Cystic Fibrosis Research Institute

Our friends EPNF invite you to take your best shot at the 3rd annual Patrick Nash NCAA Men’s Tournament Bracket Challenge! This March Madness–inspired FUNdraiser supports #cysticfibrosis research & programs. Submit your bracket by March 19 @ 9 AM ET ! secure.qgiv.com/for/marchmadne…

Join us for CFRI’s 39th National CF Education Conference July 24-26, 2026 @TheAmeswellHotel, where the CF community & leading experts come together to dive into the latest in research, care & connection. Early Bird pricing ends March 31! Register: cfri.org/education-supp…

Thank you, @RepRaulRuizMD, for your leadership in bringing the #MCED to passage. CA Cancer Advocates were honored to present you with the #EarlyCancerDetectionChampion Award for helping modernize cancer screenings so more cancers can be found at an earlier, more treatable stage.

Check Out CF Teen Connection, Wed 3/18/26 @ 5:30pm PT- CFRI’s virtual hangout for people with #cysticfibrosis (ages 13-17). Meet other teens w/CF & engage in fun activities that foster connection. No pressure to talk. Parent consent required. Email sbreon@cfri.org to sign up!

Sionna Therapeutics is actively recruiting for 2 clinical trials (modulators that target the NBD1 region of the CFTR protein that is not directly addressed by current modulators) Expects to report preliminary results in mid-2026. clinicaltrials.gov/study/NCT07108… clinicaltrials.gov/study/NCT07035…

Visítanos en Conocimiento y Conexión, la comunidad virtual en español de FQ de CFRI! Para adultos con #fibrosisquística y padres/personas que cuidan. miércoles, 11 de marzo @ 5pm PT / 8pm ET⁠. PARA REGISTRARSE, enviar un correo electrónico a Hannah (hdolhai@cfri.org).

Step into spring with movement this March. 🌿Join CFRI’s free online wellness classes, designed for the #cysticfibrosis community and open to all abilities. 7th-Flexibility & Mobility / 21st-Qigong curecf.cfri.org/Wellness26 Sponsored to date by Viatris, Vertex & private donors.

🕺Welcome to Studio 65 - The CFRI #CysticFibrosis Adult Retreat: a space created by & for adults with CF to share experiences, learn together & build lasting connections. 📅 4/6 – 4/10/26 📍 El Retiro Center Los Altos, CA & Virtually Register: cfri.org/education-supp…

🌱 New season, steady support. As spring begins, CFRI’s online Support Groups continue to offer a place to connect, listen, and be heard. Growth doesn’t have to happen alone. Register: cfri.org/education-supp… Sponsored to date by Viatris, Genentech, individual donors & bequests.

Don't Miss this Upcoming Workshop: Best Practices for Promoting Diversity, Equity & Inclusion Within the Clinical Setting. Monday, March 2nd @ 12pm PT Open to people with #cysticfibrosis, their families & care team members. us02web.zoom.us/meeting/regist…

Living with CF but can’t use CFTR modulators? You’re not alone. Join others who truly understand 2/26 @ 5pm PT. We’ll also welcome a special guest from Emily’s Entourage to share about their CF Clinical Trial Connect Database. us02web.zoom.us/meeting/regist…

⏰ Last chance! The Dance Like a Fool party is starting soon! Clear some space, grab your comfy shoes & join us on Zoom TONIGHT @ 6pm PT | 9pm ET. It’s not too late to dance it out or donate—every move (and dollar) counts! 💜givebutter.com/DanceLikeaFool…

💃🕺Dance Like a Fool Fundraiser is almost here. Friday, Feb 20 @ 6pm PT. Donate $10–$15 if dancing isn’t your thing (when lots of people give a little, it adds up to big change). All proceeds benefit CFRI’s CF Wellness Programs. givebutter.com/DanceLikeaFool…

BreatheStrong CF has launched Bold Enough to Ask, a podcast exploring the intimate and unspoken realities of navigating sex, relationships & reproductive health while living w/ CF. Learn More: breathestrongcf.org/bold-enough-to…

CF Teen Connection 💬CFRI’s virtual hangout for teens with CF (ages 13–17). Meet others with CF, talk about real-life topics, and play games like Two Truths & a Lie. ✔️ No pressure to talk ✔️ Parent consent required 🗓 Wed 2/18/26 • 5:30pm PT 📩 sbreon@cfri.org

#NationalDonorDay is a reminder that generosity can outlive us. 💜 104,000+ people are waiting for a transplant. For many with CF, organ donation offers a second chance when options run out. One donor can save up to 8 lives. Register To Be an Organ Donor: registerme.org/register.aspx

NEW BLOG 💜 Roses are red, violets are blue—lucky for me, I found you. Mao Vang, an adult with #CysticFibrosis, reflects on self-love, healing after loss, and welcoming love again—CF and all. Read her story. 🌹cfri.org/roses-are-red-…

CFRI’s Dance Like a Fool Fundraiser returns! Dance for a song or stay for the whole party.💃 Feb 20th 6-9pm PT Not into dancing? You can still be part of the fun, donate in support of a dancer. All proceeds benefit CFRI’s #cysticfibrosis Wellness Programs. givebutter.com/DanceLikeaFool…

Visítanos en Conocimiento y Conexión, la comunidad virtual en español de FQ de CFRI! Para adultos con #fibrosisquística y padres/personas que cuidan. miércoles, 11 de febrero @ 5pm PT / 8pm ET⁠. PARA REGISTRARSE, enviar un correo electrónico a Hannah (hdolhai@cfri.org).

Move your body, your way this February. Join CFRI’s free online #wellnessclasses for the CF community - open to all abilities. Sign up once & join as often as you’d like. curecf.cfri.org/Wellness26 Sponsored to date by Viatris, Vertex Pharmaceuticals & private donors🫶