Katy de Valle
8 posts

Katy de Valle
@katydv_physio
Physiotherapist working in the paediatric neuromuscular field with a special interest in facioscapulohumeral dystrophy (FSHD)
Melbourne, Victoria Katılım Mart 2020
14 Takip Edilen8 Takipçiler

Women rocking the centre stage at #WMS2023
All female panel and speakers today
@gitaramdharry @alfano_ln
@WorldMuscleSoc

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authors.elsevier.com/c/1gFAY3QUujqX… There is an urgent need for more data to support paediatric FSHD research…but here is a start
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@Physio_Rachel @biogen @RoseCokayne Looking good ladies and great presentation and discussion @biogen SMA forum 2022
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@FSHDEurope FSHD clinician survey investigating outcome measures in clinical care. Early results presented at the recent FSHD IRC. Are you a clinician managing the care of individuals with FSHD? Survey link melbourneuni.au1.qualtrics.com/jfe/form/SV_8A…
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@FSHDSociety FSHD clinician survey investigating outcome measures in clinical care. Early results presented at the recent FSHD IRC. Are you a clinician managing the care of individuals with FSHD? Survey link melbourneuni.au1.qualtrics.com/jfe/form/SV_8A…
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@mpcfshd @FSHD @abrafeu @FSHDCanada @FSHD_China @FSHDEurope @FSHDSociety @FSHresearch FSHD clinician survey investigating outcome measures in clinical care. Early results presented at the recent FSHD IRC. Are you a clinician managing the care of individuals with FSHD? Survey link melbourneuni.au1.qualtrics.com/jfe/form/SV_8A…
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👉👉👉👉 #WorldFSHDday 👈👈👈👈
🍊World FSHD DAY🍊
🔜WE NEED YOU
Contact your local #FSHD association
NOW !!
- 🇦🇺 @fshd
- 🇧🇷 @abrafeu
- 🇨🇦 @FSHDCanada
- 🇨🇳 @FSHD_China
- 🇪🇺 @FSHDEurope
- 🇺🇸 @FSHDSociety & @FSHresearch
and more
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@mpcfshd @FSHD @FSHDSociety @FSHDEurope @SOLVEFSHD Responses from clinicians world-wide will ensure survey results are meaningful and not just region/country specific. Please contribute if you can.
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🇦🇺
#FSHD Clinical Care Outcome Measures - A clinical Survey
Team from the Royal Children’s Hospital and University of #Melbourne is inviting medical and allied health clinicians to be involved in a survey.
treat-nmd.org/news-events/ne…
@fshd @FSHDSociety @FSHDEurope @SOLVEFSHD
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7 days at home with the family. What could go wrong?
(No, I have not had work done. But I do feel hideous).
#Mon4Kooyong #auspoll #KooyongVotes

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