AusPIPS Inc.

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AusPIPS Inc.

AusPIPS Inc.

@AusPIPS150

Patient led AusPIPS Inc. provides advocacy & support for people with Primary Immune Deficiencies (PID) & chronic illnesses, secondary to PID & their Carers.

Australia Katılım Aralık 2016
317 Takip Edilen153 Takipçiler
AusPIPS Inc.
AusPIPS Inc.@AusPIPS150·
8th October - our webinar with Immune Deficiency Foundation of Australia (IDFA). Vice President @emmye1984 will talk about what Ig is, how this treatment aims to protect from infection. Alongside presentations on the benefits of Ig therapy! Register here: lnkd.in/dwUj3Mec
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Jeffrey Modell Foundation (JMF)
Cuts and scrapes are minor for most — but for Luke, who lives with WHIM syndrome, they could be life-threatening. Watch his story + expert insights from Dr. Teresa Tarrant on this rare primary immunodeficiency. 💙🎥 medicalstories.tv/title/whim/
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Jeffrey Modell Foundation (JMF)
💛This summer, discover a story that will move you to action. "Do Something: The Jeffrey Modell Story" follows Fred and Vicki Modell as they transform unimaginable loss into unstoppable hope. After losing their son Jeffrey to #PrimaryImmunodeficiency, the Modells refused to let his story end there. Today, JMF leads the fight for early diagnosis, life-saving treatments, and ultimately, cures through groundbreaking research, physician education, and patient advocacy. What started as a parent's worst nightmare became a beacon of hope for thousands of families worldwide. 🎬 Stream "Do Something: The Jeffrey Modell Story" in 7 languages here: bit.ly/4cwt1MP
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AusPIPS Inc.
AusPIPS Inc.@AusPIPS150·
Its Worl Primary Immunodeficiency Week! The best way to raise awareness of disease is to listen to the stories of individuals with lived experience. Thanks @info4pi for this great series of blogs bringing awareness to this rare disease.
Jeffrey Modell Foundation (JMF)@Info4PI

Meet Jodi Taub — a Primary Immunodeficiency (PI) patient and licensed psychotherapist who specializes in chronic illness and rare disease. 💬 In honor of #WorldPIWeek, Jodi wrote a powerful blog for us—answering the most common (and often misunderstood) questions she gets about PI. 📖 Read the full blog at bit.ly/3Gzn6eH

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AusPIPS Inc. retweetledi
Jeffrey Modell Foundation (JMF)
Meet Jodi Taub — a Primary Immunodeficiency (PI) patient and licensed psychotherapist who specializes in chronic illness and rare disease. 💬 In honor of #WorldPIWeek, Jodi wrote a powerful blog for us—answering the most common (and often misunderstood) questions she gets about PI. 📖 Read the full blog at bit.ly/3Gzn6eH
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AusPIPS Inc.
AusPIPS Inc.@AusPIPS150·
Next Wednesday, 30th April, join VP Emily, who will chair this Wednesdays webinar in collaboration with IDFAs Carolyn. The webinar will talk about invisible diseases that Primary immunideficient patients live with. There's still time register here: us02web.zoom.us/webinar/regist…
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AusPIPS Inc.
AusPIPS Inc.@AusPIPS150·
Its World Primary Immunodeficiency Week and to start our campaign to raise awareness we are sharing the 10 warning signs of Primary immunodeficiency. #WPIW2025 @WorldPIWeek
Jeffrey Modell Foundation (JMF)@Info4PI

Kids get sick 🤒 But how often is too often? Primary Immunodeficiency (PI) causes frequent #infections that can be hard to cure. 1:500 people are affected by PI. If your child exhibits 2+ of the #10WarningSigns 🚨, speak to a physician. See the signs at bit.ly/3wzDmnm

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AusPIPS Inc.
AusPIPS Inc.@AusPIPS150·
Its #RareDiseasesDay 2025 Here's the link to view our webinar cohosted with the IDFA, looking at diagnosis, treatment and transition care for primary immunodeficient patients. As well as patient perspectives on living with disease. Co hosted by @emmye1984 canva.com/design/DAGcyEl…
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Dr Emily Edwards
Dr Emily Edwards@emmye1984·
I am proud to have played a small part in this study. Great work by @DickinsLab in showing that CTLA4-Fc therapies release PDL1 from CD80, depending on the CD80:PDL1 ratio, and can reinforce T cell inhibition. @MonashImmunol @MonashSTM
Dickins Lab@DickinsLab

Tremendous effort led by co-first authors Ethan Oxley (@MonashUni @Monash_FMNHS @MonashSTM @ACBDresearch) and Nadia Kershaw @drkersh (@WEHI_research). Thanks to co-authors including @CynthiaLouisDr, Ian Wicks, @Dr_Nick_Bikes @stephwiranata @emmye1984 @MeredithKeeffe

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Mark Butler MP
Mark Butler MP@Mark_Butler_MP·
ANNOUNCED: Immunocompromised Australians with underlying health conditions will now have free access to the shingles vaccination, helping hundreds of thousands of Australians.
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AusPIPS Inc.
AusPIPS Inc.@AusPIPS150·
New Medicare funding for #SCIg. This will end the postcode lottery associated with access to SCIg. Read our press release below. Thanks @Mark_Butler_MP for your support.
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AusPIPS Inc.
AusPIPS Inc.@AusPIPS150·
Congratulations to Prof Jo Douglass, chair of our Medical & Scientific Advisory Panel, who has today been awarded an Order of Australia for her distinguished commitment to Medical Research, clinical Immunology and Allergy @ascia_news @TheRMH @UniMelb @WEHI_research #JMFMelbourne
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AusPIPS Inc.
AusPIPS Inc.@AusPIPS150·
AusPIPS relies on grants and donations to continue their work to support and advocate for patients with Primary Immunodeficiency. Please vote for us to share in $500,000. It's free to vote and only takes a minute so please visit mygivingcircle.org/auspips-inc and vote for us today!
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