Sabitlenmiş Tweet
Rareminds
445 posts
Rareminds
@RaremindsUK
Specialised mental health and wellbeing services for the rare disease community. https://t.co/eVmeTw0aah…
Katılım Kasım 2020
1.7K Takip Edilen886 Takipçiler
Lesson 5 of our collaboration with @M4RareDiseases is now out - sign up now for free at learn.m4rd.org. #MentalHealth #RareDisease #RareMindsMatterhttps://twitter.com/M4RareDiseases/status/1689598992517050368?s=20
English
So pleased to be working with @tsa_charity on supporting the #CACNA1C community. #RareDisease #RareMindsMatter #MentalHealth
Timothy Syndrome Alliance (TSA)@tsa_charity
'Mind the Gap' parent & individual/couples counselling supports those impacted by #CACNA1C. This work has been made possible by an award from Postcode Local Trust, a grant-giving charity funded entirely by players of People’s Postcode Lottery. @PostcodeLottery @RaremindsUK 🙌💪❤️
English
Rareminds retweetledi
Do you want to be part of the official #RareDiseaseDay 2024 video? 📽️
Now is your chance!
To send in your contributions or get more information on how you can get involved, DM us or contact us at rarediseaseday@eurordis.org!
#LightUpForRare #ShareYourColours #video
English
Rareminds retweetledi
RECAP! ✋Available lessons!!
🧠 Lesson 1: Introduction to Mental Health and Rare Disease
👩⚕️ Lesson 2: The Rare Disease Journey
🧬 Lesson 3: Mental Health and Inherited Genetic Conditions
🔍 Lesson 4: Assessing Mental Wellbeing
Begin now!
@RaremindsUK
learn.m4rd.org
MedicsforRareDisease@MedicsForRare
We are so happy to bring you the first lesson of our BRAND NEW online course which explores 'Mental Health and Rare Disease’! 🦓 Made in collaboration with the amazing @RaremindsUK - lessons will be going live weekly, starting today. Begin now! learn.m4rd.org
English
Listen to our CEO & Founder @KymWinter discussing the impact of rare diseases on mental health & wellbeing at the recent @EURORDIS webinar (27 mins in). #raredisease #mentalhealth #raremindsmatter
youtube.com/watch?v=9rUvHG…
YouTube
English
Rareminds retweetledi
Our service in collaboration with @RaremindsUK offers study sponsors the opportunity to provide counselling to patients. For more information, contact our team. View our full research poster here buff.ly/3Z2HSb7 #clinicaltrials #research #counselling #rareminds
English
We're so excited to be working with @RD__RP on this project to pilot provide specialist counselling to #RareDisease clinical trial participants!
#MentalHealth #RareMindsMatter #ClinicalTrials
Rare Disease Research Partners@RD__RP
We are delighted to announce our NEW COUNSELLING PILOT INITIATIVE in partnership with @RaremindsUK If you would like more information about this invaluable service, please get in touch with our team at info@rd-rp.com #clinicaltrials #rarediseases #counselling
English
Managing the complex emotions & family dynamics associated with inherited #genetic conditions can be difficult and adversely affect mental health.
Explore these risks & how to support in lesson 3 of '#MentalHealth & #RareDisease.
twitter.com/M4RareDiseases…
MedicsforRareDisease@MedicsForRare
Lesson 3, ‘Mental Health and Inherited Genetic Conditions’’ of the 'Mental Health and Rare Disease' course is now live! Discover more about how rare diseases can affect #mentalhealth by logging on to M4RD Learn. Made in collaboration with @RareMindsUK. learn.m4rd.org
English
Lesson 2 of our partnership with @M4RareDiseases is now out. Sign up for your free account to find out more about how the #raredisease journey can impact mental wellbeing - pls share.
#MentalHealth #RareMindsMatter
twitter.com/M4RareDiseases…
MedicsforRareDisease@MedicsForRare
Lesson 2, ‘The Rare Disease Journey’ from the 'Mental Health and Rare Disease' course is now live! Discover more about how rare diseases can affect #mentalhealth by logging on to M4RD Learn now! made in collaboration with @RareMindsUK. learn.m4rd.org
English
Our CEO @KymFWinter is currently talking at the @eurordis workshop about the work of @Rareminds, and how #mentalhealth is the missing puzzle piece for #raredisease care. #RareMindsMatter
English
Too often #MentalHealth is treated as secondary to physical health. In #RareDisease however there are often complex interacting emotional & physical symptoms - both need to be addressed & supported. #RareMindsMatter twitter.com/samhsagov/stat…
SAMHSA@samhsagov
Remember: There is no health without mental health! #MentalHealth is just as important as physical health, and asking for help is a normal part of life. You should never feel like you have to take on the world 🌎 alone.
English
#MentalHealth support must become a standard part of #RareDisease care. Final chance to register for the @eurordis webinar exploring this issue featuring our CEO @KymFWinter. #RareMindsMatter
EURORDIS-Rare Diseases Europe@eurordis
🚨 Final call! 🚨 There are just two days left to register for our upcoming webinar on the Impact of Rare Diseases on Mental Wellbeing! 🧠 #mentalhealth Find out more: go.eurordis.org/OS9o4A @RaremindsUK @MHESME @mattbolzjohn @RD__RP
English
#MeetTheTeam! David is our counsellor working with
@AmendInfo & @ChildhoodTT. He's also a qualified clinical supervisor & takes a lead role in overseeing our background clinical processes & procedures.
#RareMindsMatter #MentalHealth #RareDisease
English
Effectively supporting the #MentalHealth & #Wellbeing of #RareDisease patients requires appreciation of their lived experience & the complex challenges they face in relation to their particular condition. New online course by @m4rd & @RaremindsUK dropping weekly - pls share.
MedicsforRareDisease@MedicsForRare
We are so happy to bring you the first lesson of our BRAND NEW online course which explores 'Mental Health and Rare Disease’! 🦓 Made in collaboration with the amazing @RaremindsUK - lessons will be going live weekly, starting today. Begin now! learn.m4rd.org
English
Rareminds retweetledi
This is a fantastic resource! Thank you @RaremindsUK and @M4RareDiseases for creating this course, it's wonderful! @CerebraNetwork @PWCentre @rarediseasesint @eurordis
MedicsforRareDisease@MedicsForRare
We are so happy to bring you the first lesson of our BRAND NEW online course which explores 'Mental Health and Rare Disease’! 🦓 Made in collaboration with the amazing @RaremindsUK - lessons will be going live weekly, starting today. Begin now! learn.m4rd.org
English
Such a privilege to work with the @M4RareDiseases team on these resources. Health care professionals play a key role in supporting the #MentalWellbeing of people impacted by #RareDiseases. #MentalHealth support must become a standard part of rare disease care. #RareMindsMatter
MedicsforRareDisease@MedicsForRare
We are so happy to bring you the first lesson of our BRAND NEW online course which explores 'Mental Health and Rare Disease’! 🦓 Made in collaboration with the amazing @RaremindsUK - lessons will be going live weekly, starting today. Begin now! learn.m4rd.org
English
So excited for this launch today - keep your eyes peeled for the first module coming later today! #RareMindsMatter #MentalHealth #RareDiseases
MedicsforRareDisease@MedicsForRare
We have news!! Lesson 1 of our mental health module is released this TUESDAY! 😮 We're so happy to finally bring this to you, which has been made in collaboration with @RaremindsUK ! Keep a look out! #DareToThinkRare
English
"..I get very embarrassed in social environments having to apply my treatments. As applying creams is not seen as a manly thing by society."
Having a #RareDisease can impact all areas of life, especially self esteem. #MensHealthMonth #MensMentalHealthMonth #MentalHealth
English