Adult Preemie Advocacy Network

Calling all UK neonatal teams! COLLABORATE, an adaptive, 2-randomisation, real-world-data-enabled RCT to reduce NEC will go live 06/25! We are running a series of webinars to explain & discuss the study Join us! All welcome! Web-links at imperial.ac.uk/neonatal-data-… @BAPM_Official

That's a wrap for @Adultpreemies webinar series: Adults Born Preterm - The Honesty Sessions. Grateful to all the excellent speakers who took part including @Premmiemum @MichelleMKelly1 @The_BPD_Collab @DrColeFletch

🎉 Today is the day we go live with our webinar series! @Adultpreemies @julietteprem28 @99nicu @vickypayne 🥳🥳 Still time to register and catch the 1st in the series live at 3pm GMT. Adults Born Preterm: The Honesty Sessions zoom.us/webinar/regist…

SIGN UP! zoom.us/webinar/regist…

Join us for the first webinar in The Honesty Sessions on the 2nd November where Lauren and Juliette will be discussing their path to advocacy Sign up in the link below 🔽

Join us as we explore some important topics relating to adults born preterm. 'We just catch up right?' live on 2nd November with Lauren and Juliette

@99nicu @Adultpreemies Adults Born Preterm: The Honesty Sessions zoom.us/webinar/regist…

Excited to reveal that @Adultpreemies will be hosting a series of webinars across November, powered by @99nicu More details to follow.

Coming soon! ⁦@BAPM_Official⁩ ⁦@Blisscharity⁩ ⁦@Adultpreemies⁩ ⁦@NeonatalSociety⁩ ⁦@NNAUK1⁩

Protocol for new study in preterm birth, funded by @The_MRC. Preterm birth as a determinant of neurodevelopment and cognition in children (PRENCOG): protocol for an exposure-based cohort study in the UK @BMJ_Open bmjopen.bmj.com/content/14/9/e…

Influence of Preterm Birth and Environmental Context on Academic Performance and Neurodevelopmental Outcomes dlvr.it/TD15ks

Registration has opened! Sign up to attend this year's Salvesen Lecture either in person eventbrite.co.uk/e/salvesen-lec… or online eventbrite.co.uk/x/salvesen-lec…... or scan the QR code below

🎉We did it - 5000 visits to the @Adultpreemies website! Thank you everyone and keep spreading the word.

@drbretty Please get in touch so we can ensure the voice to adults born preterm are included too

#neotwitter: In our clinical trials, should we frame our aims and outcomes as “increasing good things” (eg. survival without BPD) or “decreasing bad things” (eg. death or BPD)?

Improving neonatal palliative & end-of-life care is vital to ensure we're providing care that families need. If you're a parent willing to share your experiences, please contact us, we'd love to hear from you @PeepsHie @mancini_smith @dadmattersuk @zephyrsnotts @Adultpreemies

Our first APAN stand is starting off like us... Small but mighty. Excited to spread the word about all things adult preterm. @Adultpreemies

Final call for participants! Survey closes 3 June 2024. It would be great to hear from #AdultsBornPreterm For more info please below: staffordshire.qualtrics.com/jfe/form/SV_9p… Grateful for shares! Thank you to everyone who has supported my survey so far 🙏

There's still over a month left to be a part of this exciting research