Alba Azola, MD

It’s official! It’s #LongCOVIDAwarenessDay! Let’s do this! Trend #LongCOVID #LongCOVIDAwareness Participate in actions and events at longhauler-advocacy.org/lcamonth2026 Share your stories. Follow and elevate others. Repost, like, engage. Tag us, and others you want to engage!

ICYMI, #MECFS affects millions but is NOT part of standard clinical training. Advocacy Week (Mar 23–27), @PlzSolveCFS & @MEActnet will ask patient safety agencies to support our mission to introduce ME/CFS questions into qualifying national medical exams. ow.ly/Tqet50YoPG7

I’m so excited the #LongCOVID Treatment Guide is live! This was the result of over a year of work between @RTHM_health and @patientled’s incredible team! Thanks to everyone who reviewed and provided feedback on the guide! 🙏 We hope this helps the #IACC community!!

“That’s not my silo.” One line that explains why Long COVID care is so hard. A multisystem disease inside a siloed healthcare systemoften end up coordinating their own care—while living with fatigue, brain fog, and PEM. We must do better. #LongCOVIDAwarenessDay

As we approach Long COVID Awareness Day (March 15), we need to talk about more than the illness—we need to talk about the system patients are navigating while sick. In our recent qualitative study (doi.org/10.1016/j.ssmq…), people living with Long COVID described a healthcare journey marked by siloed specialty care, poor communication between providers, long wait times, and major barriers to diagnosis. Many heard some version of: “That’s not my silo.” But Long COVID is a multisystem condition, and patients cannot divide their symptoms by specialty. When coordination fails, patients become their own care managers—tracking records, connecting doctors, scheduling visits, and advocating for themselves while living with fatigue, brain fog, and post-exertional worsening. Long COVID is exposing deeper structural gaps in how we care for multisystem chronic disease. Awareness must lead to better coordination, clearer pathways to care, and systems designed around patients—not silos. #LongCOVIDAwarenessDay #LongCOVID #PatientAdvocacy #HealthcareSystems #MECFS

A rare and potentially fatal illness that might be linked to GLP-1 drugs is now causing alarm go.nature.com/4kTZX6S

On the cover of The Lancet: Editorial — “Robert F Kennedy Jr: 1 year of failure” Read the latest issue: spkl.io/6011Aa3Et

Long COVID is a stress test for our system — and an opportunity. If we can redesign care here, we can better serve all people with chronic, complex illness. I hope this piece helps push the conversation forward, toward care models that listen, adapt, and center patients.

Patients often become experts out of necessity. Medicine works best when lived experience is treated as data, not dismissed as anecdote.

I’m a co-author on this piece, and it reflects what I see every day in clinic. Long COVID isn’t only exposing gaps in our science — it’s exposing failures in the culture of medicine.sciencepolitics.org/2026/01/28/the…

🧵 "Why I Can’t Just Meet You for Dinner: The Reality of Post-Exertional Malaise" substack.com/home/post/p-17… Thoughtful blog post which tries to explain postexertional malaise & how those who suffer from it need to be very careful with which activities they do #PwME #LongCovid 1/

Please help @meighanstone with the housing emergency mentioned below. Like, share, give if you can so she can continue her stellar LC advocacy 🙏 gofundme.com/f/keep-long-co…

Preparing for Long COVID Awareness Day 2026! - March is Long COVID Awareness Month - March 15th is Long COVID Awareness Day - March 15th (Sun) -21st (Sat) is Long COVID Awareness Week The COVID-19 Longhauler Advocacy Project is seeking state leads/ organizers and participants! More information can be found in the form below, with more specific details on actions coming soon. Those interested in being organizers or participants, please complete this form: forms.gle/UYLqmBUDGfvZ7j… Opportunities are open beyond C19LAP community members. Long COVID is in a time where we need to be all in, together. We welcome other Long COVID groups and organizations to reach out to contact@longhauler-advocacy.org if they wish to collaborate on this initiative. We encourage international groups to organize a similar effort. Please consider sharing this initiative across platforms and groups. #LongCOVIDAwareness #LongCOVIDAwareness2026

@loscharlos Happy birthday 🎉

Turn 36 today & I’ve spent my entire thirties with #LongCovid. When I turned 30 I was biking to work 10 miles a day, & since my mild covid infection — I struggle to walk more than a block or work more than a few hours a week. Here’s 4 things I wish everyone knew:

New clues about long covid’s cause could unlock treatments. @washingtonpost @HopkinsMedicine @AzolaAlba washingtonpost.com/health/2025/12…