NikkiEDSUK

Do you subscribe to Fragile Links magazine? For just £5 a year you get the digital mag & access to ALL back copies! Articles on management, member stories and research info, Fragile Links is the only magazine for people with EDS/HSD. ehlers-danlos.org/membership-acc… @ehlersdanlosuk #EDS

Do you subscribe to Fragile Links magazine? For just £5 a year you get the digital mag & access to ALL back copies! Articles on management, member stories and research info, Fragile Links is the only magazine for people with EDS/HSD. ehlers-danlos.org/membership-acc… @ehlersdanlosuk #EDS

Do you subscribe to Fragile Links magazine? For just £5 a year you get the digital mag & access to ALL back copies! Articles on management, member stories and research info, Fragile Links is the only magazine for people with EDS/HSD. ehlers-danlos.org/membership-acc… @ehlersdanlosuk #EDS

EDS Aware, the Zebra it ain't Rare! Fantastic song by our very own Fran Heley! youtu.be/uJl1hyfFzMA?si… via @YouTube l.facebook.com/l.php?u=https%… #ehlersdanlos @ehlersdanlosuk

@GemmaSPearce @higo_anna @hEDStogether @ProfSheaPalmer @behnam_liaghat @ehlersdanlosuk @TheEDSociety @stickmancrips @socio_melissa @Gord_McG @Rosiekneafsey @jvsimmonds01 Superb @higo_anna

Shoulder symptoms in hEDS/HSD are common yet significant gaps in knowledge remain. This NEW paper reviews what we currently know about non-surgical interventions like exercise, taping and compression garments. sciencedirect.com/science/articl… First publication for @higo_anna's PhD 👏

An exciting opportunity in our new series of webinars to listen to Kim Clayden, Pyschotherpist and Clinical Hypnotherapist with a special interest in EDS. Its costs £2 and you must register before the event - places are limited. ehlers-danlos.zoom.us/webinar/regist… #ehlersdanlos #pots

PLEASE can you donate! We want to raise £1313 for Guy jumping out of a plane on Friday 13th for @ehlersdanlosuk! All money goes towards supporting people with #eds #hsd justgiving.com/page/guy-hodgs… #ehlersdanlossyndrome #TuesdayFeeling #tuesdaymotivations

Guy is jumping out of a plane on Friday 13th for @ehlersdanlosuk has been booked for Friday 13th September! If you who donate £13 or more we will put your name on his jumping t shirt so you can be there in spirit with him. justgiving.com/page/guy-hodgs…

#ehlersdanlos #eds #hsd #charity #chronicillness #ehlersdanlossyndrome #painmonth #collagen #skydive #BankHolidayWeekend #BankHoliday #bankholidaymonday #augustbankholiday #oasisreunion #NUFC

Guy is jumping out of a plane on Friday 13th for @ehlersdanlosuk! jump has been booked for Friday 13th September! If you who donate £13 or more we will put your name on his jumping t shirt so you can be there in spirit with him. Ihttps://www.justgiving.com/page/guy-hodgson-edsuk

Next free webinar for members - Kim Clayden - you need to register by clicking here ehlers-danlos.zoom.us/webinar/regist… #eds #ehlersdanlos #chronicillness

Day 31 of May Awareness month #eds #ehlersdanlos @ehlersdanlosuk Help me raise money to get Guy to jump out of a plane! justgiving.com/page/nikki-cas…… #hypermobility #edsawarenessmonth #ehlersdanlossyndrome

Day 30 of May Awareness month #eds #ehlersdanlos @ehlersdanlosuk Help me raise money to get Guy to jump out of a plane! justgiving.com/page/nikki-cas…… #hypermobility #edsawarenessmonth #ehlersdanlossyndrome

Day 29 of May Awareness month #eds #ehlersdanlos @ehlersdanlosuk Help me raise money to get Guy to jump out of a plane! justgiving.com/page/nikki-cas…… #hypermobility #edsawarenessmonth #ehlersdanlossyndrome

Day 28 of May Awareness month #eds #ehlersdanlos @ehlersdanlosuk Help me raise money to get Guy to jump out of a plane! justgiving.com/page/nikki-cas…… #hypermobility #edsawarenessmonth #ehlersdanlossyndrome

Day 27 of May Awareness month #eds #ehlersdanlos @ehlersdanlosuk Help me raise money to get Guy to jump out of a plane! justgiving.com/page/nikki-cas…… #hypermobility #edsawarenessmonth #ehlersdanlossyndrome

Day 26 of May Awareness month #eds #ehlersdanlos @ehlersdanlosuk Help me raise money to get Guy to jump out of a plane! justgiving.com/page/nikki-cas…… #hypermobility #edsawarenessmonth #ehlersdanlossyndrome

Day 25 of May Awareness month #eds #ehlersdanlos @ehlersdanlosuk Help me raise money to get Guy to jump out of a plane! justgiving.com/page/nikki-cas…… #hypermobility #edsawarenessmonth #ehlersdanlossyndrome

Day 24 of May Awareness month #eds #ehlersdanlos @ehlersdanlosuk Help me raise money to get Guy to jump out of a plane! justgiving.com/page/nikki-cas…… #hypermobility #edsawarenessmonth #ehlersdanlossyndrome

Day 23 of May Awareness month #eds #ehlersdanlos @ehlersdanlosuk Help me raise money to get Guy to jump out of a plane! justgiving.com/page/nikki-cas…… #hypermobility #edsawarenessmonth #ehlersdanlossyndrome