Addison's Disease Self-Help Group (ADSHG)

May has arrived, which means #AddisonsDiseaseDay is just 29 days away! This year’s theme is 'Turn Awareness into Action'. Whether you live with primary (Addison's), secondary, or tertiary #AdrenalInsufficiency, this day is for you. Get involved 👉 addisonsdisease.org.uk/Event/addisons… (1/4)

Continue to help: 🆕Take part in research on the Prevention & Management of Adrenal Crisis: loom.ly/1_1D3PQ 📝Write to your MP: loom.ly/yR0adyk 📣Join our charity to receive ADSHG Advocacy updates. Your membership supports our work: loom.ly/UmUT4bM (5/5)

📣 Our Impact Report on The Discontinuation of Liquid Hydrocortisone in the UK has received endorsement from @Soc_Endo & support from @RCollEM, reinforcing the urgent need for change. This has been sent to all MPs contacted to give clear guidance & show patient experience. (4/5)

ADSHG Advocacy Update 📢 We’ve been working hard on our campaign following the discontinuation of liquid hydrocortisone in the UK & have encouraging updates to share. 📨ADSHG charity members, check your inbox for our latest email or read our 🧵 summary to learn more. (1/5)

Your endocrine team could also work with us to improve patient safety by collaborating to jointly provide emergency injection training to up to 50 patients in your area 💉 Find out more ➡️ addisonsdisease.org.uk/help-us-provid… | @Soc_EndoNurses #InternationalNursesDay (4/4)

Feeling inspired by #InternationalNursesDay? If you could you host an awareness stand for #AddisonsDiseaseDay (29 May) in your hospital, get in touch! Educate your colleagues on adrenal insufficiency and steroid dependency ⬇️ addisonsdisease.org.uk/run-an-awarene… | @Soc_EndoNurses (3/4)

This @theRCN #InternationalNursesDay, we want to say thank you to every nurse for their support and care, especially the amazing @Soc_EndoNurses 💙 (1/4)

If you're struggling with emotional stress this #MentalHealthAwarenessWeek, we're here for you. You're not alone 🤝 Visit @RaremindsUK Wellbeing Hub or the @wren_project. You can also speak to others with adrenal insufficiency on our online forum ➡️ addisonsdisease.org.uk/online-forum (2/2)

This #MentalHealthAwarenessWeek, we want to highlight the challenges of managing a long-term condition, like Addison's disease or adrenal insufficiency, and how emotional stress impacts our steroid replacement dosing 💊 @AlePreteUoB explains ➡️addisonsdisease.org.uk/coping-with-ps… (1/2)

Even if you’ve never experienced an #AdrenalCrisis, you can still take part. Learning more about prevention is a vital part of this study. Dr Sofia Llahana explains the importance of your voice! Please take part in our online survey &/or 1:1 interview👉addisonsdisease.org.uk/News/research-…

Today we're launching our survey on the prevention & management of #AdrenalCrisis & we need you to take part! For too long the real story of how people experience & manage adrenal crisis has been missing, but we're working to change that. Take part➡️ addisonsdisease.org.uk/news/research-…

We can't make #AddisonsDiseaseDay a success without you. Every share, every challenge started, every penny donated helps. Together we will help improve the lives of those with Addison's & adrenal insufficiency. Get involved & make a difference 👉 addisonsdisease.org.uk/Event/addisons… (4/4)

Make a stand! #AddisonsDiseaseDay awareness in your hospital. Calling all healthcare professionals! Set up an awareness stand to educate others on this rare condition and the needs of a steroid-dependent person. Find out more👇 @Soc_Endo addisonsdisease.org.uk/run-an-awarene… (3/4)

May has arrived, which means #AddisonsDiseaseDay is just 29 days away! This year’s theme is 'Turn Awareness into Action'. Whether you live with primary (Addison's), secondary, or tertiary #AdrenalInsufficiency, this day is for you. Get involved 👉 addisonsdisease.org.uk/Event/addisons… (1/4)

Since Deana started the ADSHG, we've grown to: 💜 Over 2,340 members 👥 Over 39,000 social media followers 🌍 Be internationally recognised for patient support & medical education for the adrenal insufficiency community You can support us by donating 🎁 addisonsdisease.org.uk/ways-to-donate

🗂️ We've been digging into our newsletter archives, which document the incredible work done by Deana. In Newsletter No. 57 from August 2001, Deana's chosen poem was 'Smiling Is Infectious'. In celebration of your birthday Deana, we want to share that poem from 25 years ago!

Today is a very special day! Please join us in wishing our founder, Deana Kenward MBE, a very happy birthday 🎉 We want to thank Deana for everything she's done for our charity over the years and those affected by Addison's disease and adrenal insufficiency 💜