Roger Wilson CBE

What is a Sarcoma Specialist Center? Two years of consultation and discussion between SPAGN and CTOS to achieve an important consensus. Welcome to the world of the Sarcoma Intelligent Specialist Network. #sarcomacenters mdpi.com/2072-6694/16/1…

The latest STREXIT 2 Project newsletter will be available soon. This issue features the EU Mission on Cancer’s new video on the project, an update on patient enrolment, and highlights from the Horizon Europe Cancer Mission Cluster Meeting in Berlin.

@Amocras @MDPIOpenAccess @ctosociety @sarcomapatients That’s a major milestone! Congratulations to SPAGN and CTOS, the Sarcoma Intelligent Specialist Network sounds like a powerful step forward for patient care and collaboration.

This week we're focusing on the 3rd anniversary of the #SharedCommitment to #PublicInvolvement 🥳 In this blog, NIHR CEO @LucyChappell2 reflects on progress so far and priorities for 2025-2026, including our Strategic Commitments for Public Partnerships: nihr.ac.uk/blog/better-pu…

Sarcoma care shouldn’t depend on where you live. Global standards ensure every patient gets treatment based on the latest research—no matter their location. Let’s close the gap. Learn more: bit.ly/SISNpaper #SISN #SarcomaAwareness #SarcomaCenters @Amocras @CureSarcoma

🟡 Sarcoma survival rates improve when expert centers follow strict guidelines. The UK model proves it—now it’s time to expand expert sarcoma care worldwide. 🌍 Learn more: bit.ly/SISNpaper #SISN #SarcomaAwareness #SarcomaCenters cc: @Sarcoma_UK @RobinL_Jones @Amocras

🟡 It’s #WorldCancerDay. Sarcomas are often overlooked because they’re rare—making them harder to detect & treat. That’s why we need Sarcoma Intelligent Specialist Networks (SISN) to ensure expert care worldwide. Read on: bit.ly/SISNpaper #SarcomaAwareness #SarcomaCenters

2024 was a milestone year for SPAGN. Here's a look back on the impact we made together!

The Sarcoma UK support line team are thrilled to have retained the helpline standard accreditation for another three years. It demonstrates that they are working to a high standard, which has been verified externally. For more sarcoma.org.uk/supportlineinf… Line, please visit on

@CostaPhilippos @schoffski Have a patient write a 400/500 word summary in their own words. Follow this with tables and charts detailing what they will have to do and what will happen to them. Give medical contact details. Put all the legalistic stuff into a booklet they can throw away.

We need to rethink how we consent patients for trials/research. How do we balance fully informing them about the study while avoiding overwhelming, laundry-list-style documents? Simplicity and clarity matter.

Please read and share both of their stories to help us spread the word about sarcoma and patient experiences! You can catch up on all the blogs you've missed here: sarcoma-patients.org/blog/

In case you missed it, there are TWO new blogs available on our #VoicesOfSarcoma blog. Check out "Not Just Any Cancer Information Day", from the diary of our Editor in Chief, Gabi Ott. bit.ly/SPAGNblog_Sarc…

Your new edition of Connect is here! Containing stories from all over the sarcoma community, aiming to uplift, inform, and inspire. Connect is absolutely free and you can sign up right now or read it online: sarcoma.org.uk/about-us/stay-…

Last week I had the pleasure to visit @TataMemorial Mumbai for the @CancerGridIndia meeting and a subsequent meeting with the great #sarcoma team discussing #precisionmedicine and challenging cases. Common practices, but also different (available) treatment options. Interesting!

Dear #WhiskySanta, please may you put Forgotten Casks from @MasterofMalt under my tree? I've been really good this year! masterofmalt.com/asksanta/rum/c…

Watch: Our Chief Executive Richard Davidson explains why your input is vital for our State of the Nation review on sarcoma care in the UK. Share your experiences and help shape the future of NHS sarcoma services. Participate by 2 December. org.pulse.ly/u50sckie8z

@Amocras legend!

Did you know that #sarcomas account for up to 20% of all childhood cancers? While still considered rare, sarcomas are a major subset of childhood cancers. Learn the signs & symptoms here: lnkd.in/dbMdCyB5 Thank you to @vcare24 for the pic! #ChildhoodCancerAwarenessMonth

In our latest blog, Lauren Pretorius, CEO of @CampaigningFor Cancer writes about the challenges faced by sarcoma patients in Africa, and how they are working with SPAGN to overcome them. Read more here, and please share! sarcoma-patients.org/blog/bridgingt… #sarcoma #rarecancers

Thank you to the Irish Sun for featuring our friend and member Carol Haslam of @SarcomaIreland. And congratulations on the new arm, Carol! thesun.ie/health/1365985…