Action FCS
617 posts
@ActionFCS
Charity working to improve the lives of people affected by Familial Chylomicronaemia Syndrome (FCS), previously called LPLD Alliance
We’re delighted to be at the European Parliament today with @EUCVHAlliance to meet with MPs, along with patient ambassadors, seeking support for an EU Cardiovascular Health Plan #Cardiovascular disease must be the public health campaign of the next term #VoteHealth2024
Familial Chylomicronemia Syndrome (#FCS) isn't just about physical symptoms; it often starts with navigating an extremely strict diet. These individuals face unique dietary challenges daily. Let's acknowledge their resilience and show our support! #FCSAwarenessDay #FCSAware2023
On FCS Awareness day - I've spent the day taking on the #FCS10gFatChallenge. It has deepened my empathy and reinforced the need for awareness and research in this field. It's a cause worth championing, and I hope we can learn more about FCS and support those living with it.
Familial Chylomicronaemia Syndrome is a rare & serious condition. People with #FCS are recommended to eat <20g fat per day, restrict simple sugars + drink no alcohol to <risk of pain/pancreatitis. Many eat less than 10g fat per day. fhef.org/news/fcs-aware… #fcsaware2023
How to close the FCS awareness day eating < 10 gr fats per day? Rosted corn with a light Tzatziki prepared with zero fat greek-like yogurt and some salads .... my dear poor patients! #FCS10gFatChallenge #FCSAware2023 @fhpatienteurope @actionfcs @FedericaFogacci
