Action4Arvin

Move aside Neil Armstrong, Astronaut Arvin’s taking off🚀 Thanks to passioneer Alice, @Action4Arvin has landed in the online universe and preparing to release some out of this world content 🌚 Pav and the team are on an incredible mission, raising awareness and funds for #DMD

Just signed up for the Duchenne Dash @GoodwoodMC, if anyone’s up for it let me know 👍🏽

Watch out astronaut Arvin is off to Mars!🚀🚀 Way too cool for school... @Action4Arvin are doing incredible things to try and raise awareness and funds for research for DMD - we are coming on the journey to help them skyrocket (quite literally)! #makegoodgrow

Recommendations for bringing clinical trials in #genetherapy to the UK have now been published in the Journal for Neuromuscular Disorders: ow.ly/D05d50Dp8t1 #Duchenne #ClinicalTrials

Thank you @krishgm for spreading the word! Get involved and #DonateaDay this February to help #EndDuchenne

Join the Duchenne Dash: Dash Around the World on 3rd July @GoodwoodMC. 300 cyclists will attempt to collectively cycle the circumference of the globe: 40,000KM in just 12 hours in aid of Duchenne UK! Pre-register now: ow.ly/bFF950DiqBA #duchennedash

Get ready to #DonateaDay this February and share some love with families affected by #Duchenne. It could be the cost of your morning coffee, your commute, or even a day’s wage! duchenneuk.org/donateaday

Action for Arvin was created after our son Arvin, at the age of 4, was diagnosed with Duchenne Muscular Dystrophy (DMD) which is one of the most serious genetic diseases worldwide. We are a family fundraiser for @duchenneuk, a charity with a vision to find a cure for DMD.