Daphn Делфин 🌹🌹🌹🌹🔻

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Daphn Делфин 🌹🌹🌹🌹🔻

Daphn Делфин 🌹🌹🌹🌹🔻

@DeBcn08

Ferviente laica perdida en un estado aconfesional. Opinions are my own. #MemoriaHistórica #DDHH #LongCovid March 2020. #WearAMask 😷 FR http://dphnbcn.bsky.soci

Polvo, niebla, viento y sol. Katılım Mart 2012
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Daphn Делфин 🌹🌹🌹🌹🔻
Ya que las televisiones dan más visibilidad a la familia de #Franco que a sus víctimas, aprovecho para recordar a 2 de mis familiares fusilados por el franquismo. Mi bisabuela Petra, exhumada, y mi tio abuelo Narciso, cuya fosa fue sellada por 1 vertedero por el #PP Calatayud. ❤
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AraInfo
AraInfo@arainfonoticias·
Siete años después, el Gobierno Chueca continúa sin hacer efectiva la creación de la unidad de VioGén mientras anuncia parroquias como “puntos seguros”. @CCOOAragon habla de “tomadura de pelo”: arainfo.org/?p=326652
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Julen Bollain
Julen Bollain@JulenBollain·
Se ha hablado mucho de que Zohran Mamdani ha terminado, en tan solo 132 días, con un agujero presupuestario de 12.000 millones en Nueva York. Pero, ¿cómo lo ha hecho? Pues muy sencillo. No lo ha hecho recortando derechos, como suele hacer la derecha, sino gobernando mejor. Ha eliminado gasto innecesario, ha negociado mejor con el Estado y ha hecho que quienes más tienen —incluidas las grandes fortunas inmobiliarias— paguen lo que les toca. Y, además, ha anunciado una inversión de 122 millones para la escuela pública y la contratación de 1.000 docentes más. Porque, a diferencia de lo que hacen Trump o Ayuso, que destinan dinero público a privilegios y negocios de unos pocos, el socialismo trata de gobernar para la gente. Gobernar para la gente y hacer que el dinero público vaya a derechos, a escuelas o a sanidad. Mientras unos recortan, otros ensanchan.
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Daphn Делфин 🌹🌹🌹🌹🔻
@SalvMattera @amaticahealth I agree, but please don't put your money in big ME orgs either. They are predators too, they have jumped to PwLC to take their money by saying the LC was the same as their condition which is not, and then become more powerful, take our funds in research and erase Long COVID.
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Salvatore Mattera
Salvatore Mattera@SalvMattera·
@amaticahealth What they are actually buying is hope, access, and validation. If the research has no validated clinical benefit (like Amatica's test) the researchers are simply monetizing the most desperate people's vulnerability
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Salvatore Mattera
Salvatore Mattera@SalvMattera·
I've gone after @amaticahealth for what I see as obvious predatory practices: no peer-reviewed validation, marketing claims that contradict their own disclaimers, buy-now-pay-later financing aimed at chronically ill patients, years of patient sample collection with not even a single preprint to show for it. But, people say, they're our only hope! At least they're trying to do research! My $1300 brings us closer to a solution! If you want to do something, you have options. There are research projects and institutions out there that accept donations, both money and specimens. Below, I'll list a few. Some are no longer accepting specimens, but I highlight them to demonstrate the contrast between legit research and a money-making scheme. 1. DecodeME Built a ~27,000-person cohort and collected saliva DNA from over 18,000 participants. Designed specifically so severely-affected patients could participate. Did they charge participants $1300? No, it was free. Did they offer Klarna BNPL for the privilege of donating? Obviously not. Did they take three years and publish nothing? No: their August 2025 preprint reported 8 genetic loci linked to ME/CFS, analysed across up to 15,579 cases and 259,909 controls. Is the data locked in a private company? No, they offer access to researchers. That's how it's done. 2. Open Medicine Foundation BioQuest A 1,000-sample multi-omics ME/CFS biomarker project. 400 ME/CFS, 400 healthy controls, and 50 each from four comparator groups (MS, exertional malaise/burnout syndrome, clinical depression, and Long COVID). Named investigators and peer-reviewed track record across the OMF Collaborative Centers. How much did they charge people to collect their samples? Nothing. If you have $1300 burning a hole in your pocket, you can donate. 3. UK ME/CFS Biobank Over 39,000 samples from 600+ donors. Cost to donate? $0. 4. PolyBio Long Covid Research Consortium Yale, Mt Sinai, UCSF, Johns Hopkins, Penn, Cardiff, Harvard-affiliated groups, and others. Findings published in journals, not Reddit threads. 5. NIH NeuroBioBank Post-mortem brain and tissue repository that accepts ME/CFS donations. If you're interested, you can register to donate your brain while you're still alive. It won't cost you or your family anything. You can register here: neurobiobank.nih.gov/donors-how-bec…
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Laura Miers
Laura Miers@LauraMiers·
@Polymarket People didn’t give a single f**k about this, & EVERYONE has had Covid. People truly have no idea what they’re doing, nor do they think for themselves. It’s sad. Doomed, doomed, doomed. earth.com/news/men-infec…
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AraInfo
AraInfo@arainfonoticias·
La escuela pública aragonesa lleva a los tribunales la concertación del Bachillerato y pide paralizarla cautelarmente arainfo.org/recurso-tsja-c…
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Radio Zaragoza
Radio Zaragoza@RadioZaragoza·
Interrumpida la comparecencia del presidente @Jorge_Azcon en las Cortes de Aragón por un grupo de personas que, al grito de "Dinero público para la pública" lanzaban papeles con forma de billetes. 📻Ampliamos información en Radio Zaragoza
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nature
nature@Nature·
An antiviral pill has, for the first time, been shown to prevent COVID-19 in people exposed to the SARS-CoV-2 virus go.nature.com/4nAMi6g
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WACM
WACM@_VFK_DAA·
What would have happened in HIV if it had only been treated symptomatically? Studies fail because diseases are conflated by researchers and communities. Instead of subgrouping MECFS into distinct subtypes, it has been diluted with Long COVID, increasing heterogeneity.
WACM@_VFK_DAA

@erikmoldwarrior @MarximusOne I was mainly pointing out the status quo: a group with already distinct subgroups gets further diluted by lumping in other disease entities & then people wonder why symptom-based approaches don’t work. What would have happened in HIV if it had only been treated symptomatically?

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Camilo
Camilo@i_am_camilo·
@MeetJess Mass infection when the sequelae are easily hidden, as in long covid, is easy. In this case the consequences are too visible, and now they try to act as if capable.
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