 2/24. Dr. Soon-Shiong's Anktiva steps on the gas. PD-L1 checkpoint inhibitors cut the brakes. PD-L1, a protein often found on tumors, stops NK cells from killing cancer. But PD-L1 checkpoint inhibitors enable NK cells to do their job, killing the cancer, full steam ahead. @DrPatrick #glioblastoma #ANKTIVA
Lori Mills@LoriMills4CA42

@aakashgupta My husband is in his 6th dose of #ANKTIVA diagnoses with Glioblastoma in October with a 12 month survival rate. Today, his brain scan is normal! He starts PL-1 NK cells Tuesday! Let’s go!

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Amanda Hollensbe (Braelyn’s Mom)
Amanda Hollensbe (Braelyn’s Mom)@HollensbeAmanda·
This is Braelyn working with her occupational therapist to try to regain functional use of her right arm. She lost use of it about a week before her recurrent tumor was removed. Progress is slow. But she shows up. She tries. She doesn’t quit. Neither do we. #GBM #ChildhoodCancer #NeverGiveUp
Amanda Hollensbe (Braelyn’s Mom) tweet media
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Jump
Jump@jumpandexplore·
Actually. Trial sites have increased from 3 to 4. Just noticed today a new site in Tenesee. But aside from Hoag and soon-shiong institute theres another one in st. jude providence in fullerton. I agree single patient access may be the way to go but ive met people on social media who thought they wont make it in for different reasons. For example more than 2 recurrence or was previously on avastin but the principal investigator on the trial site was able to get them in after discussing with immunitybio their specific case. I think doing both wouldn’t hurt. God works miracles through many ways. But ofcourse whatever your heart is pushing you to go..
Jump tweet media
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Lori Mills
Lori Mills@LoriMills4CA42·
@jumpandexplore @HollensbeAmanda There are not other trial sites but Hoag Hospital in Newport Beach. They will be bound by the same FDA guidelines. She needs a single patient approval.
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Jump
Jump@jumpandexplore·
@drterrysimpson Doesnt seem like you have a heart. I had a craniotomy and thanks to my wife who never left my side. Staying at the icu was bearable. The staff didnt give me a bath at all but my wife did.
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Dr Terry Simpson
Dr Terry Simpson@drterrysimpson·
If you have a loved one in the hospital let them rest - don’t stay more then ten or twenty minutes - I was in the ICU for five days - trust me you’re keeping them up and you’re not helping the staff do their job
Suneel Dhand MD@DrSuneelDhand

Genuine bit of advice: If you have a close relative over the age of 75 in the hospital, and you love them, DO NOT leave them alone. Be there every moment that you are allowed to be there, watching over things as a solid advocate.

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Jump
Jump@jumpandexplore·
@indepundit_1 @CaryKelly11 Its not fda approved i believe. Needs to come from a clinical trial and at the moment theres none for gbm
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Cary Kelly
Cary Kelly@CaryKelly11·
If conventional oncology really wanted to give us our best fighting chance against cancer, wouldn't they be trying to help out the cells whose job it is to kill cancer cells? "The only cell that kills cancer... we don't pay any attention to that."
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Richard Fairgrieve
Richard Fairgrieve@RichFairgrieve·
@Siobhain_Mc @wesstreeting @NIHRresearch @CR_UK And to think the @MHRAgovuk has been in possession of an MAA from $NWBO for $DCVax-L to treat one of the deadliest forms of cancer, GBM, for over 2 years and still hasn't approved it. $DCVax is a safe and effective treatment yet languishes in a government morass. Shameful.
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Siobhain McDonagh
Siobhain McDonagh@Siobhain_Mc·
We come 27th out of 29 comparative countries in treatment of Rare Cancers. Just shameful.Thank you to @wesstreeting and team for tackling this shocking situation but questions need to be asked of @NIHRresearch @CR_UK Why have people been let down so badly. How will they change?
Department of Health and Social Care@DHSCgovuk

The National Cancer Plan will transform care for rare cancer patients. We're investing in research, appointing a new national lead and helping patients find clinical trials faster. @KarinSmyth visited St James's University Hospital in Leeds to see the @NIHRresearch facility.

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Jump
Jump@jumpandexplore·
@joseph_lidster Genuine question to clarify. They were not married?
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Joseph Lidster
Joseph Lidster@joseph_lidster·
My best friend died 2 months ago aged 30. Yesterday we had his memorial. It was a beautiful day but, because he didn't have a will, his estranged family took his body away from us. His partner of 13 years doesn't know when or where he was buried. Please please make a will x
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Jump
Jump@jumpandexplore·
@WWUTTcom Sounds like tthoughts satan would like humans to have
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WWUTT?
WWUTT?@WWUTTcom·
That Mary, the mother of Jesus… • Was not sinless • Is not co-redemptrix • Did not remain a virgin • Does not answer prayers • Is not the Queen of Heaven • Has never appeared to anyone • Was not bodily assumed into heaven • Would despise Roman Catholicism
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Jump
Jump@jumpandexplore·
@HollensbeAmanda @DrPatrick Did you submit to other clinical trial sites as well? Such as hoag in orange county and st jude as well in fulleton
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Amanda Hollensbe (Braelyn’s Mom)
Amanda Hollensbe (Braelyn’s Mom)@HollensbeAmanda·
This Monday marks two weeks since we submitted Braelyn’s application for the Anktiva GBM clinical trial. We are anxiously awaiting word on whether she is accepted. If she is denied, we will immediately pursue single patient access. Time is critical. @DrPatrick #Anktiva #ImmunityBio #GBM
Amanda Hollensbe (Braelyn’s Mom) tweet media
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PhoenixLights
PhoenixLights@PhoenxLights·
Stand Up To Cancer, Breakthrough Pathways in Malignant Glioma: A Disease of the Neural Ecosystem Innovation Summit, today, Saturday, January 31, 2026 at The Langham Huntington, Pasadena, California. Immunitybio ( $IBRX) - Dr. Simon Khagi, MD, MBA, Hoag Family Cancer Institute presents today, Saturday, January 31, 2026, 1:40 p.m. – 1:55 p.m. PST. Topic: Immune Agonists as a Combination Backbone (ImmunityBio – Bioshield regimen) Full agenda at this link: su2cscientificsummit.com/wp-content/upl…
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Tib
Tib@bigdickee·
Dr. Simon Khagi, maybe the most respected oncology professional in the world, will be announcing a recommendation for $IBRX Anktiva to be used as a treatment nationwide, sparking new trials and off-label prescriptions. Shorts going into the weekend will be very upset Monday.
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Jump
Jump@jumpandexplore·
@tteuscher It is.. when i was on tmz. My ANC would drop to 0.2
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Tyler Teuscher
Tyler Teuscher@tteuscher·
UPDATE: 1/29/2026 I want to thank everyone who has shared Leanne's story, commented on the post, and reached out to me. I really can't thank you enough. Leanne is finally home after being in the hospital since Monday afternoon. Her blood work continues to be an issue. The doctor's performed a bone marrow biopsy and we have yet to see the results. At least they are looking to ensure that there isn't something else going on. It still makes me extremely nervous and panicked. She was given several shots of Granix which is supposed to help with production of white blood cells. I will say the count did go up a little which is encouraging. Definitely need ANKTIVA Bioshield as Leanne's immune system has been completely destroyed by radiation and chemo. Standard of care is a complete joke. All of the billions of dollars that have been spent on "curing" cancer have just gone into more research on how to maintain the status quo. They aren't trying to "cure" anything. They are trying to slow it down Cytostatic is bullshit! Stop dragging your feet @MartyMakary @US_FDA @RobertKennedyJr Stop getting on X and saying you are going to do something. Put some verbs in your sentences and actually DO something. Saying words doesn't move the needle. Actions do that. Think Bigger! @MartyMakary @US_FDA @realDonaldTrump @RobertKennedyJr @DrPatSoonShiong @LoriMills4CA42 @ChiayuChenMD @bullishbruk @ImmunityBio
Tyler Teuscher@tteuscher

My Wife's Cancer Story and a plea for help! PXL 20251117 200653055 TS youtu.be/Ll-EJ9ZJ10I?si… via @YouTube @realDonaldTrump @RobertKennedyJr @US_FDA @drpatrick @LoriMills4CA42

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Jump
Jump@jumpandexplore·
@tteuscher I got my second shot of anktiva today. And got reminded of how sucky temozolomide is. My ANC today is 0.94 after 2 months of normal ANCs. So random. Oncologist is not worried thoughz thinks its just lingering effects of temozolomide
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