CLAPA Adult Voices

We're still looking for more adults who were born with a cleft to join @kennyardouin for our Northern portion of the Adult Services Roadshow next week! Add your voice to the future of services for adults who were born with a cleft. bit.ly/2LYAHi0

This month's blog post has been over 18 months in the making and is one I've been asked to write about for a long time! It's about my experiences of rhinoplasty surgery - including when they gave me cocaine to snort off a tampon. kennyardouin.com/rhinoplasty

Last chance to register for North England/North Wales @CLAPACOMMUNITY Roadshow events happening THIS WEEK! Today (Mon 6 Aug): Newcastle - 17:30: eventbrite.co.uk/e/adults-engag… Tue 7 Aug: Liverpool - 17:30 eventbrite.co.uk/e/adults-engag… Thu 9 Aug: Bradford - 17:00 eventbrite.co.uk/e/adults-engag…

Newcastle on Monday, Liverpool on Tuesday, and Bradford on Thursday - a busy week ahead for @kennyardouin in the Northern stretch of the Adult Services Roadshow. If you'd like to join the discussion and meet like-minded people, we'd love to see you there! bit.ly/2LYAHi0

Are you an adult who was born with a cleft lip and/or palate? Help shape the future of UK cleft services by telling your story. Take the survey now at: clapa.com/about-us/what-… @CLAPACOMMUNITY @AdultVoices @FaceEquality Thank you! 🙏

"Falling through the gap". Are we missing the mark when it comes to community dental care for individuals born with cleft lip/palate? Read our article @The_BDJ nature.com/articles/sj.bd…. Photo courtesy of NHS Health Careers @CLAPACOMMUNITY @AdultVoices @UWEHealthPsy @uwebristolnews

Are you an adult who was born with a cleft lip and/or palate? Help shape the future of UK cleft services by telling your story. Take the survey now at: clapa.com/about-us/what-… @CLAPACOMMUNITY @AdultVoices @CAR_UWE @FaceEquality

Thanks to all who attended the Roadshow @CUH_NHS in Cambridge today - fantastic to meet everyone and hear people’s stories, experiences and ideas. Thank you also to @Nankyd, @astrid_ghap and Saff from @AdultVoices for a productive AVC meeting afterwards! Tiring but brilliant day!

Meet Widget - she is an #Exmoor #pony from Exmoor, Devon. She lives @Brendon_Manor Stables. She is 2 years old and has a cleft palate. Why do we think Widget might be special to us? - #CleftPalate #CleftCommunity #CleftAnimals #AnimalsMatter @CLAPACOMMUNITY

Today, we'd like to end our series of Awareness Week stories by hearing from Jenny, a long-time CLAPA fundraiser who has kindly shared her story with us. #CleftAware bit.ly/2KdevMv

Hope everyone's enjoyed our #MyCleftStory series this week! Thanks for sharing & helping everyone in the UK understand the impact of cleft & the difference the right support makes to the 90,000 people living with a cleft in the UK today. bit.ly/2FsI8Yg

#DidYouKnow in a 2014 CLAPA survey, 34% of adults w/ a speech issue indicated they wanted further treatment for their speech, but 65% of these did not know how to access it? Adults born w/ a cleft are entitled to NHS treatment for issues caused by cleft at any age. #CleftAware

A great way to get more #CleftAware is by reading adult's stories about living w/ a cleft. With approx. 72,000 people over the age of 18 living in the UK who were born w/ a cleft, it is so important that support is available for people beyond age 18. bit.ly/2IDynLo

Thanks to our friends at Four Acre Trust, you have the chance to make double the difference! Single donations of £500 or over made between now and September could be doubled by the Four Acre Trust up to a grand total of £20,000. Could your company help? bit.ly/2I8dp8a

If you like shopping, and do a lot of @AmazonUK purchases, why not support while you shop and set @CLAPACOMMUNITY as the #charity of choice at smile.Amazon.co.uk

It's Cleft Lip & Palate Awareness Week until the 13th May. Find out how to get involved here: clapa.com/awareness-week/ @CleftCollective @CLAPACOMMUNITY @AdultVoices @CLAPAScotland @CLAPASW

People born with clefts have a unique and amazing life. From struggles making us stronger, to the people we become. Why not tell us your story in a tweet? - #challenge @Clapacommunity What is your #CleftStory?

Welcome to Awareness Week 2018! Public ignorance about cleft is a challenge for so many in our community. Is there something you wish more people knew about being born with a cleft? What helps you deal with the challenges (and what doesn't)? bit.ly/2mJQGDr

It's a long way over THERE(ish!) crowdfunder.co.uk/trying-2-fund-… Closing in 1 week, any donations you could make would be amazing!

100 babies are born with a cleft each month in the UK. May 5th-13th is your chance to get #CleftAware - join our 2018 #ThunderClap campaign to help spread the word bit.ly/CLAPAThunder