Cee

Everyone is all pro ‘mental health’, until you actual live it and discover that a psychiatric diagnosis, however benign, will mean you are stripped of any credibility and will never be treated like a human being again in your healthcare.

@TSBurkhardt Agree.

strongly agree- never give out info that can be used against you. the problem with this frame is that it sets up open hostility that is usually suboptimal in results oriented relationships, as its a de facto attack on their practice. deception & manipulation ftw

The reason is that it shuts down psychosocial questioning that can be used to build an inaccurate, misleading, and defensive record that can later be used against you or to deny you care. There is a legal basis for it in many jurisdictions. In Australia, the medical record must be relevant, accurate, complete, and not misleading. Similar laws apply in the US. If it’s not relevant, they have no business asking or documenting it. Don’t give them fuel for the fire.

One of the most essential phrases to learn to use in your healthcare is “Is that relevant?”

@ollied72832385 @SusanMorgan19 Hard agree. It’s psychological abuse.

@AetherFox_ @SusanMorgan19 Gaslighting patients should be a crime

🚨Another tragic quick fix #mesh surgery story …. “I agreed to surgery to support my prolapse, followed by a second operation the following year to support my bladder and stop the incontinence. But the moment I woke up from the first operation in 2015, everything changed. I was in agony. I remember it was the kind of pain that takes your breath away. I was thinking, "something is very wrong". It felt like my body was screaming. I honestly felt like I was dying. But I was reassured it was “normal after surgery” and told things would “settle down” as I recovered from the operation” 👆 the usual repeated gaslighting spiel used on all #mesh injured patients

And when they try to report it they’re not believed. And where they otherwise might have found a way to leave the abusive situation, they’re convinced they’re the problem or drugged into indifference. This is the trend across psychiatry - treating a symptom of social failure, not its cause (the fucking social failure).

I don’t think people are aware of how many women who are sexual trauma victims become diagnosed bipolar disorder and/or borderline personality disorder, then are heavily medicated—trapping them in a cycle of further abuse and invalidation.

#iatrogenicharm #medicalgaslighting

@LouiseWhitemesh @SusanMorgan19 😞

@AetherFox_ @SusanMorgan19 I can't sit down without pain in my left groin crease. The level of pain depends on the type of chair. Chairs that are too high for me to reach the floor, with a small hard seat & an upright back support, are the worst. I get pins & needles & reduced sensation in my left foot too

The pelvic #mesh scandal encapsulates every way in which medicine flagrantly betrays its own central edict: “primum non nocere.” Corrupt device approval pipelines. Corporate indoctrination woven into the fabric of medical training. A culture of reckless overconfidence. Systematic refusal to mitigate harm. Indifferent failure of basic logic and reasoning. And when the whistle is blown, a deliberate, sustained campaign emerges: abusing the patient, exhausting them though forced disability, co-opting regulatory and legal systems in a well-rehearsed dance of power exploitation, and choking the screams of the very people these systems vowed to protect. This goes beyond incompetence. Beyond negligence. It is institutionally-sanctioned denigration of fundamental human rights, with impunity. Medical cover-ups, at the individual and institutional levels, must be criminalised. #pelvicmesh #medicalgaslighting #medicalnegligence #humanrights #womenshealth #medicalmisogyny

@LouiseWhitemesh @SusanMorgan19 What is/was the FBR pain like for you? Mine is pressure and burning, like something is in there and I want to rip it out. Like a rat gnawing at burning rope.

@SusanMorgan19 @AetherFox_ Yes, and mine too showed foreign body reaction. Contrary to the implanting surgeon, the 2nd explanting surgeon said they all show FBR.

@FndNope Classic appeal to authority fallacy. Logical fallacies are typically wheeled out when their proponent has exhausted sound arguments and is grasping for straws. Basically, they lost.

Claiming “you’re not qualified” without engaging the actual points doesn’t strengthen the diagnosis, it weakens the conversation. #OpenDialogue #PatientAdvocacy

@SusanMorgan19 Thank you Susan, that means a lot to me. I will message you.

I’ve been on a very long journey trying to find the truth hidden in paperwork - it takes a lot of Subject Access Requests and then you have to read it all yourself- but even then you are ‘time barred’ - I’m not sure whats caused you FBGC - might be better to dm, if I can help I will x

@LouiseWhitemesh @SusanMorgan19 It’s just not even a logically substantiated claim given FBGCs can grow around even the tiniest of foreign bodies (sutures etc), let alone mesh.

@AetherFox_ @SusanMorgan19 Before I consented to #PelvicMesh my surgeon said there was insufficient evidence to support the claim that mesh can cause a foreign body response. Aside from the pain from my mesh eroding and twisting, since the implant, I have felt as though I have been constantly fighting it.

The more you are forced to engage with these systems, the more unjustifiably biased you realise they are, and the more it makes (terrible) sense that the world is the way it is. Professionals hiding cowardice and ineptitude behind the cloak of their status. Professionalism loses its meaning when there is no meaningful professional accountability. This is a harrowing betrayal. I am so sorry.

A message to solicitors, barristers and Judges.

@cyclite It’s a form of epistemic undermining, something with which disabled people are frequently and perversely hit over the head. The imposition of a worldview on their lived experience, inherently discrediting it. This is amplified when it’s endorsed by institutions. Traumatic stuff.

Many if not most people’s view of ”dignified” and ”worth living for” life is ableist. This is one reason why disabled people are rightly terrified of euthanasia laws. ”Independence” is overly valued, but we all are already dependent on other people.

@SusanMorgan19 What other excuses have you noticed? I’m going through my own thing now - not mesh, but adjacent (post-surgical foreign body that they told me was in my head for 18 months, screaming in pain). Getting doors shut in my face by other providers.

@AetherFox_ Yes you’re absolutely right 💯 I’ve heard all their excuses - and once they’ve written that down it’s impossible to prove otherwise - corruption