Addison's Disease Self-Help Group (ADSHG)

100 Days to Go! #AddisonsDiseaseDay 2026 is Friday 29 May ✨ From hosting an awareness stand in your hospital to fundraising - read more & get in touch to share your idea & find out how we can support you. addisonsdisease.org.uk/Event/addisons… @Soc_Endo |@Soc_EndoNurses |@ESEndocrinology

📢New: 3-Month Prescription Request Letter. If you live with adrenal insufficiency, inc Addison's, having enough steroid medication isn’t just convenient - it can be lifesaving. 📨Use our letter template, endorsed by @Soc_Endo, to request from your GP ➡️ addisonsdisease.org.uk/adrenal-insuff…

Read our roundup of @Soc_Endo #SfEBES2026! From receiving a ‘Highly Commended’ award with @Pituitary_org to presenting two research grants inc @AldonsChua & having vital conversations with clinicians - all to represent people with adrenal insufficiency. addisonsdisease.org.uk/news/british-e…

💬 "My steroids are my life force. If I want to live, it is my responsibility to give my body what it needs so I can do the things I want to do." In the Spring of 2023, Mauve was diagnosed with Addison's at the age of 29. Read her story on our blog ⤵️ addisonsdisease.org.uk/blog/mauves-st…

The "Fasting with Adrenal Insufficiency" patient leaflet is included in @BritishIMA's #Ramadan Compendium page. 📲 britishima.org/advice/ramadan… Thank you to the research team behind this leaflet: Dr Shazia Hussain, @sugarydoc, Prof Karim Meeran & @NazimGhouri.

Our leaflet provides information on reducing the risk of becoming unwell if you're fasting with adrenal insufficiency, so you and your family can enjoy a #HealthyRamadan. 👉 addisonsdisease.org.uk/fasting-with-a… @BritishIMA | @Soc_Endo

Ramadan Mubarak to everyone in our community who is observing 🌙 As Ramadan continues, our "Fasting with Adrenal Insufficiency" patient guidance leaflet is here to help you manage your health and steroid dependency. Download your free copy ⤵️ @Soc_Endo addisonsdisease.org.uk/fasting-with-a…

@owenmorgs Thank you for sharing and for helping to raise awareness of this training. Our next Paramedic Training Session is on Thursday 2 April. We have more information and details of how to register here ⤵️ addisonsdisease.org.uk/Event/paramedi…

Those looking for #Paramedic CPD hours, @AddisonsUK offer online training (via Zoom) on managing #prehospital adrenal crisis. addisonsdisease.org.uk/adshg-paramedi… #Ambiwlans #Ambulance #Addisons

@MFT_NAC @aspertrust Thank you for sharing our Injection Practice Day on 1 March and the link to our Injection Training page. Our next Injection Practice Day will be on 1 September but in the meantime we have other options for learning and practising the emergency injection 💉 addisonsdisease.org.uk/injection-trai…

Some #aspergillosis patients develop #adrenal insufficiency from taking long-term steroids March 1st = injection practice day 🩼 Get training for yourself and caregivers: addisonsdisease.org.uk/injection-trai… Or watch Alison's patient story: youtu.be/b8rCwBVelnI @aspertrust @AddisonsUK

When diagnosed, many of us learn that without pacing our energy and resting, we would only be making our situation worse. This means every rest, nap, "Addy" or "Spoonie" day you have is productive, caring and important. 📸 Photo credit: @ThisThingBlog | #NationalNappingDay

It's #NationalNappingDay - a day those with Addison's and adrenal insufficiency can relate to! Before diagnosis, 94% of people report overwhelming exhaustion which we describe as tired in a way no amount of sleep (or power nap) will fix 💤 addisonsdisease.org.uk/diagnosis-info…

🎉 Only 2 weeks to go! Our Reading Member Get-Together is fast approaching and we can’t wait to welcome you for a day of connection, support, and talks from Endocrinology experts. 📆 Saturday 21 March 1-6pm 📍 Reading 🎟️ RSVP ⬇️ addisonsdisease.org.uk/Event/reading-…

#RareDiseaseDay 2026 may be over but raising awareness never stops 💜 Every day is an opportunity to highlight rare conditions like Addison's disease and adrenal insufficiency and keep the conversation going. Catch up on our post below to learn more ⤵️

@prethivan Amazing work 👏 Thank you for being part of our Addison's Clinical Advisory Panel. We're proud to have the expertise of such dedicated clinicians supporting our PSG. | @Soc_Endo #SfEBES2026

Honored to share our work in the Adrenal Network session at #SfEBES2026, on the novel HISTAR score-integrating CYP11B2 immunohistochemistry with clinical predictors to enhance cure prediction post adrenalectomy in primary aldosteronism. Grateful for the engaging discussion !

Congratulations to previous ADSHG research award winner & outgoing @Soc_EndoNurses Committee Chair, @LBreen16, as she received the @Soc_Endo Nikki Kieffer Medal in recognition of her significant contribution to advancing patient care, education & research 🏅 | #SfEBES2026

Today is the final day at @Soc_Endo #SfEBES2026! If you're attending, please visit our stand in the PSG Hub to pick up your FREE publications pack & sign up to our HCP newsletter 👉 addisonsdisease.org.uk/adshg-the-conf… Thank you to all the dedicated clinicians who have stopped by!

At our stand you can also scan the QR code to sign up to 'ADSHG Connection', our healthcare professional newsletter, & receive updates straight to your inbox. Can't make it? Click the link on our Endo Hub ⤵️ addisonsdisease.org.uk/adshg-the-conf… | @Soc_Endo @Soc_EndoNurses #SfEBES2026

Hello from @Soc_Endo BES Conference in Harrogate! 🆕 New for this year: our free healthcare professional packs. Each folder includes publications to support you & your patients. 📍Visit our stand in the PSG Hub, between Hall D & Studio One, to collect yours. #SfEBES2026

Our amazing team are heading to @Soc_Endo BES Conference! We’re excited to share our resources to help healthcare professionals support people with adrenal insufficiency, including Addison’s. 🆕 Find out more & sign up to our mailing list: addisonsdisease.org.uk/adshg-the-conf… | #ShareYourKit

It's Injection Practice Day ⬇️ 🍊 Unbox your training kit & add an orange 🗑️ Have a sharps bin or jam jar ready (for disposal) 📝 Follow the step-by-step instructions & learn together ☑️ Check your emergency kit contents are in date 🔗 addisonsdisease.org.uk/injection-trai… | #ShareYourKit