CF Together

THANKYOU ❤️ A shoutout to every nurse this International Nurses Day. Your commitment, care, expertise, and unwavering support makes a massive to the lives of so many living with cystic fibrosis, and their families. #CFCNC #CFNurse #HealthCare #CysticFibrosis #CFTogether

From the CF Together family to yours... Merry Christmas ❤️🎄 #MerryChristmas #HappyHolidays

🌟 Wow, what an amazing turnout! 1,000 wonderful members of our community came together to Break a Sweat for CF in Sydney, Melbourne, and virtually — making it the largest CF fundraising walk in Australia! We’re so grateful for your incredible support! ❤️ #BreakASweat #CFWalk

R U OK? Whilst R U OK? Day is today, we encourage you to Ask R U OK? any day of the year because a conversation could change a life. Information on how to ask someone if they are ok, can be found here: hubs.li/Q02PqF-L0 #ruok #ruokday2024

#Melbourne it's your turn. 🙌 4 days to go until we Break a Sweat for CF at Albert Park Lake! Haven't registered yet? No worries, there's still time 👇 hubs.li/Q02Prm0X0 #BreakaSweatForCF #CFTogether #CysticFibrosis #AlbertParkLake #MelbourneWalks #CFWalk #CFRun

Join Team Coffey & @Country_Racing to Break A Sweat for CF, raising funds & awareness for @CFTogetherAus on Sunday 15th September at Albert Park. @HTCoffey 🚶💪 To join or donate ➡️Country Racing Victoria/Team Coffey • Break a Sweat 2024 (cftogether.org.au)

🧵We are thrilled to announce a new partnership between the Safer Air Project and @CFTogetherAus , driven by a shared commitment to improving indoor air quality for everyone, and especially those living with cystic fibrosis (CF). #CysticFibrosis #CleanerIndoorAir #Inclusion

Get your friends together this September for the CF Walkathon. Walk up to 10km to break a sweat for cystic fibrosis. hubs.li/Q02JGzbc0 Early Bird closes 15th August! 👉 Sydney - September 8, Pirrama Park 👉 Melbourne - September 15, Albert Park Lake 👉 Virtual - September!

"Something I didn’t quite understand until a few years post-transplant was the significance of my dad’s organ donor; that while my family was unified by my dad’s chance at a new life, another family's life stood still." Read Emma's story here: hubs.li/Q02J9sm70

In Australia, a baby is born with cystic fibrosis every four days, and today they will have access to life changing medicine under the PBS. This reduces the cost of treatment from $250,000 to just $31.60.

@Mark_Butler_MP Thank you Minister for your swift support and leadership on this matter. The work continues to ensure all members of our community have access to these medications but it’s a good day today.

Things are changing for the CF community and so are we. We are driving progress for all Australian's living with cystic fibrosis. We invite you to take a look at our website, Strategic Plan 2024-2027 and FAQs here: hubs.li/Q02FqgQc0 #ChangingFuturesTogether #CFTogether

Talk to someone who is here for you ☎️ Let’s navigate life with cystic fibrosis together. We are delighted to announce the launch of the new National CF Support Line. 1300 CF HELP (23 4357) Learn more at: hubs.li/Q02Fj-QF0

Good News | Recommendation 15: Recommendation that subsidised access to Continuous Glucose Monitors (CGM’s) be further expanded, including for individuals with insulin-dependent Type 3c, CFRD. Statement here: hubs.li/Q02FkgK-0 Together, we are Changing Futures.

An Important Announcement from our CEO, Andre and Chair, Katherine. See the full details in this video. You can read more, view our full Strategic Plan for 2024-2027, and access our FAQs, here: hubs.li/Q02FbfKY0 #CFTogether #CFResearch #CFAdvocacy #Announcement

Someone I love needs a cure! ❤️ Ending CF Awareness Day 2024 with a simple message. #UntilCFStandsForCureFound #CFAwarenessDay #CureCF

Today is Cystic Fibrosis (CF) Awareness Day! A day where we shout out loud about CF, what it means to live with CF, the advances in treatments, and the road ahead to a cure. 👉 Share this post! 👉 Join the UNITE1830 challenge 👉 Make a donation 👉 hubs.li/Q02z0_XG0

Are you a parent living with Cystic Fibrosis? Come join us online for a chance to connect and share your experiences with other Mums and Dads who also have CF. 👉 Wednesday June 12 👉 12-1pm Register at: hubs.li/Q02xXDZp0

Andre, CFCC CEO, joined the Bendigo CF Support Group this weekend at a Bunnings sausage sizzle. It was a wonderful opportunity to connect with the Bendigo community and volunteers who play a critical role in supporting people living with cystic fibrosis across Bendigo.

Did you know? 57% of Australian's living with cystic fibrosis are adults. Today, the average life expectancy is 48-years, and rising. While it is worth taking the time to acknowledge how far we have come, there is still a long way to go. Find out more at: hubs.li/Q02xlPlF0