Over 50 potential treatments in development around the world. A huge "Thank You!" to all the researchers working so hard, giving us hope for the future 💚 #MyotonicDystrophyAwareness
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Peter
150 posts
Peter
@CureDMCharity
Cure DM exists to help those with Myotonic Dystrophy, their families and carers. We Raise Awareness, Provide Family Support and Facilitate Research.
North Lincolnshire Katılım Mart 2017
617 Takip Edilen260 Takipçiler
Leading the way in access to genetic testing...
Muscular Dystrophy Canada@MD_Canada
Muscular Dystrophy Canada is offering a special program that provides access to myotonic dystrophy genetic testing and counselling at no cost. While provincial systems may cover testing, long wait times to see a neurologist, geneticist, or counsellor can delay answers. This program helps fast-track access and includes expert support to help you understand what your results mean for you and your family. If you have a clinical diagnosis but no genetic confirmation, or a family history of DM1, this is an opportunity to get clear answers without waiting. To take part or learn more about this special program, reach out to research@muscle.ca or call 1-800-567-2873 x5401 #InternationalMyotonicDystrophyAwarenessDay
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gazettelive.co.uk/news/teesside-… A great piece from our trustee Tamsyn about her lovely family 💚🧡
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It continues to be a huge concern for the families we support. Thanks for raising the issue #EdwardJDavey
Ed Davey@EdwardJDavey
Ginny cares for her husband Tim, who has myotonic dystrophy. She works part-time, on top of caring for him every day. Now, under the Government’s PIP changes, they face losing £12,000 a year. Today I asked the Prime Minister: what does he expect carers like Ginny to do?
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Well done #TREAT_NMD ! A great conference in our experience. Thanks for your ongoing support of Myotonic Dystrophy.
TREAT-NMD®@TREAT_NMD
🧬 Today is International Myotonic Dystrophy Awareness Day — a global effort to raise visibility and understanding of this condition. To show our support, we’re offering 20% off standard registration for the TREAT-NMD® Conference throughout September! 👉 buytickets.at/treatnmd/16721…
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Peter retweetledi
Millions of people with #MyotonicDystrophy remain undiagnosed, which poses serious health risks—especially during routine procedures involving anesthesia.
#15S #MyotonicDystrophyDay
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Peter retweetledi
🌍 60+ Global Alliance Organizations Recognize the 5th annual International #MyotonicDystrophy Awareness Day! 💚 We proudly celebrate the remarkable strength & resilience of the DM community around the world. 🌟 Read the full press release at myotonic.org/global-allianc…
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Parliament Fountains will be lit green tonight for International Myotonic Dystrophy Awareness Day. Myotonic Dystrophy (DM) is the most common form of adult muscular dystrophy causing muscle weakness, myotonia, and atrophy. 👇
neuromuscularwa.org.au
#GreenLightsForMyotonic #WA
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Allegedly it’s Myotonic Dystrophy awareness day today, I must have missed the memo.
@CureDMCharity
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In honor of International Myotonic Dystrophy Awareness Day, important landmarks e.g., The Egg and Empire State Plaza are lighted up green in Albany @TheRNAInstitute
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Tonight, all across NYS, iconic landmarks like Niagara Falls, Empire State Plaza, Moynihan Train Hall, and the Gov. Mario M. Cuomo Bridge are being lit in green in recognition of International Myotonic Dystrophy Awareness Day. @ualbany @TheRNAInstitute
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It's Myotonic Dystrophy Awareness Day!
Today, Fylde shows its support with a green-lit windmill. Let's spread awareness and hope for a better future. #MD #GreenLight
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Our #Dynamos wore green in support of International #MyotonicDystrophy Awareness Day. Today and every day, we are inspired by our community, which fuels our efforts to deliver a potentially transformative therapeutic for individuals living with #DM1.
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Today is International #MyotonicDystrophy Awareness Day!
Myotonic dystrophy may affect as many as 1 in 2,100 people across the world.
Our tower will be illuminated in green to show support on the 4th annual awareness day💚
@MyotonicStrong
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@DM1Steinert ...and thank you for your efforts. You posts are very much appreciated!
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Today #15S is the International #MyotonicDystrophy Awareness Day and we want to salute all affected people and spread information about the disease to increase its knowledge, diagnosis and favour its research
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We are lighting up our Multi-Storey Car Park GREEN in support of Myotonic Dystrophy Awareness Day 💚
@CureDMCharity @MyotonicDystrophyAwareness
Find out more and how you can help raise awareness here: ow.ly/a5Xv50Tjaj5
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@TourCNTower Fabulous! Thank you so much for highlighting this cause!
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My brother’s currently running @Marathon_Mcr for @CureDMCharity right now. Show him some support by giving to his @JustGiving page!
#ManchesterMarathon #CureDM #MyonicDystrophy #Charity #Running #Sports #Manchester #JustGiving #Fundraiser #DonateOrShare
justgiving.com/page/michael-b…
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