ACDA

1.4K posts

ACDA

@ACDAssociation

We are a group of parents throughout the world who have had a child with Alveolar Capillary Dysplasia (ACD).

Katılım Şubat 2012

290 Takip Edilen296 Takipçiler

ACDA retweetledi

TheDavidAshwellFoundation@TDavidAshwellF·11 Şub

It’s rare disease day on Thur 29th Feb Please support our charity & wear jeans (or blue) to school or work raising awareness of rare diseases & heping us fundraise for research into this rare disease that took our newborn baby David. 👖💙 wonderful.org/fundraisers/Nl…

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TheDavidAshwellFoundation@TDavidAshwellF·16 Eki

#waveoflight2023 remembering David & too many precious babies taken too soon #babylossawareness #raredisease @ACDAssociation

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TheDavidAshwellFoundation@TDavidAshwellF·28 Şub

I’m wearing my 👖 for #RareDiseaseDay2023 Are you?

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Prof Amelia A Lake@Lakenutrition·23 Şub

Tomorrow morning I will be chatting to Antony on the amazing #localradio @BBCTees 📻 Talking about #rarediseaseday2023 & what our small charity @TDavidAshwellF does to raise funds & awareness for #ACD #research @ACDAssociation

TheDavidAshwellFoundation@TDavidAshwellF

Looking forward to speaking to Antony tomorrow morning on ⁦@BBCTees⁩ about our small charity in memory of our son David & #rarediseaseday2023 wonderful.org/fundraisers/nV…

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ACDA@ACDAssociation·28 Şub

@RachelleinMI @TDavidAshwellF @RareDiseases @RareDayUS Thank you for your support 💙❤️

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Rachelle@RachelleinMI·28 Şub

Why am I wearing “jeans” today? (technically, a Jean dress!). And on a BOE meeting night? Because of my niece Phoebe & nephew Ronan, gone too soon due to the rare disease @ACDAssociation @TDavidAshwellF @RareDiseases @RareDayUS #always #jeansforgenes #RareDiseaseDay2022 #miched

St Clair Shores, MI 🇺🇸 English

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TheDavidAshwellFoundation@TDavidAshwellF·28 Şub

They’ve got their 👖 on! Raising money & awareness on #RareDiseaseDay for #ACD in memory of their big brother David. #jeansforgenes #ForDavid @ACDAssociation (Yes that’s a cricket bat 🏏 😵‍💫)

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ACDA@ACDAssociation·11 Şub

In the UK @Lakenutrition is talking to children today about #RareDiseaseDay & #ACD Amelia runs @TDavidAshwellF in memory of baby David who had ACD Schools are supporting us by wearing 👖 for genes! wonderful.org/fundraisers/384

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ACDA@ACDAssociation·30 Haz

This group received a grant fundraised by families like us around the world who lost their baby to a deadly #raredisease #ACDMPV It’s incredible to see the science progress at this rate

Cincinnati Children's@CincyChildrens

Read more about an exciting application of #nanoparticle technology that improved survival in mice w/rare newborn disease. #ACDMPV #rarediseas Post: bit.ly/2TQth5M Study @CircAHA : bit.ly/3pVS7xn @CincyKidsHeart @CincyKidsGenomX @UCHealthNews @RareDiseases

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ACDA retweetledi

TheDavidAshwellFoundation@TDavidAshwellF·30 Haz

This group received a grant fundraised by families like us who lost their baby to a deadly #raredisease #ACDMPV Overwhelmed to see the science moving towards a treatment for this fatal disease that affected our son David @ACDAssociation

Cincinnati Children's@CincyChildrens

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TheDavidAshwellFoundation@TDavidAshwellF·2 May

Thinking of so many incredible mothers I know who have experienced the loss of a child or children 🦋 #babyloss #ACDC (Image from @ACDAssociation)

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TheDavidAshwellFoundation@TDavidAshwellF·19 Mar

Ten years today since our eldest baby boy David died aged 15 days Ten years of trying to raise awareness & funds in his memory through this charity & @ACDAssociation for #ACD #Research This year, I’ve run every day for the 15days of his turbulent life uk.virginmoneygiving.com/SomeoneSpecial…

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ACDA@ACDAssociation·24 Şub

One of our UK families #10forDavid

TheDavidAshwellFoundation@TDavidAshwellF

Approaching my son's 10th birthday and anniversary of his death and asking you to do #10forDavid to help us #fundraise for much needed #research into #ACD the #raredisease that affected him. #babyloss @TDavidAshwellF uk.virginmoneygiving.com/SomeoneSpecial…

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ACDA@ACDAssociation·15 Eki

Our amazing president Eliza has put this together for this year’s #BabyLossAwarenessWeek #Grief is.... acdassociation.org/2020/10/14/wri… #WaveOfLight #ACDAWaveOfLight

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ACDA retweetledi

TheDavidAshwellFoundation@TDavidAshwellF·15 Eki

Perfect 🌈 this morning in school run for #BabyLossAwarenessWeek #ForDavid💙 @ACDAssociation #acd #RareDisease

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ACDA@ACDAssociation·10 Eyl

Little Imogen has the same #raredisease (ACD) as our son David. Imogen is unusual in that she’s a survivor & youngest lung #transplant recipient in UK This week she started school! Incredible ❤️ ⁦@TDavidAshwellF⁩ @roselock22 theargus.co.uk/news/18705898.…

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TheDavidAshwellFoundation@TDavidAshwellF·19 May

Our charity along with @ACDAssociation has awarded a #research study into #ACD through @RareDiseases #ThankYou for all your fundraising contributions 💙#ForDavid rarediseases.org/nord-awards-el…

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ACDA retweetledi

Prof Amelia A Lake@Lakenutrition·19 May

Our small UK #charity @TDavidAshwellF along with @ACDAssociation has funded a new research grant through @RareDiseases into #ACD ACD is a #raredisease affecting #newborns and took our eldest son David aged only 15 days rarediseases.org/nord-awards-el…

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ACDA retweetledi

TheDavidAshwellFoundation@TDavidAshwellF·19 Mar

Love you & miss you always my precious boy - 9 years & I ache for you today as much as I did the last time I kissed you goodnight - love from your mummy xxx #ForDavid #raredisease #ACD @ACDAssociation

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ACDA@ACDAssociation·28 Şub

The #ACD families from around the world are so grateful to you all! Thank you! #RareDiseaseDay #TDAF

Handcross Pre-Prep@HXP_PrePrep

Today at school...we are wearing jeans in Pre-Prep @HandcrossPark to raise money for #RareDiseaseDay @TDavidAshwellF #TalesofHXP #HXPSecretGarden

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Keşfet

@BBCTees @TDavidAshwellF @RachelleinMI @RareDiseases @RareDayUS @Lakenutrition @roselock22 @elonmusk