CFNA

21 posts

CFNA

CFNA

@CFNA16

The Cystic Fibrosis Nursing Association. A group of specialist nurses who specialise in Cystic Fibrosis from every region in the UK. Our opinions are our own

Katılım Haziran 2020
10 Takip Edilen48 Takipçiler
CFNA
CFNA@CFNA16·
Today the CFNA said goodbye to one of the greats. Aileen Mallinson has officially retired as CF Nurse Specialist at the Royal Hospital for sick children, Edinburgh. Thank you Aileen for all you have done over the years for the CFNA. We will all miss you! Enjoy the peace 🥳🥳🥳
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Cystic Fibrosis Trust
Cystic Fibrosis Trust@cftrust·
Make sure you've registered to reserve your place: bit.ly/35SpCbB
Cystic Fibrosis Trust tweet media
CFAdultNewcastle@cf_newcastle

The @cftrust is holding a Zoom panel session 23rd Sept, 7pm, titled: ‘Work and Money – know your rights’. This will be aimed at adults with CF & will cover things like reasonable adjustments at work, maximising income/budgeting/reducing outgoings & navigating the benefits system.

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Teesside Cystic Fibrosis Centre
Teesside Cystic Fibrosis Centre@TeessideCF·
Lots of anxiety about returning to school for many so this hopefully will reassure our families or give them the opportunity to as questions. Thank you @cftrust. @rajjayaraj @clairelord17 @figgi12
Cystic Fibrosis Trust@cftrust

We know some children have been back at school during #shielding, are just returning or planning to soon. Join our expert panel who will help to answer some of the questions you may have about going back to school & discuss what support is available: bit.ly/3isumbe

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CFNA
CFNA@CFNA16·
Morning everyone. Last chance saloon for any CF nurses both adult and paediatric who would like to sit on the zoom panel supported by the CF trust to discuss the starting back of schools across the UK. If anyone is interested please can you message or retweet 👍👍
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CFNA
CFNA@CFNA16·
Good morning!! Are there any Scottish paediatric nurses who would like to volunteer for the zoom panel meeting regarding the starting back of schools in the UK. This is a panel supported by the CF trust. Please can you get in touch with me if so. Thank you 😎
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CFNA
CFNA@CFNA16·
@awally77 Can you private message me with your email and I will forward them over
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CFNA
CFNA@CFNA16·
**Attention ALL CF nurses** Would anyone be interested in taking part in a zoom panel meeting on 19th August facilitated by the CF trust. This is for parents of children with CF/adults with CF who have children and/or teachers regarding the reopening of schools.
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Cystic Fibrosis Trust
Cystic Fibrosis Trust@cftrust·
This is a critical step on the road to ensuring that the Vertex triple therapy is licensed for all who would benefit from it and available on the NHS without delay. We will not stop until life-saving drugs are available for everyone with cystic fibrosis in the UK.
EU Medicines Agency@EMA_News

‼️ EMA recommended granting a marketing authorisation in the 🇪🇺 for Kaftrio, the first triple combination therapy for the treatment of #cysticfibrosis in #patients aged 12 years and older: ema.europa.eu/en/news/new-me…

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Cystic Fibrosis Trust
Cystic Fibrosis Trust@cftrust·
Update for those shielding in England - @MattHancock has announced a pause to shielding from 1st August. From 6th July shielding will be relaxed but strict social distancing should still be adhered to. Find out more here: gov.uk/government/new…
Cystic Fibrosis Trust tweet media
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CFNA
CFNA@CFNA16·
My little one and my wife wearing yellow for CF day
CFNA tweet media
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Keşfet

@cftrust @rajjayaraj @clairelord17 @figgi12 @awally77 @MattHancock @YouGov @elonmusk