ANNetwork
59 posts

ANNetwork
@ANN_AusNZ
The Australasian Neuromuscular Network is a collaboration of professionals striving to help people affected by neuromuscular disorders in Australia and NZ
Katılım Haziran 2015
111 Takip Edilen116 Takipçiler

It's the first poster session @PNSociety1 and our #ANN members are presenting their research @DonlevyGabe BIA in #CMT & @Physio_Rachel #PhysicalActivity and #exercise in #CMT #PNS2024


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The last research presentation session of the #ANN2024 Congress covering #respiratory #mentalhealth and #sleep dysfunction, #gait in DMD, #glucose monitoring in #SMA, stress & glucose intolerance in mdx mice & respiratory function in #SMA 2&3
Bravo all 👏🏻👏🏻👏🏻



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Valedictory presentation from Prof @BurnsSyd at #ANN2024 Congress. Australia is not really losing you to @StJude896
Your hugely impactful research will continue to benefit the international community of children, young people and adults with CMT and NMD.
Excited for next steps!




Melbourne, Victoria 🇦🇺 English

Embedding functional research in the clinical environment @RCHMelbourne #paediatric #Neuromuscular Clinic
#gait #function #falls
Kate Carroll, @katydv_physio Justine Adams @Physio_Rachel
Strengths and challenges of clinician initiated research...so much data...so little time.




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National Muscle Disease Bio-databank... clinicians and scientists collaborating from around Australia... working with patient advocacy groups, patients and families @MCRI_for_kids


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An update from across the pond from @MiriamNZNMD ...NZ Neuro genetic Registry and Biobank... registry translating to clinical trials and access to treatments! 👏🏻👏🏻👏🏻 @AucklandUni


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@MCRI_for_kids researchers are kicking off Day 2 morning session at #ANN2024 Congress.
Great to hear @davidson_zoe work bringing together a large retrospective study of survival in #Duchenne MD and Chantal Coles developing immunotherapies in #FSHD


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Welcome to Melbourne #ANN2024 and what a glorious autumnal Melbourne morning. The ANN Congress is go!
Stay tuned for all the latest breaking...
@WorldMuscleSoc many thanks for sponsoring 12 #ECR who are attending and presenting their research.




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Vital importance for access to genetic counselling for families with children with #SMA exampled by embedding genetic counsellors into the #neuromuscular team at QCH @childhealthqld #ANN2024 @ANN_AusNZ

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The first @WorldMuscleSoc sponsored #ECR session.
Congratulations @DonlevyGabe @katydv_physio @CaraTimpani @iheartleopard 👏🏻👏🏻👏🏻👏🏻




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@WorldMuscleSoc Grateful for the support and promotion of #neuromuscular research and clinical care.
Thank you @WorldMuscleSoc
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New paradigm of care in #paediatric #SMA patients...car seat positioning with @RCHMelbourne OT Ash Cruz, genetic counselling with Pauline McGrath @childhealthqld, nutritional Mx in era of DMT @Katie_OBee and emergency care plans with Dr Anita Cairns @childhealthqld




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A morning discussing care in adults with #Neuromuscular disease... respiratory, cardiac and obstetric care... importance of #multidisciplinary care across all talks




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Dr Conrad Chris Weihl @LabWeihl from @uwsomwwami is our keynote speaker discussing clinical trial readiness in LGMD.
Take home message "Genetic test companies classify variants, clinicians interpret genetic variants"




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