#MEAction Network

This #MillionsMissing, we are #FrailAndFurious! Injustices are happening worldwide because ME is not taken with the seriousness we deserve. Let's come together to show the world how devastating this disease is. Join the fight: millionsmissing.org

Zoom/phone SUPPORT meeting is soon. 🫂 WED July 15, 2026 ( 3rd Wednesday, monthly) 🕧12:30 PM EDT US for #MECFS, #LongCovid @meactnet NC State Chapter Support Group. Friends, allies, caregivers, and out-of-staters welcome. Find link to link to join in following post.

New article with advocacy efforts being taken to bring attention to Wired’s failure of journalistic ethics in its recent article about Long COVID. Scott Hugo, has filed a complaint to request a formal ethics investigation. MEAction has signed in support. meaction.net/post/meaction-…

Here we go! Starting in less than 10 minutes. See you soon....or not - cameras off is totally ok.

Are you joining us TOMORROW? We are chatting with author Marisa Renee Lee, July 14th at 12 pm EDT, about her new book- Waiting For Dawn: Living with Uncertainty. Register: ow.ly/EsLk50ZlOF5 Learn more: ow.ly/piMg50ZlOF6 #pwLC #PwME #book #MECFS #LongCovid

Update in the fight on a different front: States sue to block Medicaid work requirements @motherjones @metraux_julia motherjones.com/politics/2026/…

Upcoming event: A Virtual Town Hall on Medicaid Cuts led by multiple orgs on July 14th at 7 pm ET: go.caringacross.org/a/medicaidtown…

It is Medicaid Monday! We have some important updates and resources to share. How are you taking action? Don't forget to submit your comment by July 31st! We have a template! docs.google.com/document/d/1KP… #medicaid #disability #pwME

#MEAction is honored to bring you a new Severe ME Artists Project for 2026. It will feature work from those within the severe ME community and will be in recognition of Severe ME Day on August 8th! Full details: meaction.net/post/severe-me… #SevereME #PwME

We have reached our $200k #MillionsMissing fundraising goal because of YOU! The Emergency Department Program is now fully funded! We are beyond grateful for the support and love you show us year after year in our fight for seismic change for ME and Long COVID. Thank you!

AAPD is hosting a policy webinar on July 14 from 2 - 3:30 PM ET about the new Medicaid work requirements and what they may mean for disabled people. Panelists Rachel Patterson from Patterson & Meek and Jennifer Lav from the National Health Law Program will discuss how disabled people may be affected by the work requirements, what may vary from state to state, and what questions people should be asking now. The webinar will be on Zoom. Audience members will have the chance to ask questions. ASL interpretation and CART captioning will be provided. Register for the webinar at ow.ly/R1O550ZlLqK. ID: Graphic of a calendar highlighting the Medicaid Work Requirements Webinar

We had a great time at our Disability Pride Workshop today! Thanks to Shalida Dobbins and our Narrative Working Group for leading it. MEAction has a lot of upcoming events and ways to get involved. Make sure you follow us so you do not miss anything! #pwME #Disability

July has a some great events & important deadlines coming! We created this graphic you can save to help keep up with it all. We look forward to seeing those who can attend for the virtual events: (free but registration required). Check out all events: meaction.net/event-list

Join us on July 14th at 12 pm EDT for a free Virtual Q&A with Marisa Renee Lee about her new book- Waiting For Dawn: Living with Uncertainty. Register: ow.ly/jTtT50ZlOBh First 20 people to register will receive a free book! (US only) Learn more: marisareneelee.com/book/waiting-f…

Solve, @MEActNet, @BatemanHorne, and a local constituent had a productive meeting with the Montana Board of Medical Examiners to discuss #MECFS medical education. Learn more: ow.ly/8Kn350ZlLNg #MEAwarenessHour #UnitedForME

Join us TOMORROW ! July is #DisabilityPrideMonth, and we're celebrating with a special Writing Workshop presented by our Narrative Working Group on July 9th at 2 pm ET. This is open to the whole disabled community! Register: meaction.net/event-details/… #Disability #pwME #pwLC

MEAction is thrilled to bring you 2 upcoming events with author Marisa Renee Lee! July 14 at 12 pm EDT -virtual Q&A with Lee about her new book. ow.ly/vCTR50Zlh8P August 14 at 12 pm EDT for a workshop: Dealing with Uncertainty and Chronic Illness. us06web.zoom.us/meeting/regist…

It is Medicaid Monday! We have a template that walks you through submitting a comment to CMS regarding their Interim Final Rule on Medicaid work requirements. Deadline July 31! Our template walks you through step-by-step. ow.ly/hoVX50ZkQhc #Medicaid #pwME #pwLC

July is #DisabilityPrideMonth, and we're celebrating with a special Writing Workshop presented by our Narrative Working Group on July 9th at 2 pm ET. We'd love for you to join us. Registration required: meaction.net/event-details/… #Disability #pwME #MECFS

TODAY IS THE DEADLINE TO APPLY! We have an exciting opportunity for you! We are offering a special art workshop with multidisciplinary artist Nyx Mir (creator of the ILLMARKS project! illmarks.com) on Thursday, July 16, 2026 at 2pm ET. meaction.net/event-details/…