Ataxia_aware CIO 1184030 (previously Ataxia_and_me

Trends and Disparities in Mortality from Hereditary Ataxia in United States, 2000-2020: A Retrospective Analysis with Projections to 2050 link.springer.com/article/10.100…

rydych chi wedi cael eich enwebu yng nghategori Iechyd a Llesiant Gwobrau #Elusennau #Cymru 2026. Llongyfarchiadau, cc @WCVACymru @Ataxia_aware

Rydym ar agor o 9.30-1 | 2-5 Mae gennym ni'ch holl ddarllen haf ac mae'r cyfan am ddim i'w fenthyg! 😎📚😎📚😎📚😎📚😎📚😎📚😎📚😎 We're open from 9.30-1 | 2-5 We've got all your summer reading and it's all free to borrow! @CaerphillyLibs #SummerReads

Here is a deep-dive on Spinocerebellar Ataxias. If you have anything to add that you think people should know about spinocerebellar ataxia, then let us know in the comments! #Ataxia #Awareness #RareDisease #StrongerTogether #PatientsHelpingPatients #LifeScience

Diary marker 2nd week of August We will be supporting the #RareDisease #Dazzle4Rare community at @Ataxia_aware #Ataxia #charity Wales Are you aware ? that #DNA is the code for #Life #StrongerTogether @Dazzle4Rare

Is your research making a real-world impact? Apply for the Health and Care Research Wales Laura Bunting Research Impact Award! Win up to £250 for training or conferences. Deadline: 31 July. healthandcareresearchwales.org/national-award…

This is Brenda's Story. Thank you very much to Brenda for sharing your story with us!💙 If you would like to join Brenda's Facebook group 'Ataxia Helps' you can find it here: facebook.com/groups/8699858… You can read Brenda's full story soon here: ataxia-aware.org/storiesandexpe…

iPatax: a Tablet-based Tool for Quantitative Assessment of Cerebellar Ataxia link.springer.com/article/10.100…

Time Out for Carers – What’s On in Pembrokeshire? carerssupportwestwales.org/2025/07/time-o…

Larimar Therapeutics announced an FDA rolling submission and shared updated results from its ongoing clinical trial of nomlabofusp in adolescents and adults living with Friedreich's Ataxia. Read more: ataxia.org/pharmanews/

Great on-line turnout today at the International Parkinson and Movement Disorder Society, European Section course on the Diagnosis and Treatment of Cerebellar Ataxias. Congratulations to the organizers on an excellent course.

This week's #Tuesday_Tips centres around the small things that can make life easier. If you have any #Ataxia_Tips that you would like to share, leave them in the comments! 💙 #Ataxia #Awareness #RareDisease #StrongerTogether #PatientsHelpingPatients #MovementDisorder

This #Motivational_Monday comes with a reminder that you have a unique set of challenges, but you have the strength and courage to overcome it! 💙 #Ataxia #Awareness #RareDisease #StrongerTogether #PatientsHelpingPatients #PatientAdvocacy

Diary marker 2nd week of August We will be supporting the #RareDisease #Dazzle4Rare community at @Ataxia_aware #Ataxia #charity Wales Are you aware ? that #DNA is the code for #Life #StrongerTogether @Dazzle4Rare

We are proud to be nominated for a #Welsh #Charity #Award in the Health and Wellbeing category Event via welshcharityawards.cymru #Ataxia #RareDisease #PatientsHelpingPatients

@dazzle4rare @thekattdazzle

With #Dazzle4Rare coming in a few weeks do @RareRevolutionM @camraredisease @RareBeacon @FibroFlutters know the exact dates #RareDisease collaboration

We welcome the UK government's announcement that the @NIHRresearch has joined the European Rare Diseases Research Alliance (ERDERA). International collaboration is essential to accelerating progress for people living with #RareDiseases. Read more: buff.ly/mDuFotc

"Yes, my symptoms are frustrating and tiring and debilitating. But here’s the thing – I have Ataxia; it is part of my life, but my world includes so much more." You can read Meg's full story here: ataxia-aware.org/storiesandexpe… #Ataxia #Awareness #RareDisease #StrongerTogether

We are very Proud to have a Reciprocal promotional arrangement with our good friends in #Montreal #Quebec #Canada BOUGER MALGRÉ L'ATAXIE/MOVING BEYOND ATAXIA facebook.com/groups/9541845… #Empowering #Ataxia #Patients helping patients #Resilience in Motion #StrongerTogether