Bev Power
193 posts
Bev Power
@BevPower4
A good person to know and hang out with. Patient expert #CDH , research author, advocator of charity, Yoga Teacher. Loves family, travel and Yoga. Opinions mine
UK Katılım Eylül 2019
70 Takip Edilen33 Takipçiler
Bev Power retweetledi
We are delighted to announce the publication of the NNAP Summary Report on 2023 data today! The report contains a summary of findings for this year, national recommendations and more rcpch.ac.uk/resources/NNAP…
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Bev Power retweetledi
Our data on the Amniotic Fluid are finally available on the @humancellatlas just in time for the #hca2024gm
Come chat about it at the coffee break!
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Wonderful! Always happy to support and promote these talks 🩷🩵 thank you @LeicChildHosp
Neonatal Surgery@NeonatalSurgery
We were honoured to have Mr. Haitham Dagash, paediatric surgeon @LeicChildHosp give an excellent talk on CDH, ECMO and all the consideration for care, surgery and outcomes.Thank you!! A few of the 30 that attended f2f and virtually from across the UK @CDHUK_CHARITY @NNAUK1
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@CDHUK_CHARITY Thank you to Queens University Belfast and @EastwoodPatrice and colleagues from RVI for a special CDH Community Conference! We made lots of new friends and learned new things about patient expectations and priorities #cdh #ccc #qub #cdhuk
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Bev Power retweetledi
We had a fantastic day at our CDH Community Conference in Belfast yesterday, with a great turnout of families!
Medical professionals from the RVI and Queen’s University Belfast ran focus groups to obtain patient and family perspectives and gave them the opportunity to engage in research. It is such a positive action to bring families together for peer support and friendship and to be able to showcase the amazing work of CDH UK 🩷🩵
Our next CCC will be announce later this year to take place in 2025.
More pictures to follow from the day tomorrow 🥰
#CDH #cdhcommunityconference #cdhuk #cdhpatientjourney #cdhawareness #support
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Bev Power retweetledi
Today is the start of CDH Awareness Month! This is an opportunity to collectively draw attention to Congenital Diaphragmatic Hernia and to highlight its impact on patients and their families. It is also a chance to help improve outcomes.
This year’s theme is ‘Family Impact’ and we released our new short information film ‘The CDH Patient Journey’ for you to share earlier this year(see below). We are also releasing our new information booklet ‘CDH and Feeding’ today!
Head to our website is this link to see what you can join in this month to help raise #cdhawareness 👇🏿
cdhuk.org.uk/join-in-june-4…
youtu.be/tsVtDPclH8s?si…
#cdh #joininjune4cdh #awareness
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Bev Power retweetledi
Great #CDH meeting in #Lille wonderful to share data and learn new things about this challenging conditions @CDHUK_CHARITY @giuseppecala94 @GerliLab and Giorgia D’Ariano @GreatOrmondSt @UCLchildhealth @DBC_ICH @bambinogesu
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April has been a busy month! @ernica_ern annual meeting presenting on Patient priorities in research and perspectives in signposting and #CDH2024 symposium plus the launch of @CDHUK_CHARITY new information short film 😀 #cdh #ideaalliance
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📢Over 2,000 paediatricians and health professionals have called on the Government to roll out an RSV vaccination programme.
It's time for the Government to act to protect children's health and the NHS ahead of next winter: rcpch.ac.uk/news-events/ne… @asthmalunguk
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Bev Power retweetledi
Every winter we see our services at breaking point due to illnesses caused by viruses such as RSV. An RSV vaccination programme could be transformative.
We need your help to persuade the UK Government to make this a reality.
Sign our open letter today! rcpch.eaction.org.uk/RSV
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Calling all NNSIG members or potential new members. Our next (bi-annual) meeting is on 26th April in Southampton + ms teams. Do come and join us. If not a member yet, register via @NNAUK1 and click on NNSIG.
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Bev Power retweetledi
We are extremely excited by this research that we supported and of the potential it has to change diagnostic techniques and methods to improve prognosis and outcomes for patients and their families. It is vital that organisations like ours are involved because of the ethical and prognostic factors that new and innovative research can pose and so we are extremely proud to be involved. #cdh #research #cdhuk #MakingADifference #Donate #patientvoice
Paolo De Coppi@paolodecoppi
Amazing working with fetal medicine specialists @PrenatalTherapy @uclh Jan Deprest and Francesca Russo @KU_Leuven @uzleuven to define organoids from congenital diaphragmatic hernia @CDHUK_CHARITY @NIHRresearch @UCLTRO @GerliLab @DBC_ICH nature.com/articles/s4159…
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Bev Power retweetledi
Thrilled to share that our article on primary organoids derivation from human amniotic and tracheal fluids, is now out on @NatureMedicine
We present the first atlas of the unperturbed human amniotic fluid cells, containing epithelial progenitors of fetal small intestine, kidney and lung. Culturing these cells in 3D, our innovative low-tech/low-cost method, allowed generation of primary fetal organoids of multiple tissues from continuing pregnancies.
Curious? Dive into the full article: nature.com/articles/s4159…
@GerliLab @giuseppecala94 @MaxABeesley @GiobbeGiovanni and all our fantastic collaborators!
@ucl @UCLchildhealth @UCLDivofSurgery @GreatOrmondSt @KU_Leuven @TheCrick @WEISS_UCL @UCL_IfWH @Tigem_Telethon @humancellatlas
This work would not have been possible without the support of: @NIHRresearch @MSCActions @UCLTRO @GOSHCharity @Kidney_Research @CDHUK_CHARITY @wellcometrust @EPSRC @Royalacademyof @ArmeniseHarvard @MinisteroSalute @MonashScholars @longfonds @oakfnd @DiamondLightSou
#PrenatalMedicine #RegenerativeMedicine #FetalDevelopment #MedicalAdvancements #BiomedicalResearch #FetalHealth #MedTech #PrenatalScreening #InnovationsInHealthcare #MedicalBreakthroughs #HDBR #AFO #TFO #AmnioticFluidOrganoids
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@StephenHearns1 @easyJet First thing I was taught in nursing training. Can still remember how to do it, but can never remember which is systolic and which is diastolic!
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Dealt with a medical emergency on an @easyJet flight today
All well til I was handed an old style manual sphyg. Haven’t used one for >30 yrs
Winged it til the airport fire crew turned up with an electronic one
Put the stethoscope round my neck to create an air of competence
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