Barb A Hunt

@laurencurehd Have you heard about the treatment on the horizon for CADASIL. youtube.com/watch?v=UyPkYj…

Today, fellow podcaster Susanna Smith from Genetic Frontiers joined me to share her story of being a previvor of another incurable genetic disease, CADASIL, and how she has become a health coach for people living with genetic and other health risks. #CADASIL #HuntingtonsDisease #raredisease #previvor @Help4HDI spreaker.com/episode/geneti…

Be proactive.

By raising public awareness of CADASIL, we can unlock the funding needed to carry Dr. Joseph Arboleda-Velasquez’s research into clinical trials.

@sciqst @StrokeAHA_ASA Watch the video to learn about the treatment on the horizon for CADASIL youtube.com/watch?v=UyPkYj…

The findings on CADASIL in mice certainly pose significant questions. It raises the issue of why tocotrienol, despite its neuroprotective properties, is ineffective in this scenario. Could it be due to the delivery method, dosage, or perhaps the timing of administration? Understanding the biological mechanisms that hinder its effectiveness could provide insights into developing more effective treatments. This study also underscores the need for ongoing research into alternative therapies that might improve brain connectivity and motor function. Have there been any studies on other compounds or combination therapies in this context? #StrokeResearch #Medicine For in-depth insights into the latest in biomedical research, visit sciqst.com - a comprehensive resource for all your biomedical questions, offering thorough reviews and cutting-edge information.

#STROKE Simultaneous publication at #ISC25 🔴CADASIL mice showed impaired brain connectivity and motor function, highlighting challenges in treatment. Tocotrienol, a neuroprotective vitamin E derivative, failed to prevent disease progression on these metrics. 🐁

@Mark_Blagrove Watch the video to learn more about the treatment on the horizon. youtube.com/watch?v=UyPkYj…

@Mark_Blagrove Have you heard about the Boston researchers advancing first-ever drug for rare fatal stroke disease (CADASIL)

Thanks to the generosity of the CADASIL community at our Brighter Tomorrows Luncheon last November, thinkCADASIL proudly presented Dr. Joseph F. Arboleda-Velasquez with a $25K check to continue vital CADASIL treatment research. 💙 youtube.com/watch?v=-f1wBu…

This season of giving, join us with a small monthly pledge to support CADASIL awareness, research, and clinical trials. Together, even modest gifts make a powerful impact—bringing us closer to ending this devastating disease. thinkcadasil.org/take-action

@abouyarzeed @DrAkhilX Stay alert. Treatment on the horizon for CADASIL. Dr. Joseph Arbodela-Velazquez

@DrAkhilX My SR diagnosed CADASIL

Doctors - What is the rarest diagnosis you have made in 2025?

@beejay_enigma @abouyarzeed @DrAkhilX CADASIL may be considered in young stroke

@abouyarzeed @DrAkhilX Stroke in the young ? Cerebral autosomal dominant arteriopathy with sub cortical infarcts and leukoencephalopathy Wow.

@abouyarzeed @DrAkhilX CADASIL mutation may be as common as 1:300

CADASIL mutation may be as common as 1:300

Help research for CADASIL (an inherited small vessel disease). Become a volunteer in NIH research. Compensation will be provided. Office of Patient Recruitment, 866-444-8810. Ask for study # 000413-H go.usa.gov/xtB6E

Watch Dr. Joe Arboleda share his ground breaking news on 11/8/258. We are grateful to Megan Caruso, who joined us at the luncheon and graciously shared her passion for raising CADASIL awareness at Dr. Joe’s request. youtube.com/watch?v=UyPkYj…

Thank you Barb, Michael, and Carrie for your dedication to raising CADASIL awareness nationwide. Watch presentations below. youtube.com/watch?v=N_g3IM…

We would like to thank Neal McDonough for lending his powerful voice and talent to our CADASIL awareness PSA. With Neal's long and accomplished career spanning film, television, and voice acting, his support brings meaningful visibility and hope to those affected by thisdisease.

AWARENESS is standing together to make a difference

AWARENESS DRIVES FUNDING! FUNDING DRIVES RESEARCH!

Huge thanks Sheila Connor&family! Your incredible work promoting Brighter Tomorrows Luncheon made such a difference.Your energy,dedication, &heart helped make the event a true success.We’re so grateful for everything you did to bring our community together 4 brighter tomorrow!📷

Join think CADASIL as the future of CADASIL is changed